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MCHB Medical Home & Integrated Services Grant Initiatives - Current

State Implementation Grants for Integrated Community Systems of Services for CSHCN, FY 2005 - News Release

Duration of Program: Project period May 1, 2005- April 30, 2008.

Program Objective: Priority # 5: "The President's New Freedom Initiative: State Implementation Grants for Integrated Community Systems of Services for CSHCN". The purpose of this initiative is to support statewide implementation of the HRSA component of the President's New Freedom Initiative (NFI) to create inclusive Community-Based Systems of Services for Children with Special Health Care Needs. Under the NFI initiative, HRSA's Maternal and Child Health Bureau has the lead in developing and implementing a plan to achieve appropriate Community-Based Service Systems, as defined by the following components: 1) family/professional partnership; 2) comprehensive health care through a medical home; 3) access to adequate health insurance/financing; 4) early and continuous screening; 5) organization of community services for easy use by families; and 6) transition to adult health care, work, and independence. This program replaces previous initiatives which addressed each of these systems components separately. Applicants must: 1) be, or work closely with, the State Title V Program for Children with Special Health Care Needs; 2) have a complete statewide needs assessment that addresses the State's status in each of the 6 systems components; 3) implement a specific plan to achieve Community-Based Systems of Services incorporating each of these components, but may have a focus on two or more; 4) integrate the plan into the Title V Block Grant and other public/private programs serving CSHCN and their families, and 5) define a comprehensive evaluation plan using national, state, and community data.

Other Participating Organizations: Applicants must be, or work closely with, the State Title V Program for CSHCN, and describe experience in working across state and local level agencies, organizations and families on implementing the core components of a system of care.

Resources: (Type/Amount/Project Period): 12-15 Grants. Approximately $300,000 per year for 3 years subject to availability of funds. Successful projects are expected to demonstrate existing state and local commitment to this initiative, have established partnerships, and leverage other sources of support which will maximize resources and initiate a sustainability plan, post grant funding. Applicants for Priority #5 are encouraged to have approximately 25% of their grant award as direct or in-kind contributions from state and local agencies and organizations and/or foundations, and to indicate these as line items in the budget.

Guidance for Integrated Services for Children with Special Health Care Needs (CSHCN) funding opportunities through HRSA-05-014.

Catalog of Federal Domestic Assistance (CFDA) No. 93.110
Fiscal Year 2005

Grants were awarded to:

  1. Arizona Department of Health Service - Abstract
    Contact Person:
    Joan Agostinelli, Acting Office Chief, 602-542-2584
    Goals and Objectives:
    A major goal is the creation a statewide forum where stakeholders from governmental and state agencies, as well as local, and community level providers, children and youth with special health care needs (c/yshcn), and their families can review activities of the various agencies and communities, plan needs assessments, and study alternative funding for services for c/yshcn within the state of Arizona. Several task-specific subcommittees will conduct needs assessments, develop educational materials, and provide input and evaluation of quality improvement activities. Each committee will involve yshcn and their families. Three groups will consist primarily of youth and families who will be charged with integrating the family perspective into every agency and community service organization. The second major goal of this proposal is to study the impact of providing screening and care coordination to different clinical settings, including school-based clinics with the intent of evaluating the cost-effectiveness of this service in reducing redundancy, enhancing access, and ensuring higher quality of care outcomes. The impact of insurance coverage will be evaluated in each of the clinical settings. The culmination of all of the activities will result in a white paper that will be sent to the governor.

  2. Children’s Hospital Los Angeles - Los Angeles, California
    Goals and Objectives:
    1) family/professional partnership at all levels of decision making; 2) access to comprehensive health and related services through medical homes; 3) adequate public and/or private financing of needed services; 4) early and continuous screening and evaluation and diagnosis; 5) organization of community services so that families can use them easily; and 6) successful transition to all aspects of adult health care, work and independence.

    These components will be achieved by convening a statewide, diverse group of key stakeholders to serve as a planning and oversight body; identifying service delivery strengths, gaps and barriers; and identifying and developing a statewide strategic plan to improve the system of care for CSHCN and their families, and to address performance shortfalls. Given the size, budgetary challenges and population of California, this project will be implemented incrementally, in three phases.
    Phase 1: establish a presence through the development of the Key Stakeholder Group, finalizing the statewide plan for C/YSHCN, establishing a family advisory board to our State Title V program, and creating a Youth Advisory Committee; Phase 2: implement systems integration in two large, diverse regions of the state, including identifying planning/service regions; identifying existing regional or local coalitions that focus on service systems for C/YSHCN that address specific core components; and, mobilizing existing regional coalitions to work together to achieve the six core components;
    Phase 3: develop implementation capacity in additional regions in the state, including establishing and mentoring new coalitions in areas currently without active local or regional coalitions; assisting in the development of local plans in these areas to achieve core outcomes; and facilitating information and resource sharing to assure uniform progress throughout the participating regions.

  3. State of Florida - Abstract

  4. State of Hawaii Department of Health - Abstract
    Contact Person:
    Patricia Heu, MD, MPH.
    Phone: (808)733-9058 | E-mail: pat.heu@fhsd.health.state.hi.us

    Goal 1:
    Establish, document and implement family-centered best practices, protocols, and standards to coordinate care between programs and agencies that serve CYSHCN within the State through the One Stop/Transition Certification Program.
    Goal 2: Provide families with training opportunities specifically providing practical insight and approaches on “Navigating the System”
    Goal 3: Provide families with access to information and the opportunities for training regarding resources for family support and leadership development, by bringing together and augmenting community resources based upon identified family needs, and compiling the information into a centralized directory.
    Goal 4: Increase the level of participation of families of CYSHCN in program and policy activities.
    Goal 5: Implement a Residency Curriculum which extends teaching the knowledge, skills, and attributes of the Medical Home to include the role of the Medical Home in an integrated service system for Community Pediatric and Family Physician Residents.
    Goal 6: Implement the best practices, protocols and standards developed by the project into targeted application of transitioning youth within the Medicaid Developmental Disabilities/Mental Retardation Waiver from pediatric to adult health care.
    Goal 7: Implement and evaluate a statewide integrated developmental screening and referral process for children served in community pediatric, family physician, and community health center sites.


  5. University of Iowa - Abstract
    Contact Person: Brenda Moore. brenda-moore@uiowa.edu
    Goals and Objectives:
    Goal 1: Community-based services will be organized so that families can use them easily. Obj 1.1: Iowa’s primary care providers (pediatrics and family practice) will assess their CYSHCN for care coordination and case management (cc/cm) needs. Obj 1.2: Iowa’s primary care providers (pcp’s) will be linked to a designated “external” care coordination resource. Obj 1.3: Iowa’s pcp’s will have a structure and procedures for providing “internal” cc/cm services. Obj 1.4: Title V CYSHCN Program care coordinators will be competent in cc/cm knowledge and skills. Obj 1.5: Children (0-21) with severe behavioral disorders will be served in their communities using innovative cc/cm methods. Obj 1.6: CYSHCN will have access to Title V care coordinators to help transition to a life of self-determination.
    Goal 2: All CYSHCN will have access to comprehensive health and related services through a medical home. Obj 2.1: Thirty pcp’s per year will participate in a learning collaborative dedicated to quality improvement in the medical home model. Obj 2.2: Sustainability of medical homes will be assured through relationships with organizations dedicated to performance improvement. Obj 2.3: Formal recognition will be applied to pcp’s that achieve progress toward building a medical home.
    Goal 3: All children will receive early and continuous screening for special health care needs. Obj 3.1: Standardized early childhood developmental screening procedures will be available in all pcp’s. Obj 3.2: Children, 0-3, identified as at-risk through screening will be tracked by a database in a statewide public agency

  6. Commonwealth of Massachusetts - Abstract
    Contact Person: Nicole Roos, MBA. nicole.roos@state.ma.us
    Goals and Objectives:
    Goal 1: Build system capacity for family-professional partnerships statewide
    Goal 2: Enhance medical provider capacity for providing medical homes for CYSHCN
    Goal 3: Assure children receive early and continuous screening and referral to appropriate services
    Goal 4: Build system capacity for ensuring YSHCN receive services necessary to make successful transitions to adult life
    Goal 5: Strengthen collaboration of youth, families, providers, and state agencies in enhancing systems of care for CYSHCN
    Goals 6: Enhance advocacy skills of youth and families

  7. Minnesota Department of Health - Abstract
    Contact Person: Ann Ricketts, MS, MPH. ann.ricketts@health.state.mn.us
    Objectives:
    Objective 1: The development and mobilization of policy and practice partners among physicians, state level government program leaders, youth and families of CYSHCN who will all effectively promote changes and advance adoption of best practices in systems for care of CYSHCN.
    Objective 2: Expansion of Medical Home in Minnesota both in breadth and depth, including adoption of transition best practices.
    Objective 3: The assurance that medical care practices providing coordinated, comprehensive, family centered care to CYSHCN are reimbursed appropriately for care coordination, care plans, preventive services and coordination with community services.
    Objective 4: The elimination of disparities in access and outcomes between CYSHCN and their same age peers without health care needs and elimination of disparities among CYSHCN because of linguistic, cultural or financial barriers.

  8. Board of Regents, University of Oklahoma - Abstract
    Contact Person: Louis Worley louis-worley@ouhsc.edu
    Goals and Objectives:
    The project will build community-based infrastructure with regional and state level supports that coordinates the efforts of the health, mental health, social and education systems in a rural and metropolitan region.  Similar rural and metropolitan regions where the model is not implemented will be compared to document the results of the intervention for CSHCN.  These activities will establish a foundation for a sustainable statewide spread strategy of an integrated community-based system of services.
    Objective 1: Strengthen and integrate Oklahoma’s Champions for Progress Incentive Award: Family Partnership in Decision-Making outcomes into all other performance outcomes, the Title V CSHCN program and other public/private services.
    Objective 2:
    Provide ongoing coordination of existing initiatives working on improvement of access and availability of screening, evaluation and referral mechanisms for CSHCN.
    Objective 3:
    Strengthen and spread, statewide, current Oklahoma Medical Home Initiative for CYSHCN
    Objective 4:
    Identify gaps in public/private funding for needed services,
    Objective 5:
    Establish a mechanism for statewide replication of the Sooner SUCCESS integrated services model. 
    Objective 6: Identify gaps in transition services and develop a strategic plan for filling those gaps.

  9. Oregon Health & Sciences University - Abstract
    Contact Person: Robert E. Nickel, M.D. nickelr@ohsu.edu
    Goals and Objectives: This project will address all 6 Title V Block Grant performance measures, will focus on “adequate public and/or private financing of needed services,” “early and continuous screening, evaluation and diagnosis,” and “family-professional partnerships,” and will build on current Title V activities. The project’s objectives for these 3 measures are:
    Objective 1: Families and youth are informed consumers of health care
    Objective 2: Communities plan to assure adequate financing of health services for CYSHN
    Objective 3: Children are screened early and continuously for developmental/ behavioral differences
    Objective 4: Family/professional partnerships are developed in health care practices and communities
    Objective 5: Providers design services to meet the needs of culturally diverse groups

  10. South Carolina. Dept. of Health and Environmental Control - Abstract
    Contact Person: Sarah Cooper coopers@dhec.sc.gov
    Goals and Objectives: The project's overarching goal
    is the creation of an inclusive, community-based systems of care for CYSHCN. Six goals address the six core outcomes for CYSHN. Comprehensive grant objectives support the integration of state and community based systems of services through the careful collection and analysis of primary and secondary data designed to support policy development, the creation of innovative partnerships across agencies and disciplines to implement needed organizational change, and comprehensive training strategies that include participant input designed to support and guide policy analysis and change.

  11. Utah Department of Health - Abstract
    Contact Person: Barbara Ward, RN bward@utah.gov
    Goals and Objectives:
    The Project’s overall goal is the systematic integration of community-based services for CYSHCN and their families throughout Utah. Component Goals include:1) Design and implement the leadership and infrastructure to accomplish and sustain this integration; 2) Using the Learning Collaborative model, integrate the six core components into Utah community systems; 3) Provide and continually enhance statewide resources and information to support the integration of the 6 Core Components into communities.

  12. Wisconsin Department of Health - Abstract
    Contact Person: Sharon Fleischfresser, MD fleissa@dhfs.state.wi.us
    Goals:
    Goal 1: Enhance participation in and decision-making capability of parents of children and youth with special needs (CYSHCN) in their child's own health care
    Goal 2:Improve health care service delivery for CYSHCN by increasing health care access and implementing the medical home concept in primary care practices across the state i collaboration with tertiary care centers.
    Goal 3: Develop a collaborative and supportive network for health providers, community partners, parents and youth with special health care needs regarding transitioning to adult services

Current MCHB Medical Home Grants
For primary care practices and communities

Project Period: 4 Years From: July 1, 2004 to June 30, 2008

Definitions & Explanations of Grant Terms: www.hrsa.gov/grants/preview/definitions.htm

Medical Home Implementation through Community-Based, Primary Care Practices. Grants to primary care practices/networks to improve the ability of community primary care practices to become medical homes and to promote and support community inclusion for children and youth with special health care needs by better linking medical homes with early intervention, child care, Head Start, schools, and other community programs. Eligible applicants are: (a) networks of medical home providers including but not limited to State primary care professional organizations and other existing networks of primary care practices: and (b) individual primary care practices.
Funds available: $800,000 for grants up to $50,000 for individual practices, or up to $250,000 for Network applications supporting at least five pediatric primary care practices.
Grants are for four years.

Awarded Grants:

  1. Illinois: Illinois Medical Home Project Abstract
    Purpose: The IMHP supports development of community-based medical homes for CYSHCN by informing primary care providers about the medical home model; providing access to quality improvement (QI) processes involving partnerships with parents, linkages to community resources, and reimbursement; facilitating QI Teams at practices; and sponsoring Leadership Forums to develop statewide action plans.
  2. New Hampshire: Beyond the Medical Home: Cultivating Communities of Support for Children with Special Health Care Needs Abstract
    Purpose: Beyond the Medical Home (BMH) extends previous CMHI efforts beyond the boundaries of childhood and the walls of the Medical Home by improving transitions to adult services and by establishing effective methods of communication and coordination among families, community-based organizations and the Medical Home.
  3. New York: Suffolk Medical Home Network Abstract
    Purpose:
    The purpose of this project is to combine resources of several agencies that specialize in caring for CSHCN to develop a care coordination model, and to provide medical home training for pediatric residents; to create effective linkages to educational and social services; to increase the access of Suffolk County families to medical homes; and to provide services for families such as parent training, support groups and advocacy coaching for parents.
  4. Ohio: Medical Home Implementation - PrimeCare Pediatrics Abstract
    Purpose:
    The purpose of this project is to further implement the concept of the medical home into this primary care practice. The goals of this project are to: continue to identify CSHCN in the practice; continue education efforts regarding community resources, disease processes, and practice guidelines; provide care coordination through the use of care plans; establish a timeline and resources for transitioning for CSHCN; and investigate proper coding for services for CSHCN an lobby for more appropriate reimbursement.
  5. Massachusetts: Stringing the Pearls: Families and Providers as Partners Abstract
    Purpose: The purpose of the project is to demonstrate how existing medical home (MH) practices can enhance the care delivered to children and youth with special health care needs (CYSHCN). By integrating families as formal quality improvement (QI) advisors, and including community-based organizations (CBO’s) in the process of QI, enhancement and spread of MH will occur. The most recent National Survey of CSHCN revealed that 52% of CYSHCN have medical homes. In MA, 48% of parents of CSHCN report receiving effective care coordination (CC).
  6. Pennsylvania: Educating Practices in Community Integrated Care Abstract
    Purpose:
    The purpose of EPIC IC is to improve the quality of life for children with special health care needs (CSHCN) and their families by continuing to build sustainable MH teams in primary care practices and health care systems throughout Pennsylvania. EPIC IC will focus on providing MH and care coordination (CC) services for families in underserved communities, increasing the integration of family advisors into the practice team, and assuring the availability of care coordination for children and families, especially youth in transition.

Subspecialty Capacity-Building. Grants to develop strategies for partnership between State Title V agencies, subspecialty networks, and the medical home to improve access and availability of health/medical services to support children and youth in their community. Funds will support: (a) comprehensive Statewide, contiguous State, or national needs assessments of workforce capacity for specialists and sub- specialists serving CSHCN; (b) development and implementation of a plan to improve workforce capacity; and (c) strengthen subspecialty relationships with the medical home. The plan must define and articulate the role of subspecialty networks, the medical home, and Title V in improving access to and availability of appropriate health and related services to support inclusion of children and youth in their community.
Funds available: $400,000 for 2 grants up to $200,000.
Grants are for four years.

Awarded Grant:

  1. MCHB Medical Home Grant: Medical Home in the Safety Net: Building Infrastructure for CSHCN in Community Health Centers Abstract
    Purpose: To link two cornerstones of Florida’s health-care system – Florida’s Title V program (Children’s Medical Services; CMS) and local community health centers (CHC) – to implement a model of the medical home in the “safety net” that capitalizes on community-based care, and enhances access to specialty care through telemedicine. The project specifically addresses the MCHB priority of subspecialty capacity building and improving service delivery to children from communities with limited access to comprehensive care. Our goal is to ensure that each CSHCN served by community health centers has a medical home that is accessible, family-centered, continuous, comprehensive, coordinated, compassionate, and delivered in culturally competent environment.

Early Identification and Intervention for Children with Autism. A cooperative agreement to improve the capacity of the medical home and the early intervention community to identify, appropriately serve, and integrate children with autism into their communities. The cooperative agreement will: (a) work with MCHB, family leaders, and pediatric primary care providers to improve medical home capacity for early identification of young children with autism; (b) support the work of HRSA on the Interagency Autism Coordinating Council; (c) collaborate with CDC’s national awareness campaign to ensure that medical homes are well-prepared to support identified children; and (d) implement community-based strategies to link the medical home with early intervention programs for children identified as having autism.
Funds available:
$300,000 for one cooperative agreement. The scope of Federal involvement with respect to all cooperative agreements is included in the Application Kit. The cooperative agreement is for four years.

Awarded Grant:

  1. Wisconsin: National Medical Home Autism Initiative Abstract
    Purpose:To develop a National Medical Home Initiative on Autism in collaboration with the federal Maternal and Child Health Bureau and the National Center on Medical Home Initiatives within the American Academy of Pediatrics. The Initiative will serve as a model that demonstrates and promotes how the principles of the medical home can be applied to achieve early identification and intervention for children with ASD, with an additional benefit to show how the approach can assist in the developmental surveillance of all children, and thereby increasing the identification of children with other developmental delays.

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Last Updated July 6, 2007

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