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Fetal Alcohol Syndrome
(FAS)
The National Center
on Birth Defects and Developmental Disabilities (NCBDDD),
a unit of the Centers for Disease Control and Prevention,
takes a leadership role in developing and implementing FAS-related
prevention, intervention and education programs, surveillance
studies and research. In addition to administering the congressionally
mandated National Task Force on Fetal Alcohol Syndrome and
Fetal Alcohol Effect, the NCBDDD's FAS Prevention Team's ongoing
activities include:
- Project CHOICES
- Fetal Alcohol Syndrome Prevention and Awareness Project
- Epidemiological and Intervention Studies
- Public Awareness Media Campaigns
- The Fetal Alcohol Syndrome Surveillance Network (FASSNet)
- Monitoring Alcohol Use in Childbearing-Aged Women
- Early Identification of Alcohol-Exposed Pregnancies
- Scientific Working Group on Diagnostic Guidelines
- Education and Training of Medical and Allied Health
Students and Professionals
The AAP is currently collaborating with the CDC on developing,
conducting, and analyzing a population-based survey of medical
and allied health students and practitioners to assess their
knowledge, attitudes, and beliefs about diagnosis, treatment,
and prevention of FAS; perceived barriers to diagnosis,
treatment, and prevention; current practices; and resources
needed to improve current practice behaviors. Click
here for more information about FAS and related activities.
Release
of New FAS Guidelines for Referral and Diagnosis.
Click
here to view or download the Guidelines. 
The Fetal Alcohol Syndrome Prevention Team at CDC's National
Center on Birth Defects and Developmental Disabilities awarded
funds to four medical school partners (Meharry and Morehouse
Medical Colleges, St. Louis University, the University of
Medicine and Dentistry of New Jersey, and the University
of California at Los Angeles) to develop FAS regional training
centers (RTCs).
The RTCs are developing, implementing, evaluating, and disseminating
educational curricula for medical and allied health students
and practitioners that incorporate evidence-based diagnostic
guidelines for FAS and other prenatal alcohol-related disorders.
For more information, contact the Centers for Disease Control
and Prevention, National Center on Birth Defects and Developmental
Disabilities, Fetal Alcohol Syndrome Prevention Team, Regional
Training Centers, Atlanta, Georgia at: tqs3@cdc.gov
NOFAS
NOFAS is a 501 (c)(3) nonprofit organization dedicated to
eliminating birth defects caused by alcohol consumption
during pregnancy and improving the quality of life for those
individuals and families affected by Fetal Alcohol Syndrome
(FAS) and other alcohol-related birth defects. NOFAS was
founded in 1990 and takes a multicultural approach to prevention
and healing.
NOFAS is committed to raising public awareness of FAS and
to developing and implementing innovative ideas in prevention,
intervention, education and advocacy in communities throughout
the nation. NOFAS is currently collaborating with the CDC
on projects to develop, implement and disseminate FAS curricula
and to develop and evaluate interventions for children with
FAS/ARND to maximize developmental potential and reduce
the risk of secondary disabilities. Click
here for more information about NOFAS.
NOFAS also provides a National
and State Resource Directory of organizations that work
on FAS-related issues.
At an historic summit hosted by the National Organization
on Fetal Alcohol Syndrome (NOFAS), national experts –
including for the first time representatives from the Centers
for Disease Control, National Institutes of Health, Substance
Abuse and Mental Health Services Administration, and Health
Canada – came together to produce and sign onto a
unanimous agreement on terminology for Fetal Alcohol Spectrum
Disorders (FASD).
Power Point presentations
Report
on FAS Curriculum 
Videos
- Worth
The Trip: Raising Children with Fetal Alcohol Syndrome
(1 tape, 49 minutes, $150)
A path breaking video guide for parents of children with
Fetal Alcohol Syndrome.
Worth the Trip is the first comprehensive video resource
about the health,
development and learning styles of children affected by
fetal alcohol. The film
presents strategies for meeting the developmental and
behavioral challenges faced
by children with FAS and the parents and professionals
who care for them. Worth the Trip was funded with a Small
Business Innovative Research Award from the National Institutes
of Health (NIH).
- Students
Like Me: Teaching Children with Fetal Alcohol Syndrome
(1 tape, 39 minutes, $195)
This video is part of Vida's new FAS Multimedia Library.
Students Like Me was created to help elementary
and special educators understand what Fetal Alcohol Syndrome
is and provide teaching methods to help children affected
by fetal alcohol reach their full potential.
Includes:
* How to recognize a child with FAS in the classroom
* How to modify the class environment and adjust teaching
methods
* How to communicate clearly and plan transitions and
unstructured time
CD-ROM
- Fetal
Alcohol Syndrome: Prevention, Diagnosis, Treatment
A Clinical Guide for Obstetric and Pediatric Providers.
(1 CD-ROM, $195)
This CD ROM provides a comprehensive overview for physicians,
nurses and other health caregivers working with families
across the perinatal/pediatric continuum. This clinical
guide includes a thorough national and state FAS resource
guide as well as the following NIAAA Publications: Identification
of At-Risk Drinking and Intervention with Women of Childbearing
Age, Identification and Care of Fetal Alcohol Exposed
Children, and Personal Steps to a Healthy Choice: A Woman's
Guide.
Featuring a cross-collaborative approach, this interactive
CD ROM:
- Provides an overview of FAS including historical perspectives
and diagnostic signs
- Details the prevalence and etiology of FAS and other
disorders attributable to prenatal alcohol exposure
- Demonstrates methods for identifying women and children
at risk prenatally through adolescence
- Offers criteria to use in making a diagnosis of FAS
- Suggests strategies for making treatment plans and referrals
for mothers and children affected by fetal alcohol
- Presents the most current and complete list of FAS resources
available to clinicians and parents.
Last Updated
August 13, 2008
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