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May 2015

Family Engagement in the Medical Home: Videos
View the National Center for Medical Home Implementation YouTube channel for a collection of expert interviews—including family advocates—discussing family engagement in the medical home and benefits experienced by families from receiving care within a medical home. These videos can be utilized to enhance leadership buy-in to support family engagement, and to increase family understanding of the medical home model.

Building Your Medical Home: Implementing Family-Centered Care
Created by the National Center for Medical Home Implementation, this online resource guide includes tools and resources to assist pediatric practices and clinicians to engage families as equal partners on health care teams through the use of pre-visit contact forms and questionnaires, focus groups, and post-visit surveys.

Fostering Partnership and Teamwork in the Pediatric Medical Home: Insights from Family Advocates
The National Center for Medical Home Implementation hosted a webinar series highlighting strategies to implement team huddles, care partnership support, and family advisory groups. The webinar series also featured parent partners discussing the impact of these strategies on the care their children received. Accompanying “How-To” videos provide further instructions on how to implement these family-centered care strategies within a pediatric practice.

Positioning the Family and Patient at the Center: A Guide to Family and Patient Partnership in the Medical Home
Created by the National Center for Medical Home Implementation, this monograph showcases 17 best practices in patient- and family- centered care among pediatric clinicians and practices. The monograph includes a collection of strategies and tools utilized by each practices to implement patient- and family-centered care.

A Guide for Parent and Practice Partners: Working to Build Medical Homes for CYSHCN
Created by the Center for Medical Home Improvement, this guide provides strategies and tools for pediatric practices focused on identifying and recruiting parent partners, educating parent partners about the pediatric medical home, and engaging parent partners as members of the medical home improvement team.

Patient and Family Engagement in Quality Improvement Initiatives
The National Institute for Children’s Health Quality provides a collection of videos and stories told from the parent and family perspective on why and how families can be engaged in quality improvement initiatives. Pediatric practices transforming into medical homes can utilize these resources to assist with family engagement and implementation of pediatric medical home in their practice.

Family-Centered Care Assessment Tool for Families
Created by the National Center for Family Professional Partnerships, this 24-question survey allows families to assess the family-centeredness of their child’s health care clinician. An accompanying User’s Guide provides instructions for the use of this tool to support improvements within a pediatric practice. This tool is also available in Spanish.

Medical Home Family Index
Pediatric practices interested in engaging families as members of health care teams, as well as improving the quality of care provided in their practice, can do so through measurement of current care delivery. The Medical Home Family Index is a survey that pediatric practices and organizations can utilize to gain insights from families on the care the practice/office provides.

Promising Practices in Pediatric Medical Home Family Engagement: The Hali Project
Funded in part by the federal Maternal and Child Health Bureau, this innovative project trains parents to serve as peer navigators and partners within pediatric practices to assist with care coordination. Visit the Hali Project Web site and view the recent National Center for Medical Home Implementation webinar recording, “Beyond Practice: Fostering Diverse Partnerships for Successful Care Coordination” to learn more about this project.

Promising Practices in Pediatric Medical Home Family Engagement: Statewide Parent Advocacy Network
Funded by the federal Maternal and Child Health Bureau, the New Jersey Statewide Parent Advocacy Network (NJ SPAN) trained parent partners to work in Federally Qualified Health Centers to ensure high quality, culturally competent, coordinated care for immigrant families. Access more information, training tools and other resources for parent partners related to this initiative on the NJ SPAN Web site in English and Spanish.

For a more detailed information on Implementation Resources, click here.

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May 2015

An Exploration of the AHRQ PCMH Resource Center
May 21, 2015, 1 – 2 pm Eastern
Hosted by the Patient-Centered Primary Care Collaborative, this webinar will feature a Janice Genevro, PhD, a health scientist at the Agency for Healthcare Research and Quality (AHRQ), exploring the resources available through ARHQ Patient-Centered Medical Home Resource Center to support the delivery of health care within the medical home model.
Additional Information about “An Exploration of the AHRQ PCMH Resource Center”

Beyond Implementation: Capturing the Value of Care Coordination
May 28, 2015, 11 am – Noon Central
The National Center for Medical Home Implementation is hosting the third and final webinar of a FREE three-part series focusing on implementation and evaluation of pediatric care coordination. This webinar will describe the value of measuring and evaluating care coordination activities within the context of improved patient experience, improved health of populations, and decreased cost of health care. Faculty will share information about tools and strategies to facilitate the measurement of pediatric care coordination activities and provide examples of how practices are utilizing care coordination performance metrics and methodologies to capture value for patients and families.
 Additional Information about "Beyond Implementation: Capturing the Value of Care Coordination."
 Space is Limited: Register Today

June 2015

Imagine the Future of Pediatrics: Creating the Patient-Centered Medical Home from Inception to Implementation
June 11-12, 2015, La Vista, Nebraska
This inaugural conference will feature nationally renowned faculty discussing strategies, tools, and resources for the implementation and sustainability of pediatric medical homes. Session topics will include medical home best practices, financing patient-centered medical homes improvement efforts, team-based care, and integration of behavioral health within the medical home.
Additional Information about “Imagine the Future of Pediatrics” Conference

For a more detailed listing of upcoming conferences, webcasts, and other educational offerings, click here.

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Family-to-Family Health Information Centers
Family-to-Family Health Information Centers (F2F HICs) are non-profit, family staffed organizations that assist families of children and youth with special health care needs and the professionals who serve them. Pediatric clinicians, family advocates, and practice administration can connect with their F2F HIC to increase the coordination of care and support provided to families. Multiple F2F HICs are involved in medical home implementation projects and supports throughout their states. Examples include the following:

  • Rhode Island Parent Information Network, Rhode Island’s F2F HIC, has collaborated with the Rhode Island Chapter of the American Academy of Pediatrics, among other stakeholders, to implement the Patient-Centered Medical Home Kids initiative.
  • Idaho Parents Unlimited and Utah Family Voices have collaborated on the Children’s Health Improvement Collaborative (CHIC) Idaho Utah Medical Home Demonstration Project. Idaho Parents Unlimited and Utah Family Voices educated clinicians and other stakeholders on family-centered care, family/professional partnership, and family engagement as part of this collaborative.

Additional information about F2F HIC involvement in medical home initiatives can be found in the 2014 Annual Report of Activities and Accomplishments of Family-to-Family Health information Centers.

Caregiver Peer Support Programs in State Pediatric Quality Demonstration Projects
This evaluation brief from the national Children’s Health Insurance Program Reauthorization Act quality demonstration projects describes how four states are implementing peer support programs. Strategies for implementation include partnership with state Family-to-Family Health Information Centers.

Parent to Parent USA
Parent to Parent USA is a grassroots organization that offers guidance and support to families of children and youth with special health care needs through a peer support model. Pediatric practices and others can connect families with support services through Parent to Parent USA.

Institute for Patient- and Family- Centered Care
This national organization provides resources, tools, and literature for patient and family leaders, clinicians, and organizations interested in enhancing the provision of family-centered care. The organization’s Web site also features a collection of “Profiles of Change” of hospitals and health care systems who have made a commitment to family-centered care for children and their families.

Partnering with Patients, Families, and Communities: An Urgent Imperative for Health Care
This report summarizes recommendations from a national conference which brought together patient and family advocates and health care leaders to formulate strategies to assist with implementation of patient- and family-centered care.

Parent Advisory Groups in Pediatric Practices; Parents’ and Professionals’ Perceptions
Published in JAMA, this article describes the benefits perceived by parents and professionals from their participation in parent advisory groups through the results of a retrospective telephone survey. Results show that all professionals and most parents were interested in continuing participation on a parent advisory group.

For a more detailed information on National Pediatric Medical Home Initiatives, click here.

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National Center for Family Professional Partnerships
A cooperative agreement with the Maternal and Child Health Bureau of the Health Resources and Services Administration, the National Center for Family Professional Partnerships provides tools, resources, and training opportunities to pediatric clinicians and family advocates to foster effective national partnerships in pediatric health care.

Psychometric Evaluation of a Consumer-Developed Family-Centered Care Assessment Tool
Published in the Maternal and Child Health Journal, this article provides an overview of the importance of family-centered care and describes the process for development of the Family-Centered Care Assessment Tool for Families, an assessment developed by Family Voices that allows patients and families to assess the family-centeredness of their pediatric clinicians.

Measuring Impact of Patient- and Family- Centered Care
Created by the National Partnership for Women and Families, this fact sheet can be used by health care organizations to create a continuous process for measuring the impact of patient- and family- centered care on their organization and its beneficiaries.

Family Engagement in State Title V Programs
Prepared by the Association of Maternal and Child Health Programs, this issue brief describes how six state Title V agencies are working to engage families in the work of both Maternal and Child Health and Children and Youth with Special Health Care Needs programs. The brief provides strategies to involve and compensate families for their participation, as well as how to train families and promote leadership development for families within Title V programs.

Improving Access to Coverage for Children with Special Health Care Needs in the Face of Health Inequities: Strategies Reported by Family Leadership Organizations
Published by the Catalyst Center, this brief summarizes findings from interviews with family leadership organizations in five states. The interviews focused on identifying barriers that underserved communities and families face related to health insurance coverage. The brief also discusses strategies that family organizations use to address health insurance inequities among child and youth with special health care needs.

Keeping Families at the Center for the Medical Home
Written by family leaders in Utah and Minnesota, this article highlights the importance of family partners and the role they play within a pediatric medical home. Family leaders share lesson learned from their experiences in working with family partners in pediatric practices.

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Special Feature: An Interview with Healthy Tomorrows Partnership for Children Program Grantees
The Achievable Innovative Medical Home Initiative (AIM HI) is a Healthy Tomorrows Partnership for Children Program (HTPCP) that works to provide high quality primary care, within the medical home model, to children and youth with or at risk for developmental disabilities. Situated within a Federally Qualified Health Center (FQHC), AIM HI works to engage families at all levels of care and connect families to community-based services through comprehensive care coordination.

In a recent interview with the National Center for Medical Home Implementation (NCMHI), AIM HI Medical Director, Michelle Catanzarite, MD, and Project Director, Carmen Ibarra, explained that the project began with the assistance of an advisory committee comprised of community members and families of children with developmental disabilities. The committee assisted with the “planning, design, and layout” of the AIM HI project. Patient and family satisfaction surveys are utilized to conduct continuous quality improvement in the practice.

AIM HI is co-located with one of 21 regional centers across the state that contracts with the Department of Developmental Services to provide and coordinate services and supports for people with development disabilities; clinic staff partner with social services coordinators through an unofficial referral process in order to build trust among families and connect them with community resources. AIM HI staff are creating a formalized referral process between the clinic and social service organizations.

Since the start of this HTPCP project, the FQHC has seen a 36% increase in the number of pediatric patients seen at the FQHC, indicating high patient and family satisfaction. AIM HI project staff are working to increase preventive care visits among this pediatric population. For more information, visit the NCMHI California State Page and the HTPCP Web site. In addition, an accompanying informational video about AIM HI can be viewed here.


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