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Congenital Heart Defects

  • Congenital Heart Disease (CHD) is considered to be the most common birth defect, and is a leading cause of birth-defect related deaths worldwide
  • CHD affects approximately 1.8 million families in the United States
  • CHD affects approximately 40,000 babies each year in the United States
What is the American Academy of Pediatrics (AAP) doing?
As of September 1, 2009, a new five year cooperative agreement with the Centers for Disease Control and Prevention (CDC), Program to Enhance the Health and Development of Infants and Children includes the establishment of a Congenital Heart Public Health Consortium (CHPHC). This consortium, organized by the AAP/CDC, is a group of organizations uniting resources and efforts in public health activities. Their mission is to prevent the occurrence of congenital heart disease (CHD) and to enhance and prolong the lives of those with CHD through surveillance, population-based research, education, health promotion, advocacy, and policy development.

For more information about the CHPHC or to participate, please contact Holly Griffin at hgriffin@aap.org.

Congenital Heart Defects Awareness Week: February 7-14, 2010
CHD Awareness Week is an annual awareness effort to help educate the public about Congenital Heart Defects. It is officially sponsored by the Congenital Heart Defect Information Network (CHIN) www.tchin.org. CHIN is a national organization that provides reliable information, support services, financial assistance and resources to families of children with congenital heart defects, and acquired heart disease, adults with congenital heart defects and the professionals who work with them.

An international coalition of families, individuals, non-profit organizations, support groups, and health professionals participate in this campaign to increase public awareness of Congenital Heart Defects and Childhood Heart Disease.


What can I do for CHD Awareness Week?

For more information about the PEHDIC, contact Holly Griffin, Manager, Medical Home Surveillance & Screening, at hgriffin@aap.org or 800/433-9016, x7863.


Last Updated January 25, 2010
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