Health Topics: Access   Access to Care Tools   CATCH Program

• Policy Statements
• Periodicals/Articles
• Reports/Documents

Strategy to Ensure All Children Have Access to Care Moves Forward
LETTER FROM THE PRESIDENT. AAP News Vol. 22 No. 3 March 2003, p. 104 © 2003 American Academy of Pediatrics

Policy Statements
American Academy of Pediatrics.The Role of the Pediatrician in Implementing the Americans With Disabilities Act: Subject Review. Pediatrics. 1996;98(1):146-148

American Academy of Pediatrics; Committee on Pediatric Emergency Medicine. The Role of the Pediatrician in Rural EMSC. Pediatrics. 1998;101(5):941-943

Safe Transportation of Premature and Low Birth Weight Infants. Pediatrics. Elk Grove Village, IL: American Academy of Pediatrics; 2001.

American Academy of Pediatrics; Committee on Injury and Poison Prevention. School Bus Transportation of Children with Special Needs. Pediatrics. 2001;108(2):516-518

American Academy of Pediatrics; Committee on Injury and Poison Prevention. Transporting Children With Special Health Care Needs . Pediatrics. 1999;104(4):988-992

Periodicals/Articles
Boushey H, Wright J. Improving Access to Health Insurance. Washington, DC: Center for Economic and Policy Research 2004

Callahan ST, Cooper WO. Uninsurance and Health Care Access Among Young Adults in the United States Pediatrics. 2005;116 88-95

Cunningham P, Hadley J. 2004. Expanding care vs. expanding coverage: How to improve access to care. Health Affairs. 2004;23(4):234-244

Hanson K. Neuman, T. and Voris M. Understanding The Health-Care Needs and Experiences of People with Disabilities - Findings from a 2003 Survey The Henry J. Kaiser Family Foundation, December 2003

Honberg L, McPherson M, Strickland B, et al. 2005. Assuring adequate health insurance: Results of the National Survey of Children with Special Health Care Needs. Pediatrics 115(5):1233-1239. Abstract available at: http://pediatrics.aappublications.org/cgi/content/abstract/115/5/1233

Huang ZJ, Kogan MD, Yu SM, et al. Delayed or forgone care among children with special health care needs. Ambulatory Pediatrics. 2005:5(1):60-67 Abstract available at: www.ambulatorypediatrics.org/article/PIIS1530156705600081/abstract

Kogan MD, Newacheck PW, Honberg L, et al. Association between underinsurance and access to care among children with special health care needs in the United States. Pediatrics. 2005;116(5):1162-1169 Abstract available at: http://pediatrics.aappublications.org/cgi/content/abstract/116/5/1162?etoc

Marcin JP, Ellis J, Mawis R, Nagrampa E, Nesbit TSt, and Dimand RJ. Using Telemedicine to Provide Pediatric Subspecialty Care to Children With Special Health Care Needs in an Underserved Rural Community. Pediatrics. Jan 2004;113:1-6

Mayer ML, Skinner AC, and Slifkin RT. Unmet Need for Routine and Specialty Care: Data From the National Survey of Children With Special Health Care Needs. Pediatrics. Feb 2004:113: e109-115.

Mitchell JB, Khatutsky G, and Swigonski N. Impact of the Oregon Health Plan on Children With Special Health Care Needs. Pediatrics. Apr 2001;107:736 - 743

Mouradian WE, Wehr E, and Crall JJ. Disparities in Children's Oral Health and Access to Dental Care JAMA. Nov 2000; 284(20):2625 - 2631

Newacheck PW, McManus M, Fox HB, Hung Y, and Halfon N. Access to Health Care for Children With Special Health Care Needs. Pediatrics. 2000;105:760 - 766

The Future of Pediatric Education II: Organizing Pediatric Education to Meet the Needs of Infants, Children, Adolescents, and Young Adults in the 21st Century. Pediatrics. 2000;105:163-212

Randolph GD, Murray M, Swanson JA, and Margolis PA. Behind Schedule: Improving Access to Care for Children One Practice at a Time. Pediatrics. 2004;113: e230-237

Rosenbach ML, Irvin C, and Coulam RF. Access for Low-income Children: Is Health Insurance Enough? Pediatrics. 1999;103:1167-1174

Seid M, Sobo EJ, Gelhard LR, et al. Parents’ reports of barriers to care for children with special health care needs: Development and validation of the Barriers to Care Questionnaire. Ambulatory Pediatrics. 2004;4(4):323-331

S. Todd Callahan, MD, MPH; William O. Cooper, MD, MPH Access to Health Care for Young Adults With Disabling Chronic Conditions Arch Pediatr Adolesc Med. 2006;160:178-182

Shone LP, Dick AW, Brach C, Kimminau KS, LaClair BJ, Shenkman E, Col JF, Schaffer VA, Mulvihill F, Szilagyi PG, Klein JD, VanLandeghem K, and Bronstein J. The Role of Race and Ethnicity in the State Children’s Health Insurance Program (SCHIP) in Four States: Are There Baseline Disparities, and What Do They Mean for SCHIP? Pediatrics. Dec 2003;112: e521 - 532

Szilagyi PG, Shenkman E, Brach C, LaClair BJ, Swigonski N, Dick A, Shone LP, Schaffer VA, Col JF, Eckert G, Klein JD, and Lewit EM. Children With Special Health Care Needs Enrolled in the State Children’s Health Insurance Program (SCHIP): Patient Characteristics and Health Care Needs. Pediatrics. Dec 2003; 112: e508 - 520

Taylor EF, Cunningham P, McKenzie K. Community approaches to providing care for the uninsured. Health Affairs Web Exclusive. 2006. 2006:25:w173-w182. Abstract available at
http://content.healthaffairs.org/cgi/content/abstract/hlthaff.25.w173

Van Dyck P, Kogan MD, McPherson MG, et al. Prevalence and characteristics of children with special health care needs. Archives of Pediatrics and Adolescent Medicine. 2004;158(9):884-890

Warfield ME, Gulley S. Unmet needs and problems accessing specialty medical and related services among children with special health care needs. Maternal and Child Health Journal 2006;10(2):201-216.  Abstract

Weller WE, Minkovitz CS, and Anderson GF. Utilization of Medical and Health-Related Services Among School-Age Children and Adolescents With Special Health Care Needs (1994 National Health Interview Survey on Disability [NHIS-D] Baseline Data). Pediatrics. Sept 2003;112(3):593 - 603

Wise PH, Wampler NS, Chavkin W, and Romero D. Chronic Illness Among Poor Children Enrolled in the Temporary Assistance for Needy Families Program. Am J Public Health. Sept 2002;92(9):1458 - 1461

Yu SM, Nyman RM, Kogan MD, et al. Parent's Language of Interview and Access to Care for Children with Special Health Care Needs. Ambulatory Pediatrics. 2004;4(2):181-187

Zhihuan J, Yu SM, Ledsky R. Health status and health service access and use among children in U.S. immigrant families. American Journal of Public Health. 2006;96(4):634-640. Abstract available at: www.ajph.org/cgi/content/abstract/96/4/634

Children with Special Health Care Needs: Minding the Gaps
This report from the National Health Policy Forum examines how children with special health care needs interact with the health care system and discusses weaknesses within health delivery and financing systems that may hinder access to care.

It Takes More than Ramps to Solve the Crisis of Healthcare for People with Disabilities
This report provides a comprehensive overview of access issues, highlighting their impact on patient safety and patient-centered care.It explores the extent to which people with disabilities experience problems and barriers receiving healthcare services and analyzes their root causes.The report makes extensive recommendations for key stakeholder groups in order to spark reforms in the current inadequate approach to healthcare delivery for people with disabilities.
Judy Panko Reis, MA, MS, Director, Women with Disabilities Center, Rehabilitation Institute of Chicago

Public Coverage Provides Vital Safety Net for Children with Special Health Care Needs describes select findings from the 2003 Community Tracking Study Household Survey, which includes data on a nationally representative sample of children ages 18 and younger. The issue brief, published by the Center for Studying Health Systems Change, presents an analysis of data collected for 7,327 children, of which 1,523 were identified as children with special health care needs. The brief provides data on insurance coverage for children with and without special health care needs as a whole and by income, access to care for children with and without special health care needs by insurance status, and access to care for children with and without medical bill problems. The brief concludes with a discussion of the policy implications of the study findings.

Rite of Passage? Why Young Adults Become Uninsured and How New Policies Can Help
According to Rite of Passage? Why Young Adults Become Uninsured and How New Policies Can Help, Americans between ages 19 and 29 represent the largest and fastest-growing segment of the population without health coverage. The consequences of being uninsured are serious: more than half (57%) of young adults in the study without coverage reported having gone without needed health care because of the cost.

Access to Insurance- From the Commonwealth Fund
States Are Stretching Health Care Dollars in Imaginative Ways
Stretching State Health Care Dollars During Difficult Economic Times: Overview
Sharon Silow-Carroll, M.B.A., M.S.W., and Tanya Alteras, M.P.P., October 2004

Consumer-Directed Health Plans: Will Patients Get the Care They Need?
Will Consumer-Directed Health Care Improve System Performance?
Karen Davis, Ph.D., August 2004

Transportation
Federal Transit Administration Information on Access for Persons With Disabilities
The goal of this program is to ensure that all Americans have access to transit to meet basic mobility needs. The passage of the Americans with Disabilities Act (ADA) in 1990 was recognized that persons with disabilities have the same rights as other citizens to access services and facilities that are available to the public. Congress also recognized that many practical problems had to be solved in reaching the goal of equal accessibility in transit.

 Last Updated March 23, 2007