The focus for Child Health Day in 2009 is “Every Child Deserves a Medical Home.” As such, the AAP encourages all parents, children, healthcare providers and supporters to learn about medical home by browsing our National Center for Medical Home Implementation Web site. In addition, the MCH Library's Child Health Day Web page contains additional resources on medical home and links to an archive of materials from previous Child Health Days.
For Families
Build Your Own Care Notebook
This is an organizing tool for families and will help you keep track of important information. Care Notebooks are very personal to your child and ideally should be customized to reflect your child's medical history and current information. For this reason, this web site has been developed to allow you to build a Care Notebook that best meets the need of your child. Please visit this site for a Care Notebook Online tour, as well as access to 20 different carenotebook templates.
The Community Services Locator
This is an online directory that is designed to help service providers and families find available national, state, and local resources that can address child and family needs. Service providers and families may use the locator, produced by the Maternal and Child Health Library, to find available health, mental health, family support, parenting, childcare information, and other services.
Bright Futures:
Health Promotion Information - Fact Sheet
Bright Futures, the preventive services arm of the medical home, is a national health promotion and disease prevention initiative that addresses children's health needs in the context of family and community.
Bright Futures: Community Resources - Fact Sheet
Bright Futures: Families + Health Care Professions = Partners for Healthy Children - Fact Sheet
Healthy Futures
Healthy Futures is a web-based version of Bright Futures for families prenatally up through age 4. Healthy Futures takes the children's health information in Bright Futures and puts it into the hands of parents through videos and text. Healthy Futures increases family knowledge, skills, and participation in health promoting and prevention activities. When parents and doctors share the same children’s health information, they are better prepared to work as partners. The goal? Healthy outcomes for a healthy child, family, and community.
Does your Child Have a Medical Home - Brochure
"¿Tiene Su Hijo un HOGAR MÉDICO?"- Brochure
These are two versions of a family-focused brochure on medical home developed by the Washington State Department of Health Children with Special Health Care Needs Program and the Washington State Medical Home Leadership Network. In both English and Spanish, this brochure explains what a medical home is, the benefits of a medical home, and how to know if your child has one.
A Medical Home is About You - Brochure
Developed by the National Partnership for Women & Families, this brochure describes how families can get the most from medical home.
Principles for Patient and Family-Centered Care: Medical Home from the Consumer Perspective - Brochure
Developed by the National Partnership for Women & Families, this brochure describes the nine key principles that should guide the implemenation of patient-and family-centered medical home.
Families Partnering With Providers
Developed by Family Voices, these tips on communicating with your child’s providers focus on the following areas: Preparing For An Office Visit, Talking With Your Child’s Provider, Learning More (after the visit with the provider), and Helping Your Provider Help Other Families.
Parent’s Partnering with Managed Care Plans
Developed by Family Voices, this seven-page pamphlet of topics and questions can be used as a starting point for families and plans to share perspectives on services for children with special health needs and to help guide plans and families in ways to partner together to improve services.
Families in Title V
Materials from this Family Voices project document and support family partnership with Title V programs and the Title V block grant, including workbooks, presentations, and booklets of partnership information, ideas, and strategies.
Kids As Self Advocates (KASA): Keeping Track of Your Health care Information
A series of tips for youth, especially those with special needs, on how to organize health care information and communicate with providers.
Kids As Self Advocates (KASA) Information Sheets
Tip sheets and other youth-friendly publications written by and for youth.
Family-to-Family Health Information Centers (F2F HICs)
These centers are parent-staffed organizations located in many states that provide information, support, and referral about health care issues for families of children and youth with special health care needs.
The Family-Centered Care Self-Assessment Tool: Family Version
Families, both individually and within family support and advocacy organizations, can use this tool to increase awareness and knowledge of the specifics of family-centered care to more effectively assess the quality of the care that they and their children receive and share knowledge about family-centered care with other families, with providers, with health plans and with policy makers to create a shared vision for improving the health care system. This tool was developed by Family Voices.
American Academy of Pediatrics - Health Topics
The Academy's Health Topics Web pages include a wealth of information and resources for parents on topics including nutrition, physical activity, and much more!
For Providers
Building Your Medical Home Toolkit
This toolkit supports your development and/or improvement of a pediatric medical home. It also prepares you to to apply for and potentially meet the National Committee for Quality Assurance (NCQA) Physician Practice Connections® Patient Centered Medical Home (PPC-PCMH) Recognition program requirements. The AAP created a crosswalk between each of the Toolkit building blocks and the NCQA PPC-PCMH Recognition Program 'must pass' elements.
Bright Futures
Bright Futures, the preventive services arm of the medical home, is a national health promotion and disease prevention initiative that addresses children's health needs in the context of family and community. Bright Futures materials help pediatricians and other health care providers provide the best health promotion and prevention services possible for children within the context of a medical home. In addition to use in pediatric practice, many states implement Bright Futures principles, guidelines and tools to strengthen the connections between state and local programs, pediatric primary care, families, and local communities.
Bright Futures Tool and Resource Kit on CD-ROM is designed to accompany and support the Bright Futures: Guidelines for Health Supervision of Infants, Children, and Adolescents, 3rd Edition, the national standard for well child care. The toolkit is intended to make available to pediatric providers an organized compilation of current forms and materials that relate to preventive health supervision and health screening for infants, children and adolescents. Please visit aap.org/bookstore for the Bright Futures Tool and Resource Kit to be released October 17, 2009.
The toolkit focuses on 4 main areas:
Bright Futures Visit Forms
Documentation and medical screening for preventive services at all well child visits from 1 week to 21 years including patient education handouts and expert-reviewed anticipatory guidance linking to the 5 key Bright Futures priorities for each visit
Practice Management Tools and Resources
Resources that increase ease of practice management for preventive services, including coding
Developmental/ Behavioral/Psychosocial Screening Resources
Recommendations and accompanying screening tools for behavioral, developmental and psychosocial issues
Community Resources
Tools that focus on strategies for building a stronger community referral network
Joint Statement on Medical Home
A consensus statement was developed and jointly endorsed by the American Academy of Pediatrics, American Academy of Family Physicians, American College of Physicians, and American Osteopathic Association
Pediatric Preamble
Understanding the unique needs of children and families, the American Academy of Pediatrics wishes to highlight certain critical pediatric medical home principles
Index of CPT Codes for Medical Home
This index was updated in October 2008 and was originally published in November 2003 in Medical Home Crosswalk to Reimbursement. The information was developed by Margaret McManus, Alan Kohrt, Joel Bradley, and Linda Walsh in collaboration with the Center for Medical Home Improvement, the American Academy of Pediatrics, and the National Institute for Children’s Healthcare Quality. Funded by the Maternal and Child Health Bureau, U.S. Department of Health and Human Services through the Maternal and Child Health Policy Research Center.
Unified Health Communication
This is a free online HRSA training course on health literacy, cultural competency, and limited English proficiency that’s designed for healthcare professionals. The NCQA will award up to 5 continuing education credits for completion of the course.
The Family-Centered Care Self-Assessment Tool: Provider Version
Health care settings can use this structured tool in quality improvement activities and to increase family satisfaction with the care setting and to increase its standing in the community. This tool was developed by Family Voices.
For Everyone!
The National Center for Medical Home Implementation
The National Center for Medical Home Implementation works to ensure that all children and youth including those with special health care needs have the services and support for full community inclusion through medical homes.
American Academy of Pediatrics - Health Topics
The Academy's Health Topics Web pages offer valuable resources and information on nutrition, physical activity, and much more!
National Center for Cultural Competence (NCCC)
The NCCC provides national leadership and contributes to the body of knowledge on cultural and linguistic competency within systems and organizations. Major emphasis is placed on translating evidence into policy and practice for programs and personnel concerned with health and mental health care delivery, administration, education and advocacy.
Champions For Inclusive Communities (ChampionsInC)
ChampionsInC is a leadership and resource center designed to support states and communities in organizing services so families of children and youth with special health care needs (CYSHCN) can use them easily and satisfactorily.
National Center for Hearing Assessment and Management (NCHAM)
This National Resource Center assists state agencies and other federal and non-federal partners in the development and operation of sustainable statewide Early Hearing Detection and Intervention (EHDI) systems.
Healthy and Ready to Work National Resource Center (HRTW)
This is a National Center that provides information and connections to health and transition expertise nationwide. HRTW focuses on understanding systems, access to quality health care, and increasing the involvement of youth.
The Center for Medical Home Improvement (CMHI)
The mission of CMHI is to promote high quality primary care in the medical home and secure health policy changes critical to the future of primary care. CMHI created the Medical Home Index , a validated self-assessment and classification tool designed to translate the broad indicators defining the medical
home (accessible, family-centered, comprehensive, coordinated, etc.) into observable, tangible behaviors and processes of care within any office setting.
The Catalyst Center
This is a National Center dedicated to improving health care insurance and financing for children and youth with special health care needs (CYSHCN).
State Title V CSHCN Departments
State Title V CSHCN Departments are responsible for administering health care programs for children and youth with special health care needs.
Patient-Centered Primary Care Collaborative (PCPCC)
The PCPCC is a coalition of major employers, consumer groups, patient quality organizations, health plans, labor unions, hospitals, physicians and many others who have joined together to develop and advance the patient centered medical home. The Collaborative currently has well over 500 members.
Maternal and Child Health Bureau (MCHB)
This is the federal agency responsible for programs and policies for children and youth with special health care needs. MCHB provides funding for several F2F HICs and several National Centers focused on health care.
Association of Maternal & Child Health Programs (AMCHP)
AMCHP is a national resource, partner and advocate for state public health leaders and others working to improve the health of women, children, youth and families, including those with special health care needs.
Centers for Medicare and Medicaid Services (CMS)
This is the federal agency responsible for administering Medicaid and it also provides funding for several F2F HICs.
National Center on Birth Defects and Developmental Disabilities (NCBDDD)
This is the federal agency that promotes the health of babies, children, and adults, and enhances the potential for full, productive living. Their work includes identifying the causes of and preventing birth defects and developmental disabilities, helping children to develop and reach their full potential, and promoting health and well-being among people of all ages with disabilities.
Data Resource Center for Child and Adolescent Health (DRC)
The DRC provides online access to national survey data that allows users to compare state, regional, and nationwide results. The DRC also provides resources and personalized assistance for interpreting and reporting findings.
Last Updated October 5, 2009
