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April 2014

April is Autism Awareness Month – with estimates of 1 in 68 children with this diagnosis. Access the latest on autism screening, diagnosis, symptoms, and resources from the AAP:

Tools for Parents and Practices: Partnering with a Child’s Health Plan and Provider
Published by the Family Voices National Center for Family and Professional Partnerships, these tip sheets provide tools for parents on how to partner with specific health plans and providers. These tools can be used by pediatric practices looking to enhance care partnership support.

Fetal Alcohol Spectrum Disorders Toolkit for Medical Homes
An estimated 40,000 babies are born each year with preventable fetal alcohol spectrum disorders. This toolkit provides pediatric primary care clinicians with important information and tools about their role in the prevention and awareness of these disorders.

Resources for Families: Affordable Care Act
Family Voices regularly provides updates on the Affordable Care Act in order to help families navigate through the marketplace. Resources include a health care glossary of terms and information on how to enroll in the health insurance marketplace..

Key Elements of Highly Effective Teams
This article, published in Pediatrics, presents specific elements that lead to effective teams and teamwork in pediatric practice. Team-based care is an essential element of the provision of primary care to children and is a must-pass element in the new National Committee on Quality Assurance 2014 patient-centered medical home recognition standards.

Family and Consumer Tool: Healthy People 2020 and Children and Youth with Special Health Care Needs
Genetic Alliance and Family Voices collaborated with the Maternal and Child Health Bureau to produce this family friendly tool which helps to foster understanding—from the patient/parent perspective—of the Healthy People 2020 objectives for children and youth with special health care needs.

Tools and Resources to Address Child Poverty
The American Academy of Pediatrics released a comprehensive tool and infographic which present information and statistics about child poverty. Pediatric medical home stakeholders, particularly those looking for information on health disparities and high risk populations, will be interested in this information.

Educational Videos: Community Based Initiatives
The American Academy of Pediatrics launched 12 short videos exploring the basic principles and methods for developing a community-based initiatives. This series will help pediatricians and residents become not only informed participants but also community leaders.

For a more detailed information on Implementation Resources, click here.

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April 2014

Starting and Supporting Family Advisory Groups: Part Three of a 3-Part “How To” Webinar Series
April 24, 11 am – Noon CST
Join the National Center for Medical Home Implementation for the last installment of a free 3-part webinar series focusing on the promotion of partnership and teamwork in pediatric medical homes. This webinar will provide a detailed “How-To” description of starting and supporting family advisory groups, provide examples of best practices, and insights from parent partners.
Additional Information

May 2014

Pacific Rim international Conference on Disability and Diversity
May 19 – 20, Hawai’i Convention Center, Honolulu, HI
Presented by the Center on Disability Studies, this annual conference will bring together a diverse gathering of stakeholders representing all disability areas, including families, caregivers, practitioners, and patients.
Additional Information

June 2014

Health Care Transformation: Overcoming Challenges to Reach the Summit
June 9 – 10, 2014, Hyatt Regency Denver Tech Center, Denver, CO
Presented by the Patient Centered Primary Care Collaborative, this regional conference will bring together experts from across the medical home sector to discuss key opportunities and challenges that lie ahead in the pursuit of the Triple Aim.
Additional Information

For a more detailed listing of upcoming conferences, webcasts, and other educational offerings, click here.

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New Patient Centered Medical Home Standards
The National Committee for Quality Assurance has released the 2014 Patient-Center Medical Home recognition standards. Changes include new must-pass elements related to team-based care, emphasis on sustainability, and quality improvement. Find additional information here.

For a more detailed information on National Pediatric Medical Home Initiatives, click here.

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Call for Culturally and Linguistically Effective Practices
The Family Voices National Center for Family-Professional Partnerships is seeking applications from organizations who feel they demonstrate culturally and linguistically effective practices in developing and sustaining family-professional partnerships with diverse families. Contact Trish Thomas or Diana Autin for details. Applications are due April 23, 2014. 

Achieving Bright Futures Preventive Services Coding Guidelines
The American Academy of Pediatrics released new resources which provide guidance to insurers, regulators, lawmakers, and other pediatric health care stakeholders regarding the new Affordable Care Act Pediatric Preventive Services Provision.

Reducing Health Disparities through the Affordable Care Act
The Catalyst Center published two new fact sheets which explore how certain provisions of the Affordable Care Act may help to reduce health insurance disparities for low income and immigrant children with special health care needs. Additionally, the Catalyst Center offers a large number of resources in Spanish for parents and family members.

Standards for Systems of Care for Children and Youth with Special Health Care Needs
The Association of Maternal and Child Health Programs released this groundbreaking set of standards and companion background white paper designed to help communities, states, and the nation build and improve systems of care for children and youth with special health care needs.

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National Center for Medical Home Implementation YouTube Channel
Visit the National Center for Medical Home Implementation YouTube channel for a wealth of visual tools and resources to help with medical home implementation! Included are archived webinars from the 2014 series, educational “How-To” videos, and interviews with experts.

Program Sustainability Resources
Hosted by the Healthy Tomorrows Partnership for Children Program, this four-part archived webinar series focuses on fundamental principles and practices to promote program sustainability. These principles apply broadly to community organizations and programs and are referred to as the 3 R's -- Results, Resources and Relationships.

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