Creating a Comprehensive Early Childhood
Comprehensive System of Care
The Goal
Reduce gaps and improve coordination of early childhood
services.
The Challenge
Deficiencies in our current delivery systems are preventing
many young children from attaining optimal health and development1
The Strategy
Design the system for the most medically complex
and for the highest users of the services and systems, and
you will meet the needs of all.
The Program - The State Maternal and
Child Health Early Childhood Comprehensive Systems (ECCS)
Initiative
Purpose of ECCS: To Support State Maternal
and Child Health Agencies and their partner organizations
in collaborative efforts to strengthen the State’s
early childhood system of services for young children and
their families.
Ultimate Goal: The implementation of a
comprehensive early childhood system that promotes the health
and well-being of young children, enabling them to enter
school ready and able to learn.
Each grantee must address five core service components
that can each make specific contributions to healthy development
and school readiness:
- Access to medical homes for all children
- Access to medical homes providing comprehensive physical
and child development services for all children including
children with special health care needs. Access to medical
homes providing assessment, intervention, and referral
of children with developmental, behavioral, or psycho-social
problems.
- In this sub-criterion, reviewers looked at
the following:
Do the applicant’s SECCS planning activities or
plan integrate the development of access to and insurance
support for medical homes providing comprehensive physical
and child development services for all children, including
children with special health care needs? Do the planning
activities or the plan include assessment, intervention,
and referral of children with developmental, behavioral,
and psycho-social problems? Do the planning activities
or the plan address the HCCA objective of access to
medical homes and health insurance for children in child
care settings?
- Mental health and social-emotional development
- Availability of services to address the needs of children
at-risk for the development of mental health problems.
Service delivery pathways to facilitate entrance of at-risk
children into appropriate child development and mental
health delivery systems.
- Early care and education services -
Early care and education services from birth through five
years of age that support children's early learning, health,
and development of social competence.
- Parent education - Services that provide
support to parents in their role as prime educators of
their children.
- Family support services - Services
that address the stressors impairing the ability of families
to nurture and support the healthy development of their
children
The Data:
Health Status
- Most young children in the United States (85%) are reported
to be in excellent or very good health, while about three
percent have a disability.
- While relatively few children have an identified disability,
nearly half of parents of young children have at least
one concern about their child’s physical or behavioral
development.
- More than 50 percent of developmental problems are
not identified until school entry.
- About 37 percent of white children have one or more
risk factors compared to 66 percent of African-American
and 72 percent of Hispanic children. 1
Access to Health Care
- Most young children (89%) have private or public insurance,
and many uninsured children are actually eligible for
a public program but have not been enrolled.
- Hispanic children are twice as likely as other children
to be uninsured.
- About 32 percent of Hispanic children go to community
health centers or public clinics for care, compared with
about 12 percent of non-Hispanic white children.
- Mothers with uninsured children, as well as mothers
with less than a high school education, are more than
three times as likely as other mothers to have no prenatal
care in the first trimester of pregnancy. 1
Medical Home and Health Care Quality
- Nearly all young children have a usual source of well-child
care. However, fewer than one half of children four to
35 months of age (46%) see a particular person for well-child
care.
- Parents of uninsured children are less likely to receive
counseling about parenting issues that influence the child’s
health and development
- Fewer than half of parents ever recall their child’s
development being assessed by the health care provider,
although professional guidelines call for assessments
at most visits.
- About 11 percent of children zero to five years old
with special health needs lack a personal physician. Almost
16 percent did not receive needed care within the past
year, and 21 percent report that the quality of coordination
between their child’s physician and other providers
is only fair or poor. 1
Help
with Your ECCS Plan
Partner Organizations and Resources Fact
Sheet 
Checklists for "Finishing Your Plan" and "Formatting
Your Plan 
Health Systems Research (HSR) developed two checklists for
"Finishing Your Plan" and "Formatting Your
Plan" workshops that were held at the recently completed
"Building Comprehensive Systems for Early Childhood"
meeting.
- "Finishing Your Plan" Checklist
A checklist to help you to develop an Action Plan to complete
the17 required components to your ECCS plan
- "Formatting Your Plan" Checklist
A checklist that can be used to make sure you have included
the 17 required elements in your plan
Building Comprehensive Systems for Early Childhood
Conference
Building Family Centered Medical Homes
Presentation

Hilton Washington DC/Silver Spring
September 19, 2005
Speakers:
Paula Duncan, MD, Laura Aird, MS, Lauri Levin, MSW
Session Overview:
Defining Medical Home
Integrating medical home into SECCS
Education of child health professionals
Measurement based office system change
Improved links to community systems
Improved access to medical home
Linking to early care and education
Linking to state medical home initiatives
View additional presentations and materials from
the conference at: www.hsrnet.net/eccs/materials.htm
Brief Explores EPSDT’s Role in Early
Childhood Comprehensive Systems
Maximizing the Use of EPSDT to Improve the Health and Development
of Young Children reviews research about Medicaid; the Early
and Periodic Screening, Diagnosis, and Treatment (EPSDT)
program; and young children and the role of EPSDT in Early
Childhood Comprehensive Systems (ECCS).
The brief, published by the National Center for Children
in Poverty, examines the role of EPSDT in financing early
childhood services such as newborn screening, early intervention,
home visiting, and early childhood mental health treatment
and how ECCS leaders across the country are working to ensure
access to health care and a medical home for all young children.
State EPSDT performance rates and interagency collaborative
efforts to improve EPSDT performance in the context of ECCS
are discussed. Tips for states and federal guidance for
the EPSDT child health benefit under Medicaid are also presented.
The brief is intended for use by ECCS leaders and partner
stakeholders in improving the health outcomes of young children
from families with low incomes. The brief is available at
http://nccp.org/media/tst06b.pdf.
Publications
Building State Early Childhood Comprehensive Systems: Publications
from the National Center for Infant and Early Childhood
Health Policy at UCLA
Web sites/Organizations
American Academy of Pediatrics Child Health Topics:
www.aap.org/topics.html
Browse through health topics such as: Behavioral
and Mental Health, Community Health, Diseases and Conditions,
Family Health, Healthy Development, Navigating the Health
Care System, Populations with Unique Health Care Needs.
Direct link to Early Childhood information from the AAP:
www.aap.org/healthtopics/stages.cfm#early
American Association for Home-Based Early Interventionists
(AAHBEI): www.coe.usu.edu/skihi/AAHBEI.html
The American Association for Home-Based Early Interventionists
serves parents and those working in the field of early home
intervention with infants, toddlers, and preschoolers with
special needs. It is a group of families and professionals
working together to help the children they serve reach their
maximum potential.
The ABCD Reading Room: www.nashp.org
This Web site is designed to provide state policymakers
with easy access to research and resources related to early
childhood health and development. Topics include (1) relevant
findings from the science of early childhood development,
(2) preventive health care guidelines and new directions,
(3) promoting young children's mental health, (4) measurement
and quality improvement in early childhood services, (5)
comprehensive and systematic approaches to early childhood
services, and (6) early childhood services costs and financing
strategies.
Circle of Inclusion: circleofinclusion.org/index.html
The Circle of Inclusion Web Site is for early childhood
service providers and families of young children. This web
site offers demonstrations of and information about the
effective practices of inclusive educational programs for
children from birth through age eight.
Division for Early Childhood:
www.dec-sped.org/
This nonprofit organization advocates for individuals who
work with or on behalf of children with special needs, birth
through age eight, and their families. It was founded in
1973 and is dedicated to promoting policies and practices
that support families and enhance the optimal development
of children. Children with special needs include those who
have disabilities, developmental delays, are gifted/talented,
and are at risk of future developmental problems.
AAP Health and Child Care Partnership program (formerly
known as Healthy Child Care America): healthychildcare.org
HCCA seeks to ensure that all children experience quality
child care within a nurturing environment and have a medical
home. Its principles are based on the fact that families,
child care providers, and health professionals in partnership
can promote the healthy development of young children in
child care settings and increase access to preventive health
services and safe physical environments
The Individuals with Disabilities Education Act:
www.nectas.unc.edu/idea/idea.asp
Part C of IDEA, the Program for Infants and Toddlers
with Disabilities is a federal grant program that assists
states in operating a comprehensive statewide program of
early intervention services for infants and toddlers with
disabilities, ages birth through age 2 years, and their
families. In order for a state to participate in the program
it must assure that early intervention will be available
to every eligible child and its family.
Love And Learning: Birth To Three Reading and Language
Development Resources for CSHCN. Also applicable for older
non-verbal children)
www.loveandlearning.com/index.shtml
Also available are letters from parents who have
used these materials over the last 15 years and copies of
articles about other projects including the latest article
published by the European Down Syndrome Association.
This link is for accessing the published articles concerning
the Reading Program Geared to Children with Special Needs.
www.loveandlearning.com/articles.shtml
National Association for the Education of Young Children:
www.naeyc.org/
The National Association for the Education of Young Children
(NAEYC) is the nation's largest and most influential organization
of early childhood educators and others dedicated to improving
the quality of programs for children from birth through
third grade.
The National Center for Children in Poverty (NCCP):
www.nccp.org/
NCCP was just awarded a prestigious five-year cooperative
agreement from the National Bureau of Maternal and Child
Health to create Project THRIVE: Linking Policies for Child
Health, Early Care and Learning, and Family Support.
Collaborating with state and other leaders in the field,
THRIVE will increase awareness and provide policy analysis
that helps states strengthen and expand early childhood
systems to ensure that young children and their families
have access to high-quality health care, developmental services,
and parenting supports.
National Center for Early Development and Learning:
www.fpg.unc.edu/~ncedl/
A national early childhood research project supported by
the US Dept. of Education's Office of Educational Research
and Improvement. NCEDL focuses on enhancing the cognitive,
social, & emotional development of children from birth
through age eight.
National Child Care Information Center: nccic.org/
The National Child Care Information Center (NCCIC), a service
of the Child Care Bureau, is a national clearinghouse and
technical assistance center that links parents, providers,
policy-makers, researchers, and the public to early care
and education information.
National Early Childhood Technical Assistance Center
(NECTAC): www.nectac.org
This program provided responsive technical assistance (TA)
to the programs supported under the Individuals with Disabilities
Education Act (IDEA) for infants and toddlers with disabilities
(Part H of IDEA) and for preschoolers with disabilities
(Section 619-Part B of IDEA) in all states and participating
jurisdictions, and to projects funded by OSEP under the
Early Education Program for Children with Disabilities (EEPCD).
National Head Start Association: www.nhsa.org/
NHSA is the only nonprofit organization that specifically
represents Head Start's millions of impoverished children
and families before Congress and offers training and support
to Head Start staff.
NICHCY: National Dissemination Center
for Children with Disabilities www.nichcy.org/
Compiles disability-related resources in each state, and
is a source of information on:
- disabilities in infants, toddlers, children, and youth,
- IDEA, which is the law authorizing special education,
- No Child Left Behind (as it relates to children with
disabilities), and
- research-based information on effective educational
practices.
Pathways Awareness Foundation:www.pathwaysawareness.org/
A national non-profit organization dedicated to raising
awareness about the benefit of early detection and early
therapy for children with physical movement differences.
The web site, designed for both parents and professionals,
contains valuable information about children’s physical
development including a growth and development chart where
you can track a child’s physical, play and speech
milestones from 3 to 15 months.
WINGSPAN Strengthening Children's Skills for Life
http://www.wingspanworks.com/
Wingspan offers training programs and engaging
curricula for classrooms and parent groups that capture
March 16, 2007y
tested and backed by extensive research, Wingspan's curricula
and training programs help teachers and parents develop
young children's social skills, problem-solving abilities,
self-control, and independence.
ZERO TO THREE: National Center for Infants, Toddlers
and Families: www.zerotothree.org
This organization's mission is to help children best navigate
their first three years of life in order to develop a solid
intellectual, emotional and social foundation. The site
has separate sections for parents and professionals.
1. Halfon, N, Uyeda, K, Inkelas, M, Rice,
T. Building
Bridges: A Comprehensive System for Healthy Development
and School Readiness. UCLA Center for Healthier Children,
Families and Communities. 2004.
Last Updated
March 8, 2007
|