Champions for Inclusive Communities (ChampionsInc) Star Communities
ChampionsInc, a national center designed to support communities in organizing services for families of children and youth with special health care needs (CYSHCN), has created the Star Communities program to recognize exceptional communities that work to support organizing services for families of CYSHCN.
To read about the Coos Bay Area, OR community selected to be recognized, click here.
To read about the Clatsop County, OR community selected to be recognized, click here.
State Screening Initiatives: Oregon
Oregon’s START (Screening Tools and Referral Training) Program has been immensely successful since its birth in June 2008. The Oregon Pediatric Society and Children’s Health Alliance adapted this educational program from the START program of the Tennessee Chapter of the American Academy of Pediatrics. The goals of START are to improve developmental and behavioral screening in pediatric practices, improve providers’ understanding and utilization of screening tools, educate providers on documentation and coding of screening tools, and improve awareness of community resources for evaluation and intervention. With an effective strategy in place for implementation of these objectives, Oregon START is approved by the American Board of Pediatrics for Part IV Maintenance of Certification as an established quality improvement project.
Since its inception, nearly 500 participants from primary care pediatric practices, Federally Qualified Health Clinics, and Oregon Health Sciences University residents have been trained. The primary focus of these trainings was on screening tools for identification of developmental disabilities and autism. Phase II of START began in November of 2009 with a new module related to maternal depression. Other modules are in the planning stages focusing on psychosocial and family risk screening. Additionally in April 2010, through a “Train-the-Trainer” approach, START has added six new physician trainers to the state increasing our ability to share the model with more Oregon communities. Oregon START was made possible by the generous funding of CareOregon, Northwest Health Foundation and other supporting organizations. For more information about Oregon START, please contact Anne Stone, START Manager and Interim Executive Director of the Oregon Pediatric Society.
AAP: Community Pediatrics Grant Database
The Community Pediatrics Grant Database archives previously funded Community Pediatrics grant projects, including those funded through the CATCH Program, the Healthy Tomorrows Partnership for Children Program, the Community Pediatrics Training Initiative and the Healthy People 2010 Chapter Grants. The database is searchable by seven major categories: target population, health topic, state/territory, project activity, AAP program, AAP district, and project year. Members of the AAP can obtain grantee contact information by searching through the Member Center. If you are not an AAP member, but have questions please contact docbi@aap.org.
Healthy Tomorrows Partnership for Children Grant (2010-2015)
BUILDING HEALTHY FAMILIES
Jackson County School District #6, Central Point, OR
Primary Contact: Jesse Hanwit, MA, ED.S.OTR/L | E-mail: jesse.hanwit@district6.org
The federal Maternal and Child Health Bureau awarded this five-year grant to provide approximately $50,000 per year to improve child health through community-based initiatives on prevention and access to health service for vulnerable populations. Jackson County School District #6 serves 1505 student in 5 elementary, 2 middle and 4 small high schools. Many of the students come from families who face serious barriers to accessing needed services. Barriers include lack of awareness, transportation, language and culture and a general sense of anxiety or distrust about getting help from formal service systems. Approximately 40% of the students come from low income families and, without needed support, they become increasingly at-risk for dropping out of school. Building Healthy Families will address the physical and mental needs of vulnerable, low income students through the services of a School Based Health Center. Focusing on prevention, treatment of acute conditions and management of chronic conditions will result in better attendance, and improved behavior of students. The primary goal of the project is to initiate a community effort to improve the physical and mental health of children in poverty in Central Point, OR.
MCHB State Implementation Grant for Integrated Community Systems of Services for CSHCN (Oregon Health & Sciences University) – Abstract 
Contact: Robert E. Nickel, MD | E-mail: nickelr@ohsu.edu
Goals and Objectives:This project will address all 6 Title V Block Grant performance measures, will focus on “adequate public and/or private financing of needed services,” “early and continuous screening, evaluation and diagnosis,” and “family-professional partnerships,” and will build on current Title V activities. The project’s objectives for these 3 measures are: 1) Families and youth are informed consumers of health care, 2) Communities plan to assure adequate financing of health services for CYSHN, 3)Children are screened early and continuously for developmental/ behavioral differences, 4) Family/professional partnerships are developed in health care practices and communities, and 5)
Providers design services to meet the needs of culturally diverse groups.
Oregon Medical Home Network
The Oregon Medical Home Network consists of six primary care practices and the Office of the Oregon Medical Home Project at CDRC who have participated in a 3-year project designed to improve services for families with children and youth having special health care needs. A video is available where you can learn more about the network, meet the community teams, and hear from pediatric clinicians and families on the importance of having a medical home.
Children's Health Insurance Program Reauthorization Act (CHIPRA) Grants
Oregon is a lead on one of 10 CHIPRA grants, representing single-state projects and multi-state collaborations, from HHS to improve health care quality and delivery systems for children enrolled in Medicaid and the Children's Health Insurance Program (CHIP). The money will help states implement and evaluate provider performance measures and utilize health information technologies such as pediatric electronic health records and other quality improvement initiatives.
American Academy of Pediatrics (AAP) Chapter - Oregon
Academy chapters are organized groups of pediatricians and other health care professionals working to achieve AAP goals in their communities. Chapters are the channels of representation for individual members of the Academy. Please contact your local chapter for additional state resources.
American Academy of Family Physicians (AAFP) Chapter - Oregon
The American Academy of Family Physicians is one of the largest national medical organizations, representing more than 94,000 family physicians, family medicine residents, and medical students.
Family Voices Chapter - Oregon
Family Voices aims to achieve family-centered care for all children and youth with special health care needs and/or disabilities. Through a national network, they provide families tools to make informed decisions, advocate for improved public and private policies, build partnerships among professionals and families, and serve as a trusted resource on health care.
Family-to-Family Health Information Centers (F2F HICs)
F2F HICs are non-profit organizations that help families of children and youth with special health care needs (CYSHCN) and the professionals who serve them. F2F HICs are in a unique position to help families because they are typically staffed/run by parents of CYSHCN themselves, and as parents, they have traveled through the maze of services and programs designed to help CYSHCN. Staff at F2F HICs understand the issues that families face, provide advice, offer a multitude of resources, and tap into a network of other families and professionals for support and information. Family Voices, through the National Center for Family / Professional Partnerships, provides technical assistance, training, and connections to other F2F HICs and partnering organizations.
Oregon Family Support Network
Address: 2411 Martin Luther King Jr. Blvd, Eugene, OR 97401-5824
Phone: 503/475-9131
Primary Contact: Shelley Joyce
(CMS: 10/2005-10/2008 and MCHB: 6/2007-5/2010)
Title V Block Grant to States
Title V of the Social Security Act is one of the largest Federal block grant programs. It leads the nation in ensuring the health of all mothers, infants, children, adolescents, and children with special health care needs (CSHCN). Title V is administered by the Maternal and Child Health Bureau (MCHB) as part of the Health Resources and Services Administration, U.S. Department of Health and Human Services.
MCH Contact
Katherine J. Bradley, Phd, RN, Administrator, Office of Family Health
Address: 800 NE Oregon St., Suite 850, Portland, OR 97232
Phone: 971/673-0233 | Fax: 971/673-0231 | E-mail: katherine.bradley@state.or.us
Title V and Children with Special Health Care Needs
MCHB Objective: Support development and implementation of comprehensive, culturally competent, coordinated systems of care for the estimated 18 million U.S. children who have or are at risk for chronic physical, developmental, behavioral or emotional conditions and who also require health and related services of a type or amount beyond that required by children generally.
CSHCN Contact
Marilyn Hartzell, MEd, Director, OCCYSHN, CDRC
Address: PO Box 574, Portland, OR 97207
Phone: 503/494-6961 | Fax: 503/494-2755 | E-mail: hartzell@ohsu.edu
Early Hearing Detection & Intervention (EHDI) Contact(s)
State EHDI programs promote universal newborn hearing screening, develop effective tracking and follow-up as a part of the public health system, promote appropriate and timely diagnosis of the hearing loss, prompt enrollment in appropriate Early Intervention, ensure a medical home for all newborns and
strive to eliminate geographic and financial barriers to service access.
State Newborn Screening & Genetics Programs
Oregon Newborn Screening Program and Contact Information
From the National Newborn Screening and Genetics Resource Center Web site
Oregon Genetics Services and Contact Information
From the National Newborn Screening and Genetics Resource Center Web site
Newborn Screening & Genetics Collaborative – HRSA Region 7
Translating research into practical health care services and systems to improve the health and quality of life of individuals with heritable disorders through Collaboration and Partnership
Early Intervention/Part C Coordinator
The Program for Infants and Toddlers with Disabilities (Part C of IDEA) is a federal grant program that assists states in operating a comprehensive statewide program of early intervention services for infants and toddlers with disabilities, ages birth through age 2 years, and their families.
Nancy Johnson-Dorn, Acting Part C Coordinator
Phone: 503/378-3600 ext 2339 | Fax: 503/373-7968 | E-mail: nancy.johnson-dorn@state.or.us
Section 619/Special Education for ages 3-5 Coordinators
This program provides free appropriate public education (FAPE) for children, ages 3 through 5 years, with disabilities.
Nancy Johnson-Dorn, 619 Coordinator
Phone: 503/378-3600 x2339 or 503/378-2892 | Fax: 503/373-7968 | E-mail: nancy.johnson-dorn@state.or.us
State Interagency Coordinating Council (ICC) Chairs
The ICC advises appropriate agencies on the unmet needs in early childhood special education and early intervention programs for children with disabilities, assists in the development and implementation of policies that constitute a statewide system, and assists all appropriate agencies in achieving full participation, coordination, and cooperation for implementation of statewide system.
Claudia Bingham, ICC Co-Chair
Phone: 503/731-3461 x529 | E-mail: claudia.w.bingham@state.or.us
Jody Mumford, ICC Chair
Phone: 503/292-5437 | E-mail: wpmumford@comcast.net
Medicaid
Medicaid is Title XIX of the Social Security Act and is a federal/state entitlement program that provides medical assistance to certain individuals and families with low incomes and/or special health care needs. Medicaid is of unique importance to children; together with the Children's Health Insurance Program, Medicaid insures over 1 in 4 children in the United States, with millions more eligible but currently unenrolled. The Early and Periodic Screening, Diagnosis and Treatment (EPSDT) program is a critical component of Medicaid, which guarantees that children enrolled in Medicaid are screened for medical or developmental problems early, and that necessary treatments and services are provided.
Medicaid State Director
For the most updated contact, please refer to the National Association of State Medicaid Directors Member List.
State Waiver Information
Waivers are the result of a process that allows state Medicaid agencies to apply for and receive permission from HCFA to provide services not otherwise covered by Medicaid and/or to do so in ways not described by the Social Security Act. Most Medicaid managed care programs require Waivers. The Waivers, which can differ greatly, are known by their numbers (1115, 1119), or as home-and community-based, or as Katie Beckett Waivers.
Children's Health Insurance Program (CHIP)
CHIP is Title XXI of the Social Security Act and is a state and federal partnership that targets uninsured children and pregnant women in families with incomes too high to qualify for most state Medicaid programs, but often too low to afford private coverage. Within federal guidelines, each state determines the design of its individual CHIP program, including eligibility parameters, benefit packages, and administrative procedures. The Children's Health Insurance Program Reauthorization Act of 2009 (CHIPRA) reauthorized the program through FY 2013, and includes many incentives for states to find and enroll more eligible children in both Medicaid and CHIP. CHIPRA also includes a number of quality provisions that aim to monitor and improve care delivered through the Medicaid and CHIP programs. Each state does have a CHIP program, and the names of these programs differ from state to state.
Children’s Health Insurance State Program Director
For the most updated contact, please refer to the CMS listing of CHIP Directors 
.
Community Health Centers in the State
Federally-funded health centers care for you, even if you have no health insurance. You pay what you can afford, based on your income. Health centers provide checkups when you're well, treatment when you're sick, complete care when you're pregnant, immunizations and checkups for your children, dental care and prescription drugs for your family, mental health and substance abuse care if you need it. For a listing of CHCs in Oregon, please use HRSA’s ‘Find A Health Center’ search engine.
Association of Maternal and Child Health Programs (AMCHP) Oregon State Profile
These state profiles provide a snapshot of how the Maternal and Child Health Block Grant works in specific states. The profiles detail the Federal funds appropriated to each state, state match, specific programs funded, numbers of people receiving services and state health needs.
AAP Issue Brief: Implementing the Medical Home in Medicaid, CHIP, and Multistakeholder Demonstration Programs
(AAP Member access only)
The Medical Home Issue Brief serves to provide guidance to AAP chapters working with states to implement medical home projects in Medicaid and CHIP as well as multipayer demonstration programs. It also addresses a number of the policy questions that frequently arise in creating state supports for the medical home.
Child Health Measurement Initiative (CAHMI) Medical Home Portal - Oregon State Profile
These state profiles provide a state’s medical home performance level for all children or children with special health care needs, based on national survey data.
National Adolescent Health Information Center (NAHIC) Adolescent Health Database
The NAHIC database includes national and state-level profiles of key measures of the health of adolescents and young adults, based on Healthy People 2010. Known as the Data Project, the online resource contains information on recent progress in key areas of adolescent health. National-level data is available by gender and race/ethnicity and also state-by-state, with summaries and data tables. The site also features information about data collection and presentation, state and national Excel files and guidance for using this data to improve the health of adolescents and young adults.
2010 KIDS COUNT Databook
The Annie E Casey Foundation has released the 2010 Kids Count report. The annual Kids Count report is a national and state-by-state profile of the well-being of America's children that seeks to enrich discussions concerning ways to secure better futures for all kids. The 2010 Kids Count report data is available as an interactive databook, a complete PDF-format report , and on request, in print. Data and rankings on 10 key indicators of child well-being are available by state, county, and city.
Oregon Medical Home Web site
Oregon Statewide Medical Home Implementation Plan - Promise to the State
Impact of the Oregon Health Plan on Children With Special Health Care Needs
Mitchell JB, Khatutsky G, and Swigonski N. Pediatrics. Apr 2001;107:736-743.
Video on the Oregon Medical Home Network
The Oregon Medical Home Network consists of six primary care practices and the Office of the Oregon Medical Home Project at CDRC who have participated in a 3-year project designed to improve services for families with children and youth having special health care needs. A video is available where you can learn more about the network, meet the community teams, and hear from pediatric clinicians and families on the importance of having a medical home.
