Neuromuscular Disorders

Web sites/ Organizations
The Christopher Reeve Paralysis Foundation: www.paralysis.org/
The Christopher Reeve Paralysis Foundation (CRPF) encourages and supports research to develop effective treatments and a cure for paralysis caused by spinal cord injury and other central nervous system disorders. The Foundation evaluates and selects these research programs using councils of internationally renowned neuroscientists and clinicians. The Foundation also allocates a portion of its resources to grants that improve the quality of life for people with disabilities.

The Muscular Dystrophy Association: www.mdausa.org/
The Muscular Dystrophy Association is a voluntary health agency -- a dedicated partnership between scientists and concerned citizens aimed at conquering neuromuscular diseases that affect more than a million Americans.

Spina Bifida Association of America: www.sbaa.org/
The Mission of the Spina Bifida Association of America is to promote the prevention of spina bifida and to enhance the lives of all affected. SBAA provides services such as: Toll Free 800 Information and Referral Service, Bi-monthly Newsletter, Insights, Legislative Updates, Publications, Professional Advisory Council, Conferences and Educational Symposiums, Scholarship Fund, Public Awareness Campaigns, Real Stories, Individual and Systems Advocacy and a Research Fund.

Last Updated August 18, 2008