Champions for Inclusive Communities (ChampionsInc) Star Communities
ChampionsInc, a national center designed to support communities in organizing services for families of children and youth with special health care needs (CYSHCN), has created the Star Communities program to recognize exceptional communities that work to support organizing services for families of CYSHCN. To read about the Utah County, UT community selected to be recognized, click here.
AAP: Community Pediatrics Grant Database
The Community Pediatrics Grant Database archives previously funded Community Pediatrics grant projects, including those funded through the CATCH Program, the Healthy Tomorrows Partnership for Children Program, the Community Pediatrics Training Initiative and the Healthy People 2010 Chapter Grants. The database is searchable by seven major categories: target population, health topic, state/territory, project activity, AAP program, AAP district, and project year. Members of the AAP can obtain grantee contact information by searching through the Member Center. If you are not an AAP member, but have questions please contact docbi@aap.org.
The Utah Department of Health has been awarded an HRSA State Implementation Grant for Improving Services for Children and Youth with Autism
Project period: September 1, 2008-August 31, 2011
Contact Person: Rebecca Giles, MPH | E-mail: rgiles@utah.gov
GOALS AND OBJECTIVES:
The Project’s overall goal is to improve access to comprehensive, coordinated health care and related services for children and youth with autism spectrum disorder (ASD) and other developmental disabilities. Utah goals include:
- Improve identification and health care of children with ASD/DD y training family/pediatric Medical Homes , dentists, & other providers on screening, intervention, and community resources;
- Use www.medhomeportal.org to expand ASD/DD evidence-based information available to families and providers;
- Improve community providers' capacity for early recognition of signs of ASD to improve referral, diagnosis, treatment;
- Expand Utah Family Voices' capacity to provide families with support coordination.
Utah Receives Federal Grant to Improve Children's Medical Care
A $10.3 million federal grant will help Utah and Idaho state health departments create a medical home for chronically ill children enrolled in Medicaid or the Children's Health Insurance Program. The money, spread over five years, will help pediatricians and specialists better coordinate care of these children. It will also promote the use of electronic medical records among those providers.
Children's Health Insurance Program Reauthorization Act (CHIPRA) Grants
Utah is a lead on one of 10 CHIPRA grants, representing single-state projects and multi-state collaborations, from HHS to improve health care quality and delivery systems for children enrolled in Medicaid and the Children's Health Insurance Program (CHIP). The money will help states implement and evaluate provider performance measures and utilize health information technologies such as pediatric electronic health records and other quality improvement initiatives.
American Academy of Pediatrics (AAP) Chapter
Academy chapters are organized groups of pediatricians and other health care professionals working to achieve AAP goals in their communities. Chapters are the channels of representation for individual members of the Academy. Please contact your local chapter for additional state resources
Utah AAP Chapter
Cathy Oyler, Intermountain Ped Society
Address: 3029 Holderhill Lane, Salt Lake City , UT 84118-2276
E-mail: office@aaputah.org
American Academy of Family Physicians (AAFP) Chapter - Utah
The American Academy of Family Physicians is one of the largest national medical organizations, representing more than 94,000 family physicians, family medicine residents, and medical students.
Family Voices Chapter
Family Voices aims to achieve family-centered care for all children and youth with special health care needs and/or disabilities. Through a national network, they provide families tools to make informed decisions, advocate for improved public and private policies, build partnerships among professionals and families, and serve as a trusted resource on health care
Family Voices of Utah
Gina Pola-Money
Phone: 801/584-8236 | Fax: 801-808-4220 | E-mail: utahfamilyvoices@juno.com
Family-to-Family Health Information Centers (F2F HICs)
F2F HICs are non-profit organizations that help families of children and youth with special health care needs (CYSHCN) and the professionals who serve them. F2F HICs are in a unique position to help families because they are typically staffed/run by parents of CYSHCN themselves, and as parents, they have traveled through the maze of services and programs designed to help CYSHCN. Staff at F2F HICs understand the issues that families face, provide advice, offer a multitude of resources, and tap into a network of other families and professionals for support and information. Family Voices, through the National Center for Family / Professional Partnerships, provides technical assistance, training, and connections to other F2F HICs and partnering organizations.
Utah Parent Center
Address: 2290 E 4500 S Suite 170, Salt Lake City, UT 84117
Phone: 801/808-4420 | Toll-Free Phone: 800/829-8200
Primary Contact: Gina Pola-Money | Phone: 801/808-4220
Title V Block Grant to States
Title V of the Social Security Act is one of the largest Federal block grant programs. It leads the nation in ensuring the health of all mothers, infants, children, adolescents, and children with special health care needs (CSHCN). Title V is administered by the Maternal and Child Health Bureau (MCHB) as part of the Health Resources and Services Administration, U.S. Department of Health and Human Services.
Maternal and Child Health Contact
Nan Streeter, MCH Director, Utah Department of Health
Address: PO Box 142001, Salt Lake City , Utah 84114-2001
Phone: 801/538-6869 | Fax: 801538-9409 | E-mail: nanstreeter@utah.gov
Title V and Children with Special Health Care Needs
MCHB Objective: Support development and implementation of comprehensive, culturally competent, coordinated systems of care for the estimated 18 million US children who have or are at risk for chronic physical, developmental, behavioral or emotional conditions and who also require health and related services of a type or amount beyond that required by children generally.
Children with Special Health Care Needs (CSHCN) Contact
Holly Williams, CSHCN Director
Address: PO Box 144610, Salt Lake City , Utah 84114-4610
Phone: 801/584-8202 | Fax: 801/584-8488 | E-mail: hollywilliams@utah.gov
Early Hearing Detection & Intervention (EHDI) Contact(s)
State EHDI programs promote universal newborn hearing screening, develop effective tracking and follow-up as a part of the public health system, promote appropriate and timely diagnosis of the hearing loss, prompt enrollment in appropriate Early Intervention, ensure a medical home for all newborns and strive to eliminate geographic and financial barriers to service access.
State Newborn Screening & Genetics Programs
Utah Newborn Screening Program and Contact Information
From the National Newborn Screening and Genetics Resource Center Web site
Utah Genetic Services and Contact Information
From the National Newborn Screening and Genetics Resource Center Web site
Newborn Screening and Genetics Collaborative – HRSA Region 6
Translating research into practical health care services and systems to improve the health and quality of life of individuals with heritable disorders through Collaboration and Partnership
Early Intervention/Part C Coordinator
The Program for Infants and Toddlers with Disabilities (Part C of IDEA) is a federal grant program that assists states in operating a comprehensive statewide program of early intervention services for infants and toddlers with disabilities, ages birth through age 2 years, and their families.
Susan Ord, Part C Coordinator
Phone: 801/584-8441| Fax: 801/584-8496 | E-mail: sord@utah.gov
Section 619/Special Education for ages 3-5 Coordinators
This program provides free appropriate public education (FAPE) for children, ages 3 through 5 years, with disabilities.
Connie Nink, 619 Coordinator
Phone: 801/538-7948 | Fax: 801/538-7991 | E-mail: cnink@usoe.k12.ut.us
State Interagency Coordinating Council (ICC) Chairs
The ICC advises appropriate agencies on the unmet needs in early childhood special education and early intervention programs for children with disabilities, assists in the development and implementation of policies that constitute a statewide system, and assists all appropriate agencies in achieving full participation, coordination, and cooperation for implementation of statewide system.
Eileen Chamberland
Phone: 801/221-9930 ext. 110 | Fax 801/221-1649 | E-mail: echamberland@kotm.org
Tandi Cichoski
Phone: 801/374-3539 | E-mail: dcichoski2002@yahoo.com
Debbie Justice
Phone: 435/673-5353 | Fax: 435/673-5393 | E-mail: djustice@tlc4families.org
Medicaid
Medicaid is Title XIX of the Social Security Act and is a federal/state entitlement program that provides medical assistance to certain individuals and families with low incomes and/or special health care needs. Medicaid is of unique importance to children; together with the Children's Health Insurance Program, Medicaid insures over 1 in 4 children in the United States, with millions more eligible but currently unenrolled. The Early and Periodic Screening, Diagnosis and Treatment (EPSDT) program is a critical component of Medicaid, which guarantees that children enrolled in Medicaid are screened for medical or developmental problems early, and that necessary treatments and services are provided.
Medicaid State Director
For the most updated contact, please refer to the National Association of State Medicaid Directors Member List.
State Waiver Information
Waivers are the result of a process that allows state Medicaid agencies to apply for and receive permission from HCFA to provide services not otherwise covered by Medicaid and/or to do so in ways not described by the Social Security Act. Most Medicaid managed care programs require Waivers. The Waivers, which can differ greatly, are known by their numbers (1115, 1119), or as home-and community-based, or as Katie Beckett Waivers.
Children's Health Insurance Program (CHIP)
CHIP is Title XXI of the Social Security Act and is a state and federal partnership that targets uninsured children and pregnant women in families with incomes too high to qualify for most state Medicaid programs, but often too low to afford private coverage. Within federal guidelines, each state determines the design of its individual CHIP program, including eligibility parameters, benefit packages, and administrative procedures. The Children's Health Insurance Program Reauthorization Act of 2009 (CHIPRA) reauthorized the program through FY 2013, and includes many incentives for states to find and enroll more eligible children in both Medicaid and CHIP. CHIPRA also includes a number of quality provisions that aim to monitor and improve care delivered through the Medicaid and CHIP programs. Each state does have a CHIP program, and the names of these programs differ from state to state.
Children’s Health Insurance State Program Director
For the most updated contact, please refer to the CMS listing of CHIP Directors 
.
Community Health Centers in the State
Federally-funded health centers care for you, even if you have no health insurance. You pay what you can afford, based on your income. Health centers provide checkups when you're well, treatment when you're sick, complete care when you're pregnant, immunizations and checkups for your children, dental care and prescription drugs for your family, mental health and substance abuse care if you need it. For a listing of CHCs in Utah, please use HRSA’s ‘Find A Health Center’ search engine.
Association of Maternal and Child Health Programs (AMCHP) Utah State Profile
These state profiles provide a snapshot of how the Maternal and Child Health Block Grant works in specific states. The profiles detail the Federal funds appropriated to each state, state match, specific programs funded, numbers of people receiving services and state health needs.
AAP Issue Brief: Implementing the Medical Home in Medicaid, CHIP, and Multistakeholder Demonstration Programs
(AAP Member access only)
The Medical Home Issue Brief serves to provide guidance to AAP chapters working with states to implement medical home projects in Medicaid and CHIP as well as multipayer demonstration programs. It also addresses a number of the policy questions that frequently arise in creating state supports for the medical home.
Child Health Measurement Initiative (CAHMI) Medical Home Portal - Utah State Profile
These state profiles provide a state’s medical home performance level for all children or children with special health care needs, based on national survey data.
National Adolescent Health Information Center (NAHIC) Adolescent Health Database
The NAHIC database includes national and state-level profiles of key measures of the health of adolescents and young adults, based on Healthy People 2010. Known as the Data Project, the online resource contains information on recent progress in key areas of adolescent health. National-level data is available by gender and race/ethnicity and also state-by-state, with summaries and data tables. The site also features information about data collection and presentation, state and national Excel files and guidance for using this data to improve the health of adolescents and young adults.
2010 KIDS COUNT Databook
The Annie E Casey Foundation has released the 2010 Kids Count report. The annual Kids Count report is a national and state-by-state profile of the well-being of America's children that seeks to enrich discussions concerning ways to secure better futures for all kids. The 2010 Kids Count report data is available as an interactive databook, a complete PDF-format report , and on request, in print. Data and rankings on 10 key indicators of child well-being are available by state, county, and city.
URLEND Utah Regional Leadership Education in Neurodevelopmental Disabilities
The purpose of the URLEND Program is to provide opportunities for personnel from a variety of health related disciplines to increase knowledge and skills in providing services and supports to children with neurodevelopmental disabilities and their families as part of an interdisciplinary team.
Utah Pediatric Partnership to Improve Healthcare Quality
A collaborative effort by organziations and individuals with a common interest in promoting evidence-based best practices and assisting physicians in implementing quality improvement at a practice level.
Sandra Debry, MBA
E-mail: Sandra.debry@hsc.utah.edu
Utah State University/ Centers for Persons with Disabilities and Early Intervention Research Institute
Utah Clicks (previously “Opening Utah’s Doors”)
Helps families find and apply for state programs and services. You can fill out and complete applications for a variety of Utah programs using this streamlined process.
Utah Collaborative Medical Home
Measuring and Monitoring
Utah Pediatric Partnership to Improve Healthcare Quality
A
collaborative effort by organizations and individuals with a common interest in promoting evidence-based best practices and assisting physicians in implementing quality improvement at the practice level.
State Newborn Screening & Genetics Programs
This program provides a statewide system for early identification and referral of newborns with metabolic, endocrine and hematologic disorders that can produce mental retardation, disability or death if not treated early. The disorders are congenital hypothyroidism, galactosemia, hemoglobinopathies, congenital adrenal hyperplasia, biotinidase, and disorders of organic acid, fatty acid and amino acid metabolism. In 2005, 99.5% of all Utah newborns (51,517 births) were screened for the state’s mandated disorders.
Newborn Hearing Screening / Early Hearing Detection and Intervention (EHDI)
CSHCN is responsible for the legislative mandate to provide hearing screening for all Utah’s newborns and to keep a current database of the results and activities concurrent with this service. In 2007, 98% (52,835) of all Utah newborns were screened for hearing loss in 42 birthing facilities statewide. In 2005, Hearing Speech and Vision Services (of CSHCN) received a three-year HRSA grant to help improve the statewide system and reduce loss to follow-up. HSVS also collaborates with UDOH programs to improve data integration for newborns and infants with funding from a CDC EHDI grant.
