National Agenda: Healthy People 2020
Healthy People is a set of 10-year national health objectives for promoting health and preventing disease. Through this initiative, the US Department of Health and Human Services (HHS), in partnership with states, communities, and many organizations in the public and private sectors, has set goals to “bring better health to all people in this country. The Maternal and Child Health Bureau (MCHB), the American Academy of Pediatrics (AAP), Family Voices (FV), and the March of Dimes invite all persons and organizations concerned with children and youth with special health care needs to learn more about Healthy People 2020, and to strategize ways to achieve its goal of family-centered, culturally-competent, comprehensive, and coordinated systems of services for all children and youth with special health needs, in every community.
Every 10 years HHS combines the scientific insights and lessons learned from the past decade with knowledge of current data and innovations to establish health objectives for the coming decade. Healthy People 2020 reflects assessments of major risks to health and wellness, changing public health priorities, and emerging issues related to our nation's health preparedness and prevention. In January 2010, the Healthy People 2020 objectives were released along with guidance for achieving the new 10-year targets.
A complete overview of maternal, infant, and child health indicators, objectives and resources can be found here or by visiting the HealthyPeople.gov Web site. Healthypeople.gov is the comprehensive website of Healthy People 2020 where you can find all 2020 topics and objectives, implementation and partnership information, and ways to connect with Healthy People 2020 through social media. Only by working together at the federal, state, and local levels, and with the public and private sectors can we achieve the goals of Healthy People 2020.
The National Centers funded by MCHB are charged with improving the health and well-being of all children, especially those with special health care needs, and their families:
Early and Continuous Screening
- Sickle Cell Disease Newborn Screening Program National Coordinating and Evaluation Center
Supports grantees in their activities and efforts related to outreach, education and genetic counseling for health care providers, affected individuals across their lifespan, their families, and the general population.
- National Center on Health Assessment and Management
Works to ensure that all infants and young children with hearing loss are identified as early as possible and provided with timely and appropriate audiological, medical, and educational intervention.
- National Newborn Screening and Genetics Resource Center
Provides State newborn screening programs with expert consultation and technical assistance, resource development, education and training, and collaboration with stakeholders.
- National Center for Children’s Vision and Eye Health
Advances and promotes children’s vision and eye care, and provides leadership and training to public and private entities.
Health Insurance and Financing
- Catalyst Center
Conducts policy research to identify and evaluate financing innovations, disseminate findings broadly using multiple modalities and provide technical assistance on health care financing policy and practice.
Easy to Use Community Services
- National Center on Medical Home Implementation
Works to ensure that all children, including children with special health care needs, have access to a medical home by enhancing and providing resources, tools, technical assistance and support.
Health Care Transition
- National Health Care Transition Center
Works to assure that youth with/without special health care needs receive care in a medical home that provides family-centered/youth activated transition preparation, planned transfers from pediatric to adult health care and respectful partnerships.
- Data Resource Center for Child and Adolescent Health
Works to advance the effective use of public data on the health and health-related services for children, youth and families; includes national and state-based data from the National Survey of Children’s Health and the National Survey of Children with Special Health Care Needs.
- Baby's First Test
Baby's First Test is the nation's newborn screening education center for families and providers. This site provides information and resources about screening at the local, state, and national levels and serves as the clearinghouse for newborn screening information.
Center for Medical Home Improvement
The mission of the Center for Medical Home Improvement (CMHI) is to establish and support networks of parent/professional teams to improve the quality of primary care medical homes for children and youth with special health care needs and their families.
Federation of Families for Children's Mental Health
nationally affiliated, parent-run organization focused on the needs of children and youth with emotional, behavioral or mental disorders and their families.
Institute for Child Health Policy
A multi-disciplinary academic unit of the University of Florida that works on issues of health and health care for children and youth. The Institute houses two separate but integrated divisions: one dedicated to research and evaluation, and one dedicated to policy and program affairs.
Institute of Medicine
Crossing the Quality Chasm:
The IOM Health Care Quality Initiative
In 1996, the Institute of Medicine (IOM) launched a concerted, ongoing effort focused on assessing and improving the nation’s quality of care. This initiative is is now in its third phase.
NAMI (National Alliance for the Mentally Ill)
NAMI is a nonprofit, grassroots, self-help, support and advocacy organization of consumers, families, and friends of people with severe mental illnesses. Local affiliates and state organizations identify and work on issues most important to their community and state.
National Technical Assistance Center for Children’s Mental Health (TA Center)
The National Technical Assistance Center works with states, tribes, territories and communities to build and sustain comprehensive service delivery systems using a variety of strategies that are adapted to respond to the unique needs of each audience.
Parent Advocacy Coalition for Educational Rights
The Minnesota Parent Center is a statewide project designed to help families and schools build stronger ties to benefit students. The Minnesota Parent Center provides free training, individual assistance, and information handouts.
Support for Families of Children with Disabilities
This non-profit organization provides support and resources to CSHCN and families in San Francisco and offers a wealth of resources on its Web site, including information to help families, professionals, and the community to navigate the maze of legislation that governs the delivery of services to CSHCN.