No announcements at this time.
AAP: Community Pediatrics Grant Database
The Community Pediatrics Grant Database archives previously funded Community Pediatrics grant projects, including those funded through the CATCH Program, the Healthy Tomorrows Partnership for Children Program, the Community Pediatrics Training Initiative and the Healthy People 2010 Chapter Grants. The database is searchable by seven major categories: target population, health topic, state/territory, project activity, AAP program, AAP district, and project year. Members of the AAP can obtain grantee contact information by searching through the Member Center. If you are not an AAP member, but have questions please contact docbi@aap.org.
Massachusetts Patient-Centered Medical Home Initiative
The Commonwealth of Massachusetts has been awarded an MCHB State Implementation Grant for Integrated Community Systems of Services for CSHCN - Abstract 
Contact Person: Nicole Roos, MBA
E-mail:
nicole.roos@state.ma.us
Goals and Objectives:
- Build system capacity for family-professional partnerships statewide
- Enhance medical provider capacity for providing medical homes for CYSHCN
- Assure children receive early and continuous screening and referral to appropriate services
- Build system capacity for ensuring YSHCN receive services necessary to make successful transitions to adult life
- Strengthen collaboration of youth, families, providers, and state agencies in enhancing systems of care for CYSHCN
- Enhance advocacy skills of youth and families
Healthy Tomorrows Partnership for Children Grants - Family Advocates of Central Massachusetts
Providing a Medical Home for children of low-income families includes the capacity to address the legal issues that affect the health of children and families. Family Advocates of Central Massachusetts will incorporate attorneys from LACCM as full members of the multidisciplinary teams caring for children from low-income families in four practices located in Worcester, Webster, Milford and Fitchburg Massachusetts. The attorneys will work closely with health care providers to develop a system of care that integrates legal advice and representation as an additional tool to address the social issues within families that adversely affect the health of children. The attorneys will develop screening protocols and staff trainings that fit within the organizational culture of the four medical practices. Each year, they will provide counsel and advice to more than 100 low-income families with children, and will provide full representation to more than 30 low-income families with children, at the four practice sites in Central Massachusetts.The goals of this project are:
- Improve housing stability
- Improve financial security
- Improve dignity and safety
- Improve access to health care
For more information on the Healthy Tomorrows Grant Program click here. For more information on any of these HTPCP projects, please e-mail your name, address, telephone, and fax numbers with your specific request to healthyt@aap.org.
Children's Health Insurance Program Reauthorization Act (CHIPRA) Grants
Massachusetts is a lead on one of 10 CHIPRA grants, representing single-state projects and multi-state collaborations, from HHS to improve health care quality and delivery systems for children enrolled in Medicaid and the Children's Health Insurance Program (CHIP). The money will help states implement and evaluate provider performance measures and utilize health information technologies such as pediatric electronic health records and other quality improvement initiatives.
American Academy of Pediatrics (AAP) Chapter - Massachusetts
Academy chapters are organized groups of pediatricians and other health care professionals working to achieve AAP goals in their communities. Chapters are the channels of representation for individual members of the Academy. Please contact your local chapter for additional state resources.
American Academy of Family Physicians (AAFP) Chapter - Massachusetts
The American Academy of Family Physicians is one of the largest national medical organizations, representing more than 94,000 family physicians, family medicine residents, and medical students.
Family Voices Chapter - Massachusetts
Family Voices aims to achieve family-centered care for all children and youth with special health care needs and/or disabilities. Through a national network, they provide families tools to make informed decisions, advocate for improved public and private policies, build partnerships among professionals and families, and serve as a trusted resource on health care.
Family-to-Family Health Information Centers (F2F HICs)
F2F HICs are non-profit organizations that help families of children and youth with special health care needs (CYSHCN) and the professionals who serve them. F2F HICs are in a unique position to help families because they are typically staffed/run by parents of CYSHCN themselves, and as parents, they have traveled through the maze of services and programs designed to help CYSHCN. Staff at F2F HICs understand the issues that families face, provide advice, offer a multitude of resources, and tap into a network of other families and professionals for support and information. Family Voices, through the National Center for Family / Professional Partnerships, provides technical assistance, training, and connections to other F2F HICs and partnering organizations.
Mass Family Voices at Federation for Children with Special Needs
Address: 1135 Tremont Street Suite 420
Boston, MA 2120
Phone: 617/572-2094 | Toll-Free: 800/331-0688
Primary Contact: Beth Dworetzky
Title V Block Grant to States
Title V of the Social Security Act is one of the largest Federal block grant programs. It leads the nation in ensuring the health of all mothers, infants, children, adolescents, and children with special health care needs (CSHCN). Title V is administered by the Maternal and Child Health Bureau (MCHB) as part of the Health Resources and Services Administration, US Department of Health and Human Services.
MCH Contact
Ron Benham, Director, Div for Perinatal, Early Childhood and Special Health Needs
Address: Mass Dept of Public Health, 250 Washington St, Boston, MA 02108
Phone: 617/624-5901 | Fax: 617/624-6062 | E-mail: ron.benham@state.ma.us
Title V and Children with Special Health Care Needs
MCHB Objective:
Support development and implementation of comprehensive, culturally competent, coordinated systems of care for the estimated 18 million U.S. children who have or are at risk for chronic physical, developmental, behavioral or emotional conditions and who also require health and related services of a type or amount beyond that required by children generally.
CSHCN Contact
Ron Benham, Director, Div for Perinatal, Early Childhood and Special Health Needs
Address: Mass Dept of Public Health, 250 Washington St, Boston, MA 02108
Phone: 617/624-5901 | Fax: 617/624-6062 | E-mail: ron.benham@state.ma.us
Early Hearing Detection & Intervention (EHDI) Contact(s)
State EHDI programs promote universal newborn hearing screening, develop effective tracking and follow-up as a part of the public health system, promote appropriate and timely diagnosis of the hearing loss, prompt enrollment in appropriate Early Intervention, ensure a medical home for all newborns and strive to eliminate geographic and financial barriers to service access.
State Newborn Screening & Genetics Programs
Massachusetts Newborn Screening Program and Contact Information
From the National Newborn Screening and Genetics Resource Center Web site
Massachusetts Genetic Services and Contact Information
From the National Newborn Screening and Genetics Resource Center Web site
Newborn Screening and Genetics Collaborative – HRSA Region 1
Translating research into practical health care services and systems to improve the health and quality of life of individuals with heritable disorders through Collaboration and Partnership
Early Intervention/Part C Coordinator
The Program for Infants and Toddlers with Disabilities (Part C of IDEA) is a federal grant program that assists states in operating a comprehensive statewide program of early intervention services for infants and toddlers with disabilities, ages birth through age 2 years, and their families.
Ron Benham, Part C Coordinator and Director of EI
Phone: 617/624-5962 | Fax: 617/624-5990 | AltPhone: 617/624-5070 | E-mail: ron.benham@state.ma.us
Web site
Section 619/Special Education for ages 3-5 Coordinators
This program provides free appropriate public education (FAPE) for children, ages 3 through 5 years, with disabilities:
Russell Hoyt, 619 Coordinator
Phone: 781/338-6360 | Fax: 781/338-3370 | E-mail: rhoyt@doe.mass.edu
Elisabeth Schaefer, Administrator
Phone: 781/338-6357 | Fax: 781/338-3380 | E-mail: eschaefer@doe.mass.edu
Web site
State Interagency Coordinating Council (ICC) Chairs
The ICC advises appropriate agencies on the unmet needs in early childhood special education and early intervention programs for children with disabilities, assists in the development and implementation of policies that constitute a statewide system, and assists all appropriate agencies in achieving full participation, coordination, and cooperation for implementation of statewide system.
Barbara Prindle Eaton, ICC Chair
Phone: 508/775-6240 | Fax: 508/790-4774 | E-mail: bpeaton@cccdp.org
Medicaid
Medicaid is Title XIX of the Social Security Act and is a federal/state entitlement program that provides medical assistance to certain individuals and families with low incomes and/or special health care needs. Medicaid is of unique importance to children; together with the Children's Health Insurance Program, Medicaid insures over 1 in 4 children in the United States, with millions more eligible but currently unenrolled. The Early and Periodic Screening, Diagnosis and Treatment (EPSDT) program is a critical component of Medicaid, which guarantees that children enrolled in Medicaid are screened for medical or developmental problems early, and that necessary treatments and services are provided.
Medicaid State Director
For the most updated contact, please refer to the National Association of State Medicaid Directors Member List.
State Waiver Information
Waivers are the result of a process that allows state Medicaid agencies to apply for and receive permission from HCFA to provide services not otherwise covered by Medicaid and/or to do so in ways not described by the Social Security Act. Most Medicaid managed care programs require Waivers. The Waivers, which can differ greatly, are known by their numbers (1115, 1119), or as home-and community-based, or as Katie Beckett Waivers.
Children's Health Insurance Program (CHIP)
CHIP is Title XXI of the Social Security Act and is a state and federal partnership that targets uninsured children and pregnant women in families with incomes too high to qualify for most state Medicaid programs, but often too low to afford private coverage. Within federal guidelines, each state determines the design of its individual CHIP program, including eligibility parameters, benefit packages, and administrative procedures. The Children's Health Insurance Program Reauthorization Act of 2009 (CHIPRA) reauthorized the program through FY 2013, and includes many incentives for states to find and enroll more eligible children in both Medicaid and CHIP. CHIPRA also includes a number of quality provisions that aim to monitor and improve care delivered through the Medicaid and CHIP programs. Each state does have a CHIP program, and the names of these programs differ from state to state.
Children’s Health Insurance State Program Director
For the most updated contact, please refer to the CMS listing of CHIP Directors.
Community Health Centers in the State
Federally-funded health centers care for you, even if you have no health insurance. You pay what you can afford, based on your income. Health centers provide checkups when you're well, treatment when you're sick, complete care when you're pregnant, immunizations and checkups for your children, dental care and prescription drugs for your family, mental health and substance abuse care if you need it. For a listing of CHCs in Massachusetts, please use HRSA’s ‘Find A Health Center’ search engine.
Association of Maternal and Child Health Programs (AMCHP) Massachusetts State Profile
These state profiles provide a snapshot of how the Maternal and Child Health Block Grant works in specific states. The profiles detail the Federal funds appropriated to each state, state match, specific programs funded, numbers of people receiving services and state health needs.
AAP Issue Brief: Implementing the Medical Home in Medicaid, CHIP, and Multistakeholder Demonstration Programs
(AAP Member access only)
The Medical Home Issue Brief serves to provide guidance to AAP chapters working with states to implement medical home projects in Medicaid and CHIP as well as multipayer demonstration programs. It also addresses a number of the policy questions that frequently arise in creating state supports for the medical home.
Child Health Measurement Initiative (CAHMI) Medical Home Portal - Massachusetts State Profile
These state profiles provide a state’s medical home performance level for all children or children with special health care needs, based on national survey data.
National Adolescent Health Information Center (NAHIC) Adolescent Health Database
The NAHIC database includes national and state-level profiles of key measures of the health of adolescents and young adults, based on Healthy People 2010. Known as the Data Project, the online resource contains information on recent progress in key areas of adolescent health. National-level data is available by gender and race/ethnicity and also state-by-state, with summaries and data tables. The site also features information about data collection and presentation, state and national Excel files and guidance for using this data to improve the health of adolescents and young adults.
2010 KIDS COUNT Databook
The Annie E Casey Foundation has released the 2010 Kids Count report. The annual Kids Count report is a national and state-by-state profile of the well-being of America's children that seeks to enrich discussions concerning ways to secure better futures for all kids. The 2010 Kids Count report data is available as an interactive databook, a complete PDF-format report , and on request, in print. Data and rankings on 10 key indicators of child well-being are available by state, county, and city.
Massachusetts Statewide Medical Home Implementation Plan - Promise to the State
The MA Medical Home Initiatives Steering Committee (comprised of families, MCAAP, Consortium for CSHCN, Title V/DPH, AAP CATCH, and the MA Chapter of Family Physicians) have written a plan outlining specific goals for the state to achieve a system of care in which all CSHCN have access to a medical home by 2010.
MCHB Medical Home Grant "The Massachusetts Medical Home Project":
A medical home development project funded by the MCHB which partners care coordinators from the Dept of Public Health with primary care pediatricians in the community.
Medical Home Materials
Massachusetts Consortium for CSHCN
The Massachusetts Consortium for CSHCN is a working group dedicated to improving systems of care for children with special health care needs and their families throughout the Commonwealth of Massachusetts. The Consortium offers a forum for information exchange and strategic thinking to address gaps and barriers in service systems.
Massachusetts Family Ties
Massachusetts Dept of Public Health / Division for Special Health Needs
New England SERVE
Practicing Comprehensive Care: A Physician's Operations Manual for Implementing a Medical Home for CSHCN - created by the Pediatric Alliance for Coordinated Care, the manual offers practical advice and suggestions to support the day-to-day operations of pediatric offices to more efficiently and effectively serve children with special health care needs.
Transition Planning for Adolescents with Special Health Care Needs and Disabilities: A Guide for Health Care Providers (2000) - The guide gives information, resources and strategies needed by providers to support adolescents and their families to meet the challenges of transition.
Transition Planning for Adolescents with Special Health Care Needs and Disabilities: Information for Families and Teens (2000) - This booklet has been developed for families to help you prepare with your teen for his/her adulthood.
Partnerships For Quality
Click here for transcripts and resources from this conference held by MA Family Voices that brought together families and health professionals to discuss how to improve care for CSHCN.
The Medical Home Network Project
This educational program of New England SERVE brings together primary care providers, parents and community partners to demystify the theory and practice of the Medical Home. Its case-based curriculum offers knowledge, awareness, and strategies for implementing small practice improvements. Sessions include:
- Introduction to Medical Home, CSHCN, Family Centered Care
- Community Resources and Care Coordination
- Medical Home Index and Practice Change
These two-hour sessions carry continuing medical education (CME) approval. This project is ongoing.
