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Newborn Screening Task Force Report
Supplement to Pediatrics: Serving the Family From Birth to the Medical Home: A Report From the Newborn Screening Task Force Claude Earl Fox, Michele A. Lloyd-Puryear, and Marie Mann

US Newborn Screening System Guidelines II: Follow-up of Children, Diagnosis, Management, and Evaluation, Statement of the Council of Regional Networks for Genetic Services (CORN) www3.us.elsevierhealth.com/jpeds - Available to view for $30.00

Sickle Cell Disease: Specific Information

National Heart Lung, and Blood Institute
" The Management of Sickle Cell Disease" July 2002
Sickle Cell Disease Fact Sheet

Tools and Resources

AAP Emergency Information Form

Template Notification Letters - Trait - SCD
Sickle Cell Disease Power Point Presentations

Click here to download the presentation (5mb)

The Child with Sickle Cell Disease: A Teaching Manual

Written and Developed by Debra A. Vedro, MSN, RN, CPNP
and Rebecca A. Morrison, MSN, RN CPNP

Illustrated by Mary Ann Zaplac, MA

In Coordination with the Texas Department of Health
Supported in part by project #MCJ-481005 from the Womens and Childrens Program (Tile V, Social Security Act), Health Resources and Services Administration, US Department of Health and Human Services

Reprinted with Permission from the Texas Department of Health 6/26/03

Statements and opinions expressed in this Web site are those of the authors and not necessarily those of the American Academy of Pediatrics.

Last Updated March 8, 2007  

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