Illinois Chapter of the American Academy of Pediatrics Receives Medical Home Grant
The Illinois Chapter of the American Academy of Pediatrics (ICAAP) has been awarded one of 12 new Integrated Community Systems for Children with Special Health Care Needs (CSHCN) grants. The grant runs September 1, 2011 through August 31, 2014 and is funded by the Department of Health and Human Services (DHHS), Health Resources and Services Administration (HRSA), Maternal and Child Health Bureau (MCHB) as an Innovative Model for Care.
Medical Home Chapter Champions Program on Asthma (MHCCPA)
Through the support of the Merck Childhood Asthma Network, Inc. (MCAN), the MHCCPA facilitates the dissemination of best practices and advocacy related to the implementation of the National Heart, Lung, and Blood Institute (NHLBI) asthma guidelines within the medical home framework. Program goals include identifying a champion at the AAP chapter and/or state level(s) to educate/mentor providers in their communities, in addition to increasing advocacy efforts, for implementation of the NHLBI guidelines within the context of a medical home. If you would like more information about the project, would like to be connected with your chapter/state's champion, or are interested in serving as a chapter champion if your chapter/state does not currently have one, contact Suzi Montasir, MPH, Program Manager at 847/434-4311 or fill out the Contact Us form.
Children's Health Insurance Program Reauthorization Act (CHIPRA) Grants—Cycle II
Illinois is one of 23 states that received CHIPRA Cycle II grants to for efforts to identify and enroll children eligible for Medicaid and CHIP. The grants will build upon the HHS Connecting Kids to Coverage Challenge to find and enroll children and support outreach strategies that have proven successful.
Children's Health Insurance Program Reauthorization Act (CHIPRA) Grants—Cycle I Illinois is a partner on one of 10 CHIPRA grants, representing single-state projects and multi-state collaborations, from HHS to improve health care quality and delivery systems for children enrolled in Medicaid and the Children's Health Insurance Program (CHIP). The money will help states implement and evaluate provider performance measures and utilize health information technologies such as pediatric electronic health records and other quality improvement initiatives.
LEND Programs Receive Funding to Improve the Health of Children with Special Health Care Needs The Health Resources and Services Administration (HRSA) has awarded $28.3 million to 43 Leadership Education in Neurodevelopmental and Other Related Disabilities (LEND) programs, including the program at the University of Illinois at Chicago, to help improve the health of infants, children, adolescents and young adults with neurodevelopmental and other related disabilities, including autism spectrum disorders. LEND programs prepare trainees from a wide variety of professional disciplines to assume leadership roles, ensure high levels of interdisciplinary clinical competence, and enhance the ability of clinicians to diagnose, treat, and manage complex disabilities in youth and adolescents.
HHS Awards Millions to Support Patient-Centered Medical Home Research
The Department of Health and Human Services (HHS) has announced more than $14.2 million to develop, implement, and test strategies to increase the adoption and dissemination of interventions based on patient-centered outcomes research among racial and ethnic minority populations. The National Institutes of Health (NIH), National Institute for Minority Health and Health Disparities (NIMHD) awarded grants to Centers of Excellence at universities and medical schools in Florida, Hawaii, Illinois, New Mexico, and New York, and the HHS Office of Minority Health awarded a contract to Westat, Inc. of Rockville, MD. The funds will be used to help ensure those Americans have the needed tools to make informed decisions about their health care options. The HHS press release states that those tools should fit individual patient needs and preferences with the long-term goal of improving health outcomes.
Graham Center Receives Grant to Study Illinois Medicaid Medical Home Projects The Commonwealth Fund has awarded the Robert Graham Center a grant of nearly $100,000 to study the impact of two separate but complementary Medicaid medical home projects in Illinois for the next 10 months. One of the projects, known as Illinois Health Connect (IHC) uses a patient-centered medical home model to deliver care to 1.8 million of the state's 26 million Medicaid recipients. The other program, called Your Healthcare Plus, provides care to 260,000 Medicaid medical home recipients with one or more chronic conditions.
State Implementation Grant (D70) for Improving Systems of Services for Children and Youth with Special Health Care Needs (CYSHCN)—Illinois Chapter of the American Academy of Pediatrics—Abstract Grant Period: June 1, 2009 - May 31, 2012 Address: 1400 W. Hubbard St., Chicago, IL 60622-8195 Program Director: Kathleen E Sanabria Phone: 312/733-1026 | E-mail: ksanabria@illinoisaap.net Purpose: To implement the President’s New Freedom Initiative (NFI) by improving access to a quality, comprehensive, coordinated community-based system of services for CYSHCN and their families that are family-centered and culturally competent. The initiative supports grants to assist State Title V Children with Special Health Care Needs (CSHCN) programs, family organizations, providers, and other partners to implement the six core outcomes of a system of services based on evidence based practices for CYSHCN. These six core outcomes are:
Families partner in decision making and are satisfied with the services they receive;
CYSHCN receive coordinated ongoing comprehensive care within a medical home;
Families of CYSHCN have adequate private and/or public insurance to pay for the services they need;
Children are screened early and continuously for special health care needs;
Community-based service systems are organized so families can use them easily; and
Youth with special health care needs receive the services necessary to make transitions to adult life, including adult health care, work, and independence.
The Assuring Better Child Health and Development (ABCD) Program
The ABCD Program is funded by the Commonwealth Fund, administered by National Academy for State Health Policy (NASHP), and designed to assist states in improving the delivery of early child development services for low-income children and their families by strengthening primary health care services and systems that support the healthy development of young children, ages 0-3. The program focuses particularly on preventive care of children whose health care is covered by state health care programs, especially Medicaid. Since 2000, the ABCD program has helped twenty-seven states create models of service delivery and financing through a laboratory for program development and innovation.
Health Resources and Services Administration (HRSA) in Your State HRSA in Your State offers overviews of HRSA programs and current information, such as the number and amount of grants awarded down to the County level. It also provides state-specific information about health centers, National Health Service Corps members and the communities they serve, and the number of participating providers through the 340B program.
Early Childhood Comprehensive Systems (ECCS) State Contacts The Maternal and Child Health Bureau (MCHB) launched the State Maternal and Child Health Early Childhood Comprehensive Systems (ECCS) Initiative to implement the MCHB Strategic Plan for Early Childhood Health. The purpose of ECCS is to support states and communities in their efforts to build and integrate early childhood service systems that address the critical components of access to comprehensive health services and medical homes; social-emotional development and mental health of young children; early care and education; parenting education, and family support. For additional information, you can look up your state's ECCS Grantee Contact or Grantee Web site.
AAP: Community Pediatrics Grant Database
The Community Pediatrics Grant Database archives previously funded Community Pediatrics grant projects, including those funded through the CATCH Program, the Healthy Tomorrows Partnership for Children Program, the Community Pediatrics Training Initiative and the Healthy People 2010 Chapter Grants. The database is searchable by seven major categories: target population, health topic, state/territory, project activity, AAP program, AAP district, and project year. Members of the AAP can obtain grantee contact information by searching through the Member Center. If you are not an AAP member, but have questions please contact docbi@aap.org.
Funding Opportunities
This page houses information on funding opportunities from the AAP and other organizations, as well as links to other key funding contacts and resources.
This section provides information on state organizations that play a role in implementing various aspects of medical home, and includes links to their Web sites and contact information.
American Academy of Pediatrics (AAP) Chapter—Illinois AAP chapters are organized groups of pediatrician members and other health care professionals working to achieve AAP goals in their communities. Please contact your local chapter for additional state resources.
ICAAP June 2010 Newsletter
ICAAP is pleased to announce publication of the 4th edition of its annual Medical Home Newsletter. This issue contains links to many state and national resources to help your practice implement the medical home model.
Illinois Medical Home News Feed
Keep up to date with what is going on in Illinois related to medical home through the Medical Home Web log. The Web log features a timely information on news, events, and resources related to medical home.
Building Community-Based Medical Homes for Children Program Learning Sessions
The Building Community-Based Medical Homes for Children (BCBMHC) program provides free medical home quality improvement (QI) facilitation support and resources to practices across the state. Participating practices work to provide high quality preventative care, acute care, and chronic condition management in a planned, coordinated, and family-centered manner. Available on this site are video presentations and documents made available to attendees of the learning session.
Primary Care Initiatives Help Save State Medicaid Program Millions
This article highlights how the Illinois state Medicaid program was able to save a total of $500 million in fiscal years 2008 and 2009 by incorporating concepts from two complementary programs that emphasize patient-centered primary care and chronic disease management.
Family Voices Chapter—Illinois Family Voices aims to achieve family-centered care for all children and youth with special health care needs and/or disabilities. Through a national network of chapters, they provide families with tools to advocate for improved public and private policies, and build partnerships among professionals and families.
Family-to-Family Health Information Centers (F2F HICs)
F2F HICs are non-profit organizations that help families of children and youth with special health care needs (CYSHCN) and the professionals who serve them. F2F HICs are typically staffed by parents of CYSHCN who understand the issues that families face, provide advice, offer resources, and tap into a network of other families and professionals for support and information.
Arc of Illinois F2FHIEC Address: 20901 South LaGrange Road #209 , Frankfort, IL 60423 Phone: 708/560-6703 | Fax: 815/464-5292 | Toll-Free: 866/931-1110 Primary Contact(s): Faye Manaster at familytofamily@thearcofil.org
Title V Maternal and Child Health (MCH) Director Title V Children with Special Health Care Needs (CSHCN) Director
Title V of the Social Security Act is the nation's oldest federal program to improve the health of all mothers, infants, children, adolescents, and CSHCN. Title V is administered by the Federal Maternal and Child Health Bureau (MCHB) as a block grant to states to support core public health functions, such as care coordination and rehabilitation services.
Early Hearing Detection & Intervention (EHDI) Contact(s) State EHDI programs promote universal newborn hearing screening, develop effective tracking and follow-up as a part of the public health system, promote appropriate and timely diagnosis of hearing loss, prompt enrollment in appropriate early intervention, ensure a medical home for all newborns, and strive to eliminate geographic and financial barriers to service access.
Newborn Screening and Genetics Collaborative – HRSA Region 4 Translating research into practical health care services and systems to improve the health and quality of life of individuals with heritable disorders through collaboration and partnership
Early Intervention/Part C Coordinators
The Program for Infants and Toddlers with Disabilities (Part C of IDEA) is a federal grant program that assists states in operating a comprehensive statewide program of early intervention services for infants and toddlers with disabilities, ages birth through age 2 years, and their families.
State Interagency Coordinating Council (ICC) Chairs
This program advises appropriate agencies on the unmet needs in early childhood special education and early intervention programs for children with disabilities, assists in the development and implementation of policies that constitute a statewide system, and assists all appropriate agencies in achieving full participation, coordination, and cooperation for implementation of statewide system.
Children's Health Insurance Program (CHIP) Directors
CHIP is Title XXI of the Social Security Act and is a state and federal partnership that targets uninsured children and pregnant women in families with incomes too high to qualify for most state Medicaid programs, but often too low to afford private coverage. Within federal guidelines, each state determines the design of its individual CHIP program, including eligibility parameters, benefit packages, and administrative procedures. The Children's Health Insurance Program Reauthorization Act (CHIPRA) of 2009 re-authorized the program through FY 2013, and includes many incentives for states to find and enroll more eligible children in both Medicaid and CHIP. CHIPRA also includes quality provisions that aim to monitor and improve care delivered through the Medicaid and CHIP programs. Each state does have a CHIP program, and the names of these programs differ from state to state. To find information on health coverage programs in your state, visit the InsureKidsNow.gov Web site.
Medicaid State Directors (Select the SMD Directory on the left side of the site for the current list of Medicaid State Directors) Medicaid is Title XIX of the Social Security Act and is a federal/state entitlement program that provides medical assistance to certain individuals and families with low incomes and/or special health care needs. Medicaid is of unique importance to children; together with the CHIP, Medicaid insures over 1 in 4 children in the United States, with millions more eligible but currently unenrolled. The Early and Periodic Screening, Diagnosis and Treatment (EPSDT) program is a critical component of Medicaid, which guarantees that children enrolled in Medicaid are screened for medical or developmental problems early, and that necessary treatments and services are provided. To find information on health coverage programs in your state, visit the InsureKidsNow.gov Web site.
Medicaid State Reports—2011
The American Academy of Pediatrics, in partnership with the National Association of Children's Hospitals, has created fact sheets that explain the importance of the Medicaid program, and how children in every state rely on it for their health care.
Community Health Centers in the State
HRSA provides a searchable database of federally-funded health centers. Health centers provide care to those with or without health insurance including well-care check ups, treatment when sick, complete care during pregnancy, immunizations and checkups for children, dental care, prescription drugs, and mental health and substance abuse care.
Regional Extension Centers (RECs) Health Information Technology RECs support and serve health care providers to help them quickly become adept and meaningful users of electronic health records (EHRs). RECs are designed to make sure that primary care clinicians get the help they need to use EHRs by providing training in adopting EHRs, guidance with implementation, and technical assistance as needed.
DSCC, the Illinois Title V agency for CYSHCN, has been working to promote medical homes in Illinois since 2002. As the Title V agency in Illinois, the DSCC elected to support early medical home endeavors by providing trained facilitators to help primary care practices establish a medical home quality improvement team and begin making changes to improve care delivery.
Illinois Campaign for Better Health Care (CBHC)
CBHC is a grassroots coalition of more than 300 local and statewide organizations representing consumers, health care workers and providers, community organizations, seniors, religious, labor, disability rights organizations and other citizens concerned about health care and wellness. CBHC was founded in 1989 on the belief that accessible, affordable, quality health care is a basic human right.
Illinois Maternal Child Health Coalition (IMCHC)
Recognizing that healthy infants, children, mothers and families constitute the basis of our society, the IMCHC is dedicated to promoting and improving their health and well being through advocacy, education, community empowerment and policy development. The activities of IMCHC address and support the fundamental principles of equity, social justice and fair access to care which are basic rights of all human beings. IMCHC's main objectives are directed to overcome critical barriers, such as poverty and racism, that prevent achievement of maternal and child wellness.
Shriners Hospitals for Children®—Chicago
Shriners Hospitals for Children®—Chicago is a 60-bed pediatric hospital, research and teaching center providing comprehensive medical, surgical and rehabilitative care to children with orthopaedic conditions, spinal cord injuries, and cleft lip and palate.
Voices for Illinois Children
Voices for Illinois Children champions the full development of every child in Illinois to assure the future well-being of everyone in the state. They work with families, communities and policymakers on issues to help children grow up healthy, happy, safe, loved, and well educated. Voices for Illinois Children is a member of Voices for America's Children.
Association of Maternal and Child Health Programs (AMCHP)—Illinois State Profile These state profiles provide a snapshot of how the Maternal and Child Health Block Grant (Title V) works in specific states. The profiles detail the federal funds appropriated to each state, state match, specific programs funded, numbers of people receiving services and state health needs.
Early Childhood State Policy Profiles National Center for Children in Poverty (NCCP) NCCP’s Early Childhood Profiles were produced as part of the Improving the Odds for Young Children project. These comprehensive profiles highlight states’ policy choices that promote health, education, and strong families alongside other contextual data related to the well-being of young children.
Issue Brief: Implementing the Medical Home in Medicaid, CHIP, and Multistakeholder Demonstration Programs American Academy of Pediatrics(Member access only)
This Issue Brief serves to provide guidance to AAP chapters working with states to implement medical home projects in Medicaid and CHIP as well as multipayer demonstration programs. It also addresses a number of the policy questions that frequently arise in creating state supports for the medical home.
Child Health USA 2010 US Department of Health and Human Services, Health Resources and Services Administration
This report is the 17th edition of the annual statistical report that highlights the health status and service needs of America's children. The report contains easy-to-access graphs and charts summarizing significant indicators of children's health status, statistics, figures, and references.
America's Children: Key National Indicators of Well-Being, 2011 Federal Interagency Forum on Child and Family Statistics
The purposes of the report are to improve Federal data on children and families and make these data available in an easy-to-use, non-technical format. It organizes well-being indicators into seven sections: family and social environment, economic circumstances, health care, physical environment and safety, behavior, education, and health.
2010 KIDS COUNT Databook Annie E Casey Foundation
This report is a national and state-by-state profile of the well-being of America's children available as an interactive databook, a complete PDF-format report, and on request, in print. Data and rankings on 10 key indicators of child well-being are available by state, county, and city.
50-State Demographics Wizard National Center for Children in Poverty (NCCP) This tool allows you to create custom tables of national- and state-level statistics about low-income or poor children. Choose areas of interest, such as parental education, parental employment, marital status, and race/ethnicity—among many other variables.
Adolescent Health Database National Adolescent Health Information Center (NAHIC)
The NAHIC database includes national and state-level profiles of key measures of the health of adolescents and young adults. National-level data is available by gender and race/ethnicity and also state-by-state, with summaries, data tables, and guidance for using this data to improve the health of adolescents and young adults.
Medical Home Data Fact Sheet—January 2009 American Academy of Pediatrics To inform key aspects of the pediatric medical home, the AAP has compiled a data fact sheet of summary statistics and facts from various AAP and public and proprietary sources. These data define the current state of pediatric care, and as the efforts surrounding the promotion and expansion of the pediatric medical home accelerate, the fact sheet will change to reflect this new picture.
Profile of Pediatric Visits—April 2010 American Academy of Pediatrics
This report is based on the most current available four years worth of NAMCS and MEPS data (2004-2007). The updated report includes annualized estimates by source of payment, patient age, physician specialty, well vs sick visit, office setting, practice ownership, physician employment status, and geographic location.
AAP Child Health Informatics Center—State and Territory Specific HIT Resources
This page on the AAP AAP Child Health Informatics Center (CHIC) Web site allows you to identify pediatric specific HIT resources by state related to Meaningful Use, Regional Extension Centers, State Health Information Exchanges, and other important information.
Illinois Provider Directory for Children, Youth, and Young Adults with Special Health Care Needs The new Illinois Provider Directory for Children, Youth, and Young Adults with Special Health Care Needs is designed to connect individuals with special health care needs with skilled health care providers. This free online resource establishes a single source for locating information about providers who care for children, youth, and young adults with special health care needs. Included in this directory are listings for a range of health care providers, including pediatric and adult primary care providers, medical specialists, occupational and physical therapists, speech pathologists, mental health providers, dentists, and more. This tool is for Illinois families and health care providers who are seeking to identify referrals for children, youth, and young adults with special health care needs. Sign up to be listed in the Illinois Provider Directory by visiting its Web site. Contact Liz Johnson, Provider Directory Coordinator with questions at LJohnson@illinoisaap.com or 312/ 733-1026 ext 210.
Medical Home Posters The Illinois Medical Home Project has developed medical home poster templates, in both English and Spanish, for practices to use. For assistance in customizing and creating posters for your office, contact DSCC staff, who can work with you to design free medical home posters that meet your specific needs . Here are some samples:
Illinois Medical Home Project Learning Session Videos:
Medical Home Project Learning Session III, December 2007: Presentations.
IEPs: Infinite. Educational. Possibilities
Maureen Lowry-Fritz, JD, MA explains IDEA 2004 and how primary care physicians can assist in the successful development of individual educational plans for students with special health care needs.
Transitions in Care for Youth with Special Health Needs
Dr. Patience White offers this presentation for primary care providers on methods for successful health care transition for adolescents with special health care needs.
