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Newborn Screening Task Force Report
Supplement to Pediatrics: Serving the Family From Birth to the Medical Home: A Report From the Newborn Screening Task Force.

US Newborn Screening System Guidelines II: Follow-up of Children, Diagnosis, Management, and Evaluation, Statement of the Council of Regional Networks for Genetic Services (CORN). Journal of Pediatrics October 2000, part 2 • Volume 137 • Number 4 • pS1-S46. (Free to current Journal of Pediatrics subscribers)

Sickle Cell Disease: Specific Information

American Academy of Pediatrics Policy Statement
" Health Supervision for Children with Sickle Cell Disease
"
National Heart Lung, and Blood Institute
" The Management of Sickle Cell Disease" July 2002

Sickle Cell Disease in Children and Adolescents:
Diagnosis, Guidelines for Comprehensive Care, and Care Paths and Protocols for Management of Acute and Chronic Complications. Developed by the Sickle Cell Disease Care Consortium.
Sickle Cell Disease Fact Sheet

Tools and Resources

AAP Emergency Information
Form
Template Notification Letters - Trait - SCD
Sickle Cell Disease Power Point Presentations

Click here to download the presentation (5mb)

The Child with Sickle Cell Disease: A Teaching Manual

Written and Developed by Debra A. Vedro, MSN, RN, CPNP
and Rebecca A. Morrison, MSN, RN CPNP

Illustrated by Mary Ann Zaplac, MA

In Coordination with the Texas Department of Health
Supported in part by project #MCJ-481005 from the Womens and Childrens Program (Tile V, Social Security Act), Health Resources and Services Administration, US Department of Health and Human Services

Reprinted with Permission from the Texas Department of Health 6/26/03

Statements and opinions expressed in this Web site are those of the authors and not necessarily those of the American Academy of Pediatrics.

Last Updated March 8, 2007  

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