Champions for Inclusive Communities (ChampionsInc) Star Communities
ChampionsInc, a national center designed to support communities in organizing services for families of children and youth with special health care needs (CYSHCN), has created the Star Communities program to recognize exceptional communities that work to support organizing services for families of CYSHCN. To read about the Cleveland, OH community selected to be recognized, click here.
AAP: Community Pediatrics Grant Database
The Community Pediatrics Grant Database archives previously funded Community Pediatrics grant projects, including those funded through the CATCH Program, the Healthy Tomorrows Partnership for Children Program, the Community Pediatrics Training Initiative and the Healthy People 2010 Chapter Grants. The database is searchable by seven major categories: target population, health topic, state/territory, project activity, AAP program, AAP district, and project year. Members of the AAP can obtain grantee contact information by searching through the Member Center. If you are not an AAP member, but have questions please contact docbi@aap.org.
Developmental Surveillance and Screening Policy Implementation Project (D-PIP)
Ohio Pediatrics, Inc. from Huber Heights, OH participated in the D-PIP. The D-PIP selected 17 practices from across the United States to implement the AAP policy statement Identifying Infants and Young Children with Developmental Disorders in the Medical Home: An Algorithm for Developmental Surveillance and Screening to:
- Determine if the algorithm is efficiently and effectively implemented into pediatric practice,
- Recognize strategies for implementing the algorithm, and
- Examine outcomes of implementation.
Following the project, information and outcomes will be shared with pediatric clinicians and other health care professionals who are seeking to improve the delivery of developmental surveillance and screening.
Ohio Medical Home Focus Group Project Summary 
(May 2003)
The report discusses the results of a focus group of families who have a child with special health care needs. The families were surveyed about their experiences and how a medical home would help them.
National NICHQ Medical Home Learning Collaborative
A fifteen-month collaborative activity to improve care for the growing population of CSHCN. This initiative focuses on 3 practices in the state and assists them in completing a quality improvement process to provide medical homes to their patients with special needs. It also assists in building the capacity of Ohio's BCMH and other health department programs to support and extend this approach after the completion of the project period.
Transitions Champions Incentive Grant - Incentive Award FAQs
Goal: To conduct parent and youth focus groups across the state to further the implementation of transition activities for CSHCN youth and to further the development of statewide initiatives related to transition. For more information contact James Bryant, Bureau Chief at 614/466-1549 or JBRYANT@gw.odh.state.oh.us.
Healthy Tomorrows Partnership for Children Program Grant
Rural Interdisciplinary Developmental Evaluation Clinic Initiative (2001)
Athens-Meigs Educational Service Center, Athens, OH
In the Ohio counties of Athens, Meigs, and Vinton, more than half of the population live below the poverty level, with limited access to care. This program will expand existing developmental and behavioral assessment clinics to these three counties to provide interdisciplinary assessment services in partnership with local health and educational service providers for families with children ages 0 to 6 years old. The interdisciplinary team consists of a developmental pediatrician, physical therapist, occupational therapist, psychologist, speech pathologist, nurse consultant, and clinic coordinator. The goal of the program is to improve the overall health status and educational programming, functional abilities, and developmental outcomes of children ages birth to six years old living in Athens, Meigs, and Vinton Counties who have special needs. For more information on this HTPCP project, please e-mail your name, address, telephone, and fax numbers with your specific request to healthyt@aap.org.
American Academy of Pediatrics (AAP) Chapter - Ohio
Academy chapters are organized groups of pediatricians and other health care professionals working to achieve AAP goals in their communities. Chapters are the channels of representation for individual members of the Academy. Please contact your local chapter for additional state resources
American Academy of Family Physicians (AAFP) Chapter - Ohio
The American Academy of Family Physicians is one of the largest national medical organizations, representing more than 94,000 family physicians, family medicine residents, and medical students
Family Voices Chapter - Ohio
Family Voices aims to achieve family-centered care for all children and youth with special health care needs and/or disabilities. Through a national network, they provide families tools to make informed decisions, advocate for improved public and private policies, build partnerships among professionals and families, and serve as a trusted resource on health care.
Family-to-Family Health Information Centers (F2F HICs)
F2F HICs are non-profit organizations that help families of children and youth with special health care needs (CYSHCN) and the professionals who serve them. F2F HICs are in a unique position to help families because they are typically staffed/run by parents of CYSHCN themselves, and as parents, they have traveled through the maze of services and programs designed to help CYSHCN. Staff at F2F HICs understand the issues that families face, provide advice, offer a multitude of resources, and tap into a network of other families and professionals for support and information. Family Voices, through the National Center for Family / Professional Partnerships, provides technical assistance, training, and connections to other F2F HICs and partnering organizations.
Family Voices of Ohio
Address: 6877 N High St Ste 209, Worthington, OH 43085
Phone: 405/271-5072
Primary Contacts: Carol Keltner, Diane Frazee
(MCHB: 6/2009-5/2012)
Title V Block Grant to States
Title V of the Social Security Act is one of the largest Federal block grant programs. It leads the nation in ensuring the health of all mothers, infants, children, adolescents, and children with special health care needs (CSHCN). Title V is administered by the Maternal and Child Health Bureau (MCHB) as part of the Health Resources and Services Administration, U.S. Department of Health and Human Services.
MCH Contact
Karen Hughes, MPH. Chief, Division of Family and Community Health Services
Address: 246 North High Street, Columbus, Ohio 43215
Phone: 614/466-3263 | Fax: 614/728-9163 | E-mail: karen.hughes@odh.ohio.gov
Web site
Title V and Children with Special Health Care Needs
MCHB Objective: Support development and implementation of comprehensive, culturally competent, coordinated systems of care for the estimated 18 million U.S. children who have or are at risk for chronic physical, developmental, behavioral or emotional conditions and who also require health and related services of a type or amount beyond that required by children generally.
CSHCN Contact
James Bryant, MD, Chief, Bureau for Children with Medical Handicaps
Address: 246 North High Street, Columbus, Ohio 43215
Phone: 614/466-1549 | Fax: 614/728-3616 | E-mail: james.bryant@odh.ohio.gov
Web site
Early Hearing Detection & Intervention (EHDI) Contact(s)
State EHDI programs promote universal newborn hearing screening, develop effective tracking and follow-up as a part of the public health system, promote appropriate and timely diagnosis of the hearing loss, prompt enrollment in appropriate Early Intervention, ensure a medical home for all newborns and strive to eliminate geographic and financial barriers to service access.
State Newborn Screening & Genetics Programs:
Ohio Newborn Screening Program and Contact Information
From the National Newborn Screening and Genetics Resource Center Web site
Ohio Genetic Services and Contact Information
From the National Newborn Screening and Genetics Resource Center Web site
Newborn Screening and Genetics Collaborative – HRSA Region 4
Translating research into practical health care services and systems to improve the health and quality of life of individuals with heritable disorders through Collaboration and Partnership
Early Intervention/Part C Coordinator
The Program for Infants and Toddlers with Disabilities (Part C of IDEA) is a federal grant program that assists states in operating a comprehensive statewide program of early intervention services for infants and toddlers with disabilities, ages birth through age 2 years, and their families.
Debbie Cheatham
Fax: 614/644-8389 | E-mail: debbie.cheatham@odh.ohio.gov
Web site
Section 619/Special Education for ages 3-5 Coordinators
This program provides free appropriate public education (FAPE) for children, ages 3 through 5 years, with disabilities:
Edith Greer
Phone: 614/466-0224 | Fax: 614/728-3223 | E-mail: edith.greer@ode.state.oh.us
Web site
State Interagency Coordinating Council (ICC) Chairs
The ICC advises appropriate agencies on the unmet needs in early childhood special education and early intervention programs for children with disabilities, assists in the development and implementation of policies that constitute a statewide system, and assists all appropriate agencies in achieving full participation, coordination, and cooperation for implementation of statewide system.
G. Dennis Schreibeis
Phone: 614/360-1054 | E-mail: gdschreibeis@gmail.com
Kim Johnson
Phone: 330/965-7912 | E-mail: mcoe_ksj@access-k12.org
Web site
Medicaid
Medicaid is Title XIX of the Social Security Act and is a federal/state entitlement program that provides medical assistance to certain individuals and families with low incomes and/or special health care needs. Medicaid is of unique importance to children; together with the Children's Health Insurance Program, Medicaid insures over 1 in 4 children in the United States, with millions more eligible but currently unenrolled. The Early and Periodic Screening, Diagnosis and Treatment (EPSDT) program is a critical component of Medicaid, which guarantees that children enrolled in Medicaid are screened for medical or developmental problems early, and that necessary treatments and services are provided.
Medicaid State Director
For the most updated contact, please refer to the National Association of State Medicaid Directors Member List.
State Waiver Information
Waivers are the result of a process that allows state Medicaid agencies to apply for and receive permission from HCFA to provide services not otherwise covered by Medicaid and/or to do so in ways not described by the Social Security Act. Most Medicaid managed care programs require Waivers. The Waivers, which can differ greatly, are known by their numbers (1115, 1119), or as home-and community-based, or as Katie Beckett Waivers.
Children's Health Insurance Program (CHIP)
CHIP is Title XXI of the Social Security Act and is a state and federal partnership that targets uninsured children and pregnant women in families with incomes too high to qualify for most state Medicaid programs, but often too low to afford private coverage. Within federal guidelines, each state determines the design of its individual CHIP program, including eligibility parameters, benefit packages, and administrative procedures. The Children's Health Insurance Program Reauthorization Act of 2009 (CHIPRA) reauthorized the program through FY 2013, and includes many incentives for states to find and enroll more eligible children in both Medicaid and CHIP. CHIPRA also includes a number of quality provisions that aim to monitor and improve care delivered through the Medicaid and CHIP programs. Each state does have a CHIP program, and the names of these programs differ from state to state.
Children’s Health Insurance State Program Director
For the most updated contact, please refer to the CMS listing of CHIP Directors .
Community Health Centers in the State
Federally-funded health centers care for you, even if you have no health insurance. You pay what you can afford, based on your income. Health centers provide checkups when you're well, treatment when you're sick, complete care when you're pregnant, immunizations and checkups for your children, dental care and prescription drugs for your family, mental health and substance abuse care if you need it. For a listing of CHCs in Ohio, please use HRSA’s ‘Find A Health Center’ search engine.
Association of Maternal and Child Health Programs (AMCHP) Ohio State Profile
These state profiles provide a snapshot of how the Maternal and Child Health Block Grant works in specific states. The profiles detail the Federal funds appropriated to each state, state match, specific programs funded, numbers of people receiving services and state health needs.
AAP Issue Brief: Implementing the Medical Home in Medicaid, CHIP, and Multistakeholder Demonstration Programs
(AAP Member access only)
The Medical Home Issue Brief serves to provide guidance to AAP chapters working with states to implement medical home projects in Medicaid and CHIP as well as multipayer demonstration programs. It also addresses a number of the policy questions that frequently arise in creating state supports for the medical home.
Child Health Measurement Initiative (CAHMI) Medical Home Portal - Ohio State Profile
These state profiles provide a state’s medical home performance level for all children or children with special health care needs, based on national survey data.
National Adolescent Health Information Center (NAHIC) Adolescent Health Database
The NAHIC database includes national and state-level profiles of key measures of the health of adolescents and young adults, based on Healthy People 2010. Known as the Data Project, the online resource contains information on recent progress in key areas of adolescent health. National-level data is available by gender and race/ethnicity and also state-by-state, with summaries and data tables. The site also features information about data collection and presentation, state and national Excel files and guidance for using this data to improve the health of adolescents and young adults.
2010 KIDS COUNT Databook
The Annie E Casey Foundation has released the 2010 Kids Count report. The annual Kids Count report is a national and state-by-state profile of the well-being of America's children that seeks to enrich discussions concerning ways to secure better futures for all kids. The 2010 Kids Count report data is available as an interactive databook, a complete PDF-format report , and on request, in print. Data and rankings on 10 key indicators of child well-being are available by state, county, and city.
Ohio Statewide Medical Home Implementation Plan - Promise to the State 
The Care Coordination Toolkit
D
developed by the Cincinnati Children's Hospital Center for Infants and Children with Special Needs, this toolkit outlines billing for the care coordination through a review of individual codes, proper documentation, and an easy to follow billing slip.
Special Needs Resource Directory of Southwest Ohio
The directory includes information on issues related to advocacy, assistive technology, community services, dental care, education, employment, estate and future planning, financial assistance, guardianship, home health care, mental health, MR/DD services, nutrition resources, summer programming, therapies, transition issues, transportation, and wish-granting organizations. The printed and online versions of the Resource Directory were made possible through funding from the William Nutt Fund and BCMH. Developed by the Center for Infants and Children with Special Needs at Cincinnati Children's Hospital Medical Center. The goal of the Resource Directory is to provide comprehensive web-based information in one convenient location for both parents and professionals. Their hope is that the Resource Directory will be beneficial in the coordination of medical and psychosocial care of children with specialized chronic health care needs.
Ohio Developmental Disabilities Council (ODDC)
A planning and advocacy body committed to community inclusion for people with developmental disabilities.
