Champions for Inclusive Communities (ChampionsInc) Star Communities
ChampionsInc, a national center designed to support communities in organizing services for families of children and youth with special health care needs (CYSHCN), has created the Star Communities program to recognize exceptional communities that work to support organizing services for families of CYSHCN. To read about the New Berlin, WI community selected to be recognized, click here.
AAP: Community Pediatrics Grant Database
The Community Pediatrics Grant Database archives previously funded Community Pediatrics grant projects, including those funded through the CATCH Program, the Healthy Tomorrows Partnership for Children Program, the Community Pediatrics Training Initiative and the Healthy People 2010 Chapter Grants. The database is searchable by seven major categories: target population, health topic, state/territory, project activity, AAP program, AAP district, and project year. Members of the AAP can obtain grantee contact information by searching through the Member Center. If you are not an AAP member, but have questions please contact docbi@aap.org.
Improving Services for Children and Youth with Autism Spectrum Disorder (ASD) and other Developmental Disabilities - The Children and Youth with Special Health Care Needs (CYSHCN) Program received a federal Maternal and Child Health Bureau (MCHB) State Implementation Grant
Duration of Program: September 2008 –August 2011
Contact Person: Amy Whitehead | E-mail: Amy.Whitehead@dhs.wisconsin.gov
This grant will bring the key stakeholders together to address coordination and collaboration, establishing a statewide Community of Practice on ASD. Community-based activities include outreach activities to reduce stigma associated with ASD, physician, community and family training to increase early identification, referrals to appropriate service entities and the promotion of the Medical Home approach to care.
Wisconsin Early Hearing Detection and Intervention Quality Improvement Project
Duration of Program: April 2008-March 2010
Contact Person: Elizabeth Seeliger | E-mail: Elizabeth.seeliger@dhs.wisconsin.gov
The Wisconsin Sound Beginnings (WSB) program works to reduce the number of infants lost to follow-up throughout the early hearing detection and intervention (EHDI) system. WSB will promote adherence to quality assurance standards within universal newborn hearing screening programs and successful family follow-through. Quality improvement models, interdisciplinary linkages, and parent-to-parent support tools will be utilized to improve systems and increase parent satisfaction.
The Wisconsin Community-Based System of Oral Health for Children and Youth with Special Healthcare Needs (CYSHCN)
Duration of Program: September 2007- August 2011
Contact Person: Diane Flanagan, E-mail: dflanagan@chw.org
The goal of this initiative is to organize community resources to increase access to comprehensive dental care for CYSHCN. The system will improve the oral health of CYSHCN by developing and coordinating resources and systems throughout the state of Wisconsin. Training will be provided to dental health providers to increase their knowledge and skills in treating CYSHCN. A strong case management and family/caregiver education and advocacy component is additionally incorporated into the context of this broad based initiative.
American Academy of Pediatrics (AAP) Chapter - Wisconsin
Academy chapters are organized groups of pediatricians and other health care professionals working to achieve AAP goals in their communities. Chapters are the channels of representation for individual members of the Academy. Please contact your local chapter for additional state resources.
American Academy of Family Physicians (AAFP) Chapter - Wisconsin
The American Academy of Family Physicians is one of the largest national medical organizations, representing more than 94,000 family physicians, family medicine residents, and medical students.
Family Voices Chapter - Wisconsin
Family Voices aims to achieve family-centered care for all children and youth with special health care needs and/or disabilities. Through a national network, they provide families tools to make informed decisions, advocate for improved public and private policies, build partnerships among professionals and families, and serve as a trusted resource on health care
Family-to-Family Health Information Centers (F2F HICs)
F2F HICs are non-profit organizations that help families of children and youth with special health care needs (CYSHCN) and the professionals who serve them. F2F HICs are in a unique position to help families because they are typically staffed/run by parents of CYSHCN themselves, and as parents, they have traveled through the maze of services and programs designed to help CYSHCN. Staff at F2F HICs understand the issues that families face, provide advice, offer a multitude of resources, and tap into a network of other families and professionals for support and information. Family Voices, through the National Center for Family / Professional Partnerships, provides technical assistance, training, and connections to other F2F HICs and partnering organizations.
Family Voices of Wisconsin
Address: PO Box 55029, Madison, WI 53705
Phone: 608/239-1364
Primary Contacts: Liz Hecht, Barbara Katz
Phone: 608/233-3726
(MCHB: 6/2007-5/2010)
Title V Block Grant to States
Title V of the Social Security Act is one of the largest Federal block grant programs. It leads the nation in ensuring the health of all mothers, infants, children, adolescents, and children with special health care needs (CSHCN). Title V is administered by the Maternal and Child Health Bureau (MCHB) as part of the Health Resources and Services Administration, U.S. Department of Health and Human Services.
Maternal and Child Health Contact
Linda Hale, Section Chief
Address: 1 West Wilson Street, Madison, WI 53703
Phone: 608/267-7174 | Fax: 608/267-3824 | E-mail: Linda.Hale@Wisconsin.gov
Title V and Children with Special Health Care Needs
MCHB Objective: Support development and implementation of comprehensive, culturally competent, coordinated systems of care for the estimated 18 million U.S. children who have or are at risk for chronic physical, developmental, behavioral or emotional conditions and who also require health and related services of a type or amount beyond that required by children generally.
Children with Special Health Care Needs (CSHCN) Contact
Sharon Fleischfresser, CYSCHN Medical Director
Address: 1 West Wilson Street, Madison, WI 53703
Phone: 608/266-3674 | Fax: 608/267-3824 | E-mail: Sharon.Fleischfresser@Wisconsin.gov
Early Hearing Detection & Intervention (EHDI) Contact(s)
State EHDI programs promote universal newborn hearing screening, develop effective tracking and follow-up as a part of the public health system, promote appropriate and timely diagnosis of the hearing loss, prompt enrollment in appropriate Early Intervention, ensure a medical home for all newborns and strive to eliminate geographic and financial barriers to service access.
State Newborn Screening & Genetics Programs
Wisconsin Genetics Services and Contact Information
From the National Newborn Screening and Genetics Resource Center Web site
Wisconsin Newborn Screening Program and Contact Information
From the National Newborn Screening and Genetics Resource Center Web site
Newborn Screening & Genetics Collaborative – HRSA Region 4
Translating research into practical health care services and systems to improve the health and quality of life of individuals with heritable disorders through Collaboration and Partnership
Early Intervention/Part C Coordinator
The Program for Infants and Toddlers with Disabilities (Part C of IDEA) is a federal grant program that assists states in operating a comprehensive statewide program of early intervention services for infants and toddlers with disabilities, ages birth through age 2 years, and their families.
No contact information currently listed.
Section 619/Special Education for ages 3-5 Coordinators
This program provides free appropriate public education (FAPE) for children, ages 3 through 5 years, with disabilities.
No contact information currently listed.
State Interagency Coordinating Council (ICC) Chairs
The ICC advises appropriate agencies on the unmet needs in early childhood special education and early intervention programs for children with disabilities, assists in the development and implementation of policies that constitute a statewide system, and assists all appropriate agencies in achieving full participation, coordination, and cooperation for implementation of statewide system.
No contact information currently listed.
Medicaid
Medicaid is Title XIX of the Social Security Act and is a federal/state entitlement program that provides medical assistance to certain individuals and families with low incomes and/or special health care needs. Medicaid is of unique importance to children; together with the Children's Health Insurance Program, Medicaid insures over 1 in 4 children in the United States, with millions more eligible but currently unenrolled. The Early and Periodic Screening, Diagnosis and Treatment (EPSDT) program is a critical component of Medicaid, which guarantees that children enrolled in Medicaid are screened for medical or developmental problems early, and that necessary treatments and services are provided.
Medicaid State Director
For the most updated contact, please refer to the National Association of State Medicaid Directors Member List.
State Waiver Information
Waivers are the result of a process that allows state Medicaid agencies to apply for and receive permission from HCFA to provide services not otherwise covered by Medicaid and/or to do so in ways not described by the Social Security Act. Most Medicaid managed care programs require Waivers. The Waivers, which can differ greatly, are known by their numbers (1115, 1119), or as home-and community-based, or as Katie Beckett Waivers.
Children's Health Insurance Program (CHIP)
CHIP is Title XXI of the Social Security Act and is a state and federal partnership that targets uninsured children and pregnant women in families with incomes too high to qualify for most state Medicaid programs, but often too low to afford private coverage. Within federal guidelines, each state determines the design of its individual CHIP program, including eligibility parameters, benefit packages, and administrative procedures. The Children's Health Insurance Program Reauthorization Act of 2009 (CHIPRA) reauthorized the program through FY 2013, and includes many incentives for states to find and enroll more eligible children in both Medicaid and CHIP. CHIPRA also includes a number of quality provisions that aim to monitor and improve care delivered through the Medicaid and CHIP programs. Each state does have a CHIP program, and the names of these programs differ from state to state.
Children’s Health Insurance State Program Director
For the most updated contact, please refer to the CMS listing of CHIP Directors 
.
Community Health Centers in the State
Federally-funded health centers care for you, even if you have no health insurance. You pay what you can afford, based on your income. Health centers provide checkups when you're well, treatment when you're sick, complete care when you're pregnant, immunizations and checkups for your children, dental care and prescription drugs for your family, mental health and substance abuse care if you need it. For a listing of CHCs in Wisconsin, please use HRSA’s ‘Find A Health Center’ search engine.
Association of Maternal and Child Health Programs (AMCHP) Wisconsin State Profile
These state profiles provide a snapshot of how the Maternal and Child Health Block Grant works in specific states. The profiles detail the Federal funds appropriated to each state, state match, specific programs funded, numbers of people receiving services and state health needs.
AAP Issue Brief: Implementing the Medical Home in Medicaid, CHIP, and Multistakeholder Demonstration Programs
(AAP Member access only)
The Medical Home Issue Brief serves to provide guidance to AAP chapters working with states to implement medical home projects in Medicaid and CHIP as well as multipayer demonstration programs. It also addresses a number of the policy questions that frequently arise in creating state supports for the medical home.
Child Health Measurement Initiative (CAHMI) Medical Home Portal - Wisconsin State Profile
These state profiles provide a state’s medical home performance level for all children or children with special health care needs, based on national survey data.
National Adolescent Health Information Center (NAHIC) Adolescent Health Database
The NAHIC database includes national and state-level profiles of key measures of the health of adolescents and young adults, based on Healthy People 2010. Known as the Data Project, the online resource contains information on recent progress in key areas of adolescent health. National-level data is available by gender and race/ethnicity and also state-by-state, with summaries and data tables. The site also features information about data collection and presentation, state and national Excel files and guidance for using this data to improve the health of adolescents and young adults.
2010 KIDS COUNT Databook
The Annie E Casey Foundation has released the 2010 Kids Count report. The annual Kids Count report is a national and state-by-state profile of the well-being of America's children that seeks to enrich discussions concerning ways to secure better futures for all kids. The 2010 Kids Count report data is available as an interactive databook, a complete PDF-format report , and on request, in print. Data and rankings on 10 key indicators of child well-being are available by state, county, and city.
Parent to Parent of Wisconsin
Provides parent support through one-to-one connections with other parents who have firsthand knowledge about the experience of having a child with special needs.
Building Medical Home Partnerships: A Wisconsin Toolkit
A web-based resource for Wisconsin health care providers and families. The Toolkit is a roadmap to the tested tools and practice strategies developed by Medical Home teams both nationally and in Wisconsin. The Toolkit contains short videos where providers and family members share their experiences and advice on quality improvement. Resources include sample care plans, appointment scripts and coding charts – all easily adapted for practice use.
Wisconsin’s five Regional Centers for Children and Youth with Special Health Care Needs
Provides support to medical practitioners in strengthening their Medical Homes and assistance and support to families, helping to link them to:
- Medical Homes
- Information on a child’s individual needs
- Connections to community services
- Assistance locating doctors and dental care
- Health benefits assistance
- Transition planning
- Parent to parent support
The Great Lakes Inter-Tribal Council's Children/Youth with Special Health Care Needs (CYSHCN) Project provides assistance to Native American families of children with special needs.
Wisconsin First Step
A 24-hour hotline for families and providers who support children and youth with special needs. 800/642-7837
Wisconsin Birth-3 Program
A comprehensive statewide program of early intervention for infants and toddlers with disabilities, ages birth through age 2 years and their families. Visit the Birth to 3 Directory to find the program in your county.
Other programs include:
