This page provides information on past questions posted on the Medical Home LISTSERV. Responses are provided by physicians, allied health professionals and parents of children with special needs.

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Posted August 22, 2003

Request: Looking for Care Coordinator Curriculums/Training programs. This includes community case managers as well as office and community-based care coordinators.

Responses:

General Publications on Care Coordination/Case Management:

• MCHB and JSI Release Review of Care Coordination Activities of DSCSHN State Implementation Grantees
  Several of the health insurance and financing implementation grantees funded by the Division of Services for Children with Special Healthcare Needs (DSCSHN) of the Maternal Child Health Bureau (MCHB), had expressed an interest in examining care coordination models. An initial recommendation to review care coordination activities among these grantees sparked an interest to expand this review to all state implementation grantees. While a previous study had focused on the role of Title V in care coordination, there had never been a review of the role of state implementation grantees in this critical aspect of developing a system of care for CYSHCN.

  As part of their current contract with DSCSHN, John Snow, Inc. (JSI) was asked to develop a survey to capture the range of activities among the state implementation grantees. This report addresses all 6 of the Healthy People 2010 outcomes, through a survey of all MCHB State Implementation grantees. The survey focused on the care coordination activities of the grantees, such as methods of care coordination program development and implementation, methods of financing, and effectiveness of care coordination. Click here for the full report.
  

• Practicing Comprehensive Care: A Physician's Operations Manual for Implementing a Medical Home for Children with Special Health Care Needs
  "This 45 page manual is written for physicians interested in enhancing the way they care for children with special health care needs in their local pediatric practices. The authors describe the medical home model, a promising approach to meeting the challenges of service delivery. Click here for more information.
  
  
• Core Curriculum for Case Management by Suzanne Powell and Donna Ignatavicius
  Copyright 2001 - Lippincott
  The Standards of Practice for Case Management by CMSA
  Both publications are sponsored by the Case Management Society of America (CMSA) and can be order from their web site. www.CMSA.org.
  
  Curriculum/ Training Information:
• The Division of Specialized Care for Children (DSCC), Illinois' Title V program, provides care coordination services to Illinois children who are eligible for the program. Their care coordinators consist of nurses, social workers, audiologists and speech-language pathologists. They have a training program for their new hires, but it is very specific to DSCC. However, there are some aspects that may be beneficial outside of their agency.
  
  The first 6 weeks of the care coordinator's employment an outline of specific information/training must be covered. The manager of the care coordinator is responsible for making sure all goals on the outline are complete. An important part of the 6 week training is the new care coordinator being paired with an experienced care coordinator/mentor. During the 4th week, the new care coordinator comes to their central office for a week of intensive training which includes detailed information on DSCC specific areas, but there is additional training which would be beneficial to any care coordinator. These subjects include family centered care, care coordination, roles of outside agencies, transition and medical home.
  
  They also have Job Aids, documents written to assist care coordinators in the field, which
  may be of some benefit. Specific Job Aids which may be of some interest are:
  1. Care Coordination 2. Family Centered Care 3. Communication with People with Disabilities 4. Educational/Development Services for Children with Special Health Care Needs 5. Guardianship 6. Home Visit Safety 7. Insurance Information 8. Supplemental Securing Income and 9. A Directory of State & National 800 Telephone Numbers.
  
  
• The Center for Excellence in Disabilities (CED) in West Virginia, TBI/SCI Programs have developed a training curriculum and resource coordination model for individuals with traumatic brain injury that can be expanded to serve others. The training curriculum includes a module on Person-Centered Planning which is the basis of the resource coordination model. For additional information on their model, please contact Lori Caterina Risk, TBI/SCI Program Manager by e-mail at lcaterina@hsc.wvu.edu or phone at (304) 293-4692.
  
  
• JFK Partners, developed a four-day statewide training program for service coordinators who serve families of infants and toddlers who are eligible for early intervention services under Part C of IDEA. The entire curriculum, including instructors guides, handouts, and audio-visual materials can be found at:www.cde.state.co.us/earlychildhoodconnections/scct.htm
  
  JKF Partners in the Department of Pediatrics at the University of Colorado Health Sciences Center collaborated with the Colorado Department of Education on developing the program.
  
  
• Educational School District 112 in Vancouver, WA provides Family Resource Coordinator training for the WA State Birth to Three program. For more information please visit their web site: www.esd112.wednet.edu/spec_st_svcs/index.html, The sidebar has a link for (FRC) "Family Resource Coordinator Training" with contact information included. Also, The Starting Line newsletter, at the same site, lists dates and locations of the training's.
  
  
• Parents Helping Parents has a three day training program called 'Building Care Teams for Children'. The program is to train parents to assist other parents in care coordination. It is available on CD and can be previewed on their web page www.php.com/dopage/symposium. Please contact Nancy Eddy at NancyE@php.com for additional information.
  
  
• Wise Guys is a curriculum that is written for groups with boys 10-17. Even though the curriculum was developed in 1990, it has been updated, is well written and their training is very good. Some care coordinators have adapted it to mixed gender groups. Information regarding this curriculum and their training can be accessed on their web site. /www.wiseguysnc.org/
  
  
• Southwest Institute and Phoenix Pediatrics www.phoenixpediatrics.com is currently working on a training video for Medical Home training and transition. One of the modules is on care coordination and includes many tools (documents in Word/ Excel format) already in place to assist, organize and standardize care coordination activities. It is not quite a "curriculum" yet. They are planning on submitting an RFP on this topic for a workshop at the July 04 National Catch/Medical Home meeting.
  
  
• Contemporary Forums www.cforums.com/ offer a wide variety of national healthcare conferences, self-study CD-ROMs, and programs at your facility for physicians, nurses, therapists, educators, pharmacists, psychologists and more, we are confident that you will find a subject of interest and enjoy your learning experience.
  
  
• The Learning Tree University has Case Management courses. Go to this web page and click on case management to get schedules and locations. www.ltuhealthcare.com/
  
  
• Cornell University has a training component that trains workers in family support principals. Our local expert on the program is Lora Gulley, the training and tech assistance coordinator, for the Family Support Council and is the lead staff with the Cornell training. Her email is lgulley@fscouncil.org or phone is 314-539-4047. I believe it would be applicable for care coordinators.
  
  Organizations/Resources:
• Organizations such as the Boston Pediatric Alliance for Coordinated Care PACC, and The Center for Medical Home Improvement offer some great resources for putting together a care coordination plan. The Pennsylvania Chapter AAP EPIC Integrated Care Medical Home--Program, is putting together a curriculum that is almost ready for Prime time. A copy can be obtained by contacting Jason Barrett at 610-520-9123.
  
  
• Partners in Chronic Care at the Hood Center for Children and Families
  Provides training for office based care coordination that involves conducting family meetings with the health team in the office and collaborating with the insurer case manager.
  
  This program is an MCHB financing grant (submitted as "Partners Enhancing Managed Care Expansion"). The purpose of the project is to apply a new structured primary care based model of Enhanced Care Coordination(ECC) as a case management insurance benefit for CSHCN. This model has been shown to work for health providers, insurers, and families and to reduce health costs. The ECC model is family centered, and is designed to provide comprehensive care coordination in the primary care setting where the insurer case manager collaborates closely with the practice & other community & specialty care players to meet the full range of needs of families with complex health conditions.
  
  The goal of this program is to develop statewide and community level supports and training and then disseminate this comprehensive care coordination approach through private and public insurers for CSHCN in pediatric practices in NH and then ME. Following evaluation of these expansion efforts, the partners will focus on revising and sustaining these services in pediatric practices. At the health plan level this project utilizes the information that results from this comprehensive partnership to assist the quality assurance units in both Anthem Blue Cross Blue Shield and Cigna in implementing ongoing quality assessment and quality improvement initiatives to improve the care given to all CSHCN.Grant Abstract
  
  For more information on this training, please contact program manager Beth Pearson at Elizabeth.Pearson@dartmouth.edu
  
  Partners in Health program at the Hood Center for Children and Families
  Provides training for care coordination. This is a state wide program of community level family support for families of children with chronic illnesses (Partners in Health). This involves assessing family needs and working with the family to meet their needs. Also, provides initial training and ongoing staff training, which involves primarily non medical trained staff. For additional information contact program coordinator, Lisa MacKenzie at Lisa.Mackenzie@dartmouth.edu
  
  
• The Oregon Medical Home Team has developed documents that might be helpful: 1. A manual for community care coordinators and 2. A checklist and materials for new coordinator orientation. Also, the team is in the process of writing self-directed learning modules for public health nurses; two are completed - Cerebral Palsy and Congenital Heart Disease. For more information click here.
  
  
• The Florida Department of Health, Children's Medical Services Care Coordination Guidelines
  (Title V agency for children and youth with special health care needs in Florida).
  
  
• Certification in Case Management www.ccmcertification.org/