This page provides information on past questions posted on the Medical Home LISTSERV. Responses are provided by physicians, allied health professionals and parents of children with special needs.

The inclusion of any resource or link in these pages does not imply endorsement. As information changes rapidly, please check with each sponsoring organization as to whether the information you are receiving on their web site is current. If you have information or resources to add to any of these requests, please e-mail us at medical home@aap.org.

Currently Seeking:

• Looking for - real-world examples for improving access to pediatric subspecialty care and for strengthening effective relationships between primary and specialty pediatric care providers and families. This information will be posted to the Innovation Exchange web pages on both the MCH Policy Center and AAP Medical Home Web sites. (Posted 5/24/06)

  To submit your innovation to the Federal Expert Work Group on Pediatric Subspecialty Capacity and others, please complete the information below and submit to slimb@mchpolicy.org.  You will receive a confirmation after your submission has been received and we will automatically add you to our mailing list.  All submissions will be reviewed by the Expert Work Group prior to posting the innovation on our web site.  

  Contact Name:
  Title:
  Organization/Affiliation:
  Phone:
  Email:
  Description of Approach (with attached forms, curriculum, etc.)

• Questionnaire on Transition to Adulthood for Youth with Special Health Care Needs:  Request to share information on your transition services, barriers to improving transition for youth with special needs and ways these barriers might be overcome. To access the questionnaire, click here.
  From: Kathy Blomquist, RN, PhD
  HRTW National Resource Center

  Dear Medical Homes:

  HRSA/MCHB’s Healthy & Ready to Work National Resource Center is tracking progress on MCHB National Performance Measure #6 – Transition to adulthood for youth with special health care needs. 

  As a Medical Home for children and youth with special health care needs, please participate in our HRTW survey to let the HRTW National Resource Center, MCHB and the American Academy of Pediatrics know about your transition services, barriers to improving transition for youth with special needs and ways these barriers might be overcome.  The questionnaire takes about 20 minutes to complete.  You can return the questionnaire by e-mail, fax or US mail – see information below. 

  Thank you for your help!  We anticipate results of the survey will be available in July and comparisons of surveys with Title V CSHCN agencies, Shriners Hospitals and oth

Responses posted:

• Looking for- Care Coordinator Curriculums/Training programs.
  This includes community case managers as well as office and community-based care coordinators. (New information added on 1/18/06)
  
  
• Looking for - Care coordination reimbursement strategies by states for office-based care coordination. (New information added on 9/16/05)
  
  
• Looking for - Community Theater Programs for Children with Disabilities (music, theater, dance, art, etc) for the upcoming annual meeting of the American Academy of Cerebral Palsy and Developmental Medicine. Also looking to develop a resource list of programs around the country to share at the presentation. (Posted 6/13/06)
  
  
• Looking for - How should/can special education departments share the IEP with the medical home. Specifically, forms, tools or suggestions used by schools to communicate the IEP services that the child has as part of their special education program. (New information added on 8/29/05)
  
  
• Looking for - Identification strategies for children and youth with special needs in a practice/clinic. This is for practices involved in a quality improvement process to increase their medical homeness for CSHCN. Also, includes how to flag/label the chart once you identified your group. (New information added on 8/29/05)
  
  
• Looking for - Medical Home measures/assessment tools that assess physicians and/or residents knowledge of Medical Home concepts, principles, and practices. (Posted on 6/20/03)
  
  
• Looking to - Set up a Parent Advisory Group. Especially interested in learning how other practices have done this: e.g. pay parents? incentives for parents to join? how meetings are run? lessons learned etc. (New information added on 11/18/05)
  
  
• Looking for - The presence and status of medically fragile or mental health early education and child care programs. Where are they? What age and conditions do they accept? What services do they provide..ie OT, PT, Speech, etc.? Are their costs covered by private insurers, state programs, etc.? Do they have funding from grants, community, State, or Federal programs? and Are they profitable?
  (New Information added on 6/7/06)

Network around the country through the Medical Home Listserv and learn about new resources and funding opportunities.

MEDICAL HOMES@WORK

An e-Newsletter that offers bi-weekly updates on medical home issues, resources, funding opportunities, transitions, news from the National Center of Birth Defects and Developmental Disabilities at the Centers for Disease Control and Prevention. To subscribe, send an e-mail to medical_home@aap.org.

 

Last Updated March 14, 2007