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Autism Spectrum Disorders
 Two New Autism Clinical Reports from the American Academy of Pediatrics
AUTISM: Caring for Children with Autism Spectrum Disorders: A Resource Toolkit for Clinicians
With approximately 1 in 150 children being diagnosed with an autism spectrum disorder (ASD), virtually every pediatric office needs to be prepared for the unique challenges these conditions pose. Now, the AAP has developed a multifaceted clinical resource to assist in the recognition, evaluation, and ongoing management of ASDs throughout your patient's life span. This all-new toolkit brings together a wealth of ready-to-use, practice-focused resources - all on a single economically priced CD-ROM.
General
Resources and Information
Autism
Speaks: 100 Day Kit
http://www.autismspeaks.org/community/family_services/100_day_kit.php
The Autism Speaks 100 Day is created specifically for newly diagnosed families,
to make the best possible use of the 100 days following the diagnosis of autism.
The kit contains information and advice collected from trusted and respected
experts on autism as well as from parents of children with autism. There is a
week by week plan for the next 100 days, as well organizational suggestions and
forms that parents/caregivers can use to help with the paperwork and phone calls,
as they begin to find services for their child.
ASD Video Glossary
http://www.autismspeaks.org/video/glossary.php?
The ASD Video Glossary, an innovative web-based tool designed to help parents and professionals learn more about the early red flags and diagnostic features of autism spectrum disorders, contains over a hundred video clips and is available free of charge.
Autism Information Center at NCBDDD
www.cdc.gov/ncbddd/dd/ddautism.htm
NCBDDD provides information about autism, CDC activities, other federal activities such as projects at the National Institutes of Health and other federal agencies, state activities, resources and information for kids.
Learn The Signs.
Act
Early.
Early Identification of Children
with Autism or other Developmental Disorders Awareness Campaign
The Centers for Disease Control and Prevention (CDC), in
partnership with the many organizations, including the American
Academy of Pediatrics, has launched an awareness campaign
to educate parents about childhood development, including
early warning signs of autism and other developmental disorders.
The earlier a child with a developmental delay receives
appropriate assessment and intervention, the better the
developmental outcome can be.
To help prepare the health care community for the anticipated
increase in questions and requests for information from
parents, CDC has developed a Provider Resource Kit.
This kit contains materials designed to help health care
professionals communicate with parents about childhood development,
what parents should be concerned about, and the warning
signs of autism and other delays.
Please visit the campaign Web site at www.cdc.gov/actearly to view the campaign resources designed for health care
professionals – you can download them from the Web
site or order materials to be mailed to your office at no
charge to you.
Autism Society of America
www.autism-society.org
Autism Society of America (ASA) is a leading voice and resource of the entire autism community in education, advocacy, services, research and support. The ASA is committed to meaningful participation and self-determination in all aspects of life for individuals on the autism spectrum and their families. ASA accomplishes its ongoing mission through close collaboration with a network of chapters, members and supporters.
Autism Speaks
www.autismspeaks.org
Autism Speaks is dedicated to funding global biomedical research into the causes, prevention, treatments, and cure for autism; to raising public awareness about autism and its effects on individuals, families, and society; and to bringing hope to all who deal with the hardships of this disorder. Autism Speaks is committed to raising the funds necessary to support these goals.
MCH Library Knowledge Path: Autism Spectrum Disorders
www.mchlibrary.info/KnowledgePaths/kp_autism.html.
The knowledge path is intended for use by health professionals,
educators, researchers, policymakers, and families. A selection of current, high-quality resources about autism
spectrum disorders (ASD) identification and intervention.
The knowledge path, produced by the MCH Library, includes
information on (and links to) Web sites, electronic and
print publications, and databases containing resources about
biomedical research into the causes of ASD; resources that
address the communication, education, and vocational challenges
associated with ASD; and resources about ASD's impact on
family life. Separate sections identify resources about
ASD and environmental health research as well as those that
address concerns about vaccines.
Public Service Announcements (PSAs)
In addition, this past April for Autism Awareness Month, Autism Speaks, in partnership with the Academy and others, is releasing a series of PSAs about autism, including information about how common autism is as well as the importance of early detection. These ads bring an increased focus on autism and may increase the number of parents asking questions about child development. You can view the TV and Radio PSAs below:
Information
for Families
AAP Patient Education
On the Spectrum: Children and Autism Video (CD Format)
This 24-minute educational video available on DVD format will enable pediatric practitioners, clinicians, and early childhood educators to recognize the early warning signs of autism spectrum disorders in early childhood and to understand the impact of early and appropriate intervention. The video outlines the diagnostic criteria for autism spectrum disorders, provides guidelines for conducting a developmental screening, and describes how to relay developmental concerns to parents.
Published by First Signs.
Understanding
Autism Spectrum Disorders (ASD)
This 44 page booklet, written for parents, provides
critical information about autism spectrum disorders and
answers all the most common questions asked by parents
about ASD. ASD has lifelong conditions and this booklet
will help identify symptoms so that an intervention program
can be started as soon as possible.
"
Is Your One-Year Old Communicating with You?"
This brochure helps encourage parents to share any concerns
they have about their baby's language development as early
as possible. Provides early language and social milestones
that parents can watch for in their one-year-old child.
Healing Thresholds
www.HealingThresholds.com is a new Web site targeted at parents. It includes fully referenced fact sheets on common autism therapies and lay summaries of the latest research on autism therapies. www.HealingThresholds.com is evidence-based and designed to help parents rapidly and efficiently design an optimal therapeutic program for their child.
Interactive Autism Network
IAN, the Interactive Autism Network, was established in January 2006 at Kennedy Krieger Institute and is funded by a grant from Autism Speaks. IAN’s goal is to facilitate research that will lead to advancements in the prevention, treatment, and cure of autism spectrum disorders. To accomplish this goal, they created the IAN Community and IAN Research.
IAN Community
The IAN Community is an online environment designed to act as an inviting library and meeting place where everyone concerned with autism spectrum disorders can learn more about autism research. Everyone can participate and benefit from the IAN Community.
IAN Research
IAN Research is scientific study where parents of children with an autism spectrum disorder and qualified researchers throughout the United States work together to understand autism spectrum disorders.
Autism Spectrum Disorders from A to Z, 2004
www.asdAtoZ.com
Although the diagnosis of autism is on the rise, only 1
of 2 Hispanic children with an Autism Spectrum Disorder is
being identified and served in the education system. One
of the biggest obstacles for families has been the lack of
information in Spanish. Fortunately, Los Trastornos del
Espectro de Autismo de la A a la Z is now available.
This award-winning book is the most comprehensive resource
about ASD available in Spanish, helping readers identify
and understand autism, and cope with a diagnosis. From infancy
to adulthood, the book provides essential information, including
how to get educational services and family supports. Other
subjects include selecting goals, and explaining autism to
the person affected and to others. Autismo A-Z is
an indispensable resource for families, schools, service
agencies, advocacy organizations, support groups and libraries.
With over 500 pages of useful information, Autismo A-Z is
a great value. Los Trastornos del Espectro de Autismo de la
A a la Z
http://www.asdatoz.com
A pesar del hecho que la incidencia de autismo
ha subido hasta afectar a 1 de cada 166 niños, solo
se identifican a uno de cada dos niños hispanos
que de verás tienen autismo o una condición
semejante. Hasta ahora, un obstáculo ha sido la
falta de información suficiente en español.
Afortunadamente, Los Trastornos del Espectro de Autismo
de la A a la Z esta disponible ahora. El mejor libro
tan extenso y detallado sobre autismo en español
ayuda a los lectores a identificar, comprender y enfrentarse
con autismo y discapacidades semejantes. Desde la infancia
a la vejez, provee información esencial de cómo
obtener servicios educacionales y terapéuticos para
ayudar a la persona afectada y a la familia. Otros temas
incluyen cómo identificar las necesidades de la
persona, cómo escoger metas, y cómo explicar
el autismo a la persona que lo tiene y a otros. Autismo
A-Z es un recurso indispensable para familias, escuelas,
agencias de servicios sociales, y para organizaciones
de abogacía y apoyo. Con más de 500 páginas Autismo
A-Z es útil y económico.
Information
for Professionals
Center for Medicare and Medicaid Services (CMS)- Releases Promising Practices Reports for Persons with Autism Spectrum Disorders By CMHS Consumer Affairs E-News August 14, 2007 Vol. 07-125.
The Centers for Medicare and Medicaid Services (CMS) is announced the availability of three new promising practices reports that focus on Services for Individuals with Autism Spectrum Disorders (ASDs). Since 1999, CMS has developed an on-line repository of more than 75 Promising Practices in Home and Community-Based Services (HCBS) to highlight State efforts to enable persons of any age who have a disability or long-term illness to live in the most integrated community setting appropriate to their individual support requirements and preferences, exercise meaningful choices, and obtain quality services. The promising practices web site is: http://www.cms.hhs.gov/promisingpractices/
The on-line Promising Practices Reports disseminate timely information on program and policy innovation. The new reports on ASDS are:
California - Single Process for Diagnosis and Service Delivery
Connecticut- Pilot Program for Young Adults with Autism Spectrum Disorders
Delaware - Supported Employment for Adults with Autism Spectrum Disorders
Autism
A.L.A.R.M. - Helping Primary
Care Physicians Diagnose Autism Early By Chris
P. Johnson, M.D., M.Ed., FAAP. AAP News. February 2004. Full
Text
Autism A.L.A.R.M.
The following guidelines adapted from key
policy statements of the AAP and American Academy of Neurology,
were developed in order to establish standard practices
among physicians, to simplify the screening process, and
to ensure that all children receive routine and appropriate
screenings and timely interventions. These recommended guidelines
are critical for ensuring that children stay on a healthy
developmental path. Fact
sheet
National Medical Home Autism Initiative: www.waisman.wisc.edu/nmhai/index.html
The National Medical Home Autism Initiative, founded as a cooperative agreement by the federal Maternal Child Health Bureau, is a national technical assistance, resource and advocacy project designed to promote methods that will improve the capacity of the medical home and early intervention community to identify, appropriately serve and integrate children with autism into their communities.
First Signs - The mission of First
Signs is to promote the early identification of, and intervention
for, autism and other developmental disorders.
Screening Guidelines
www.firstsigns.org/screening/guidelines.htm
Information on Developmental Screening
www.firstsigns.org/screening/dev.htm
Information on Autism Screening
www.firstsigns.org/screening/asd.htm
Information on Audiological Screening
www.firstsigns.org/screening/audio.htm
To order educational materials, such as the "First
Signs Screening Kit, which provides quick,
accurate, and affordable developmental and autism screening
tools, A 24-minute award-winning educational
video,
" On the Spectrum: Children and Autism;
the wall
chart Key Milestones for Social,
Emotional, and Communication Development and First
Signs Parent Brochures, click on each link
or go to: www.firstsigns.org/products_svcs/index.htm
Video Clip of "On the Spectrum:
Children and Autism" attached below.
First
Signs VIDEO
Autism Spectrum Disorders: Communication and Language
- Presentation
Amy M. Wetherby
Dept. of Communication Disorders
Florida State University
Presented at the AAP National Conference and Exhibition,
October 2003
AAP Council on Children with
Disabilities Reports
Idenfication and Evaluation of Children with Autism Spectrum Disorders (Clinical Report)
Management of Children with Autism Spectrum Disorders (Clinical Report)
Auditory
Integration Training and Facilitated Communication for
Autism
Published: PEDIATRICS, August 1998, Reaffirmed May 2002
Author: Committee on Children with Disabilities
Endorsed Practice Parameter:
Screening
and Diagnosis of Autism
Published: NEUROLOGY, August 2000
Author: Quality Standards Subcommittee of the American
Academy of Neurology and the Child Neurology Society
In January 2005, the Government Accountability
Office (GAO) published Special Education: Children with
Autism. The publication answers four questions submitted
by Congress about special education for children with autism.
Learn about their findings and recommendations - and how
you can get a free copy of this free publication - in GAO
Publishes Special Education: Children with Autism.
A detailed booklet that describes symptoms,
causes, and treatments, with information on getting help
and coping.
This brochure was written by Margaret Strock, Office of
Communications, NIMH. Scientific information and review
were provided by NIMH staff members Stephen Foote, MD; Ann
Wagner, PhD; Audrey Thurm, PhD; Benjamin Vitiello, MD; Douglas
Meinecke, PhD; and Judith Cooper, PhD, National Institute
on Deafness and Other Communication Disorders. Editorial
assistance was provided by Ruth Dubois and Antoinette Cooper.
All material in this brochure is in the public domain and
may be reproduced or copied without permission from the
Institute. Citation of the National Institute of Mental
Health as the source is appreciated.
To order a printed copy, call 1-866-615-NIMH (6464) toll-free.
For additional information, please visit the
NIMH Web site
Vaccines and Autism Information
The AAP Childhood Immunization Support Program Web site includes a section on Vaccine Safety. Visit the Web site for information about vaccines and autism.
http://www.cispimmunize.org/fam/safety_parent.html
The Medical Home and Early Intervention Programs Brochure
1) To educate pediatric clinicians about early intervention programs funded under Part C of IDEA;
2) To educate early intervention programs about the role of the medical home in providing comprehensive, coordinated, collaborative care in concert with the family and other medical and non-medical service providers;
3) To provide strategies for effective collaboration and communication between the pediatric clinician and early intervention programs in the provision of quality, comprehensive care.
Last Updated
August 15, 2007
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