Medical Homes in Iowa
This page is designed to keep you informed about events and activities happening in Iowa that will help improve access to medical homes for children with special health care needs (CSHCN).

Medical Home Initiatives
This section provides information on state medical home initiatives/programs. States that are a part of the mentorship network will have a "Promise to the State" which outlines how they will achieve ensuring that all children have a medical home by 2010. This is based on the Healthy People 2010 goals which is a 10 year action plan to achieve and measure success for all CSHCN.

Iowa Medical Home Team Contact:

Name: Jeffrey G. Lobas, MD, Ed.D, MPA
Project Director-Child Health Specialty Clinics
Contact: Phone: 319-356-1118 Email: jeffrey-lobas@uiowa.edu

Name: Brenda Moore, CPNP, Nurse Coordinator - Child Health Specialty Clinics
Contact: Phone: 319-353-6172 | Email: brenda-moore@uiowa.edu

Iowa Statewide Medical Home Implementation Plan - Promise to the State www.medicalhomeinfo.org/grant/states/IowaPromise.pdf

The University of Iowa has been awarded an MCHB State Implementation Grant for Integrated Community Systems of Services for CSHCN
Contact Person: Brenda Moore brenda-moore@uiowa.edu
Goals and Objectives:
Goal 1: Community-based services will be organized so that families can use them easily. Obj 1.1: Iowa’s primary care providers (pediatrics and family practice) will assess their CYSHCN for care coordination and case management (cc/cm) needs. Obj 1.2: Iowa’s primary care providers (pcp’s) will be linked to a designated “external” care coordination resource. Obj 1.3: Iowa’s pcp’s will have a structure and procedures for providing “internal” cc/cm services. Obj 1.4: Title V CYSHCN Program care coordinators will be competent in cc/cm knowledge and skills. Obj 1.5: Children (0-21) with severe behavioral disorders will be served in their communities using innovative cc/cm methods. Obj 1.6: CYSHCN will have access to Title V care coordinators to help transition to a life of self-determination.
Goal 2: All CYSHCN will have access to comprehensive health and related services through a medical home. Obj 2.1: Thirty pcp’s per year will participate in a learning collaborative dedicated to quality improvement in the medical home model. Obj 2.2: Sustainability of medical homes will be assured through relationships with organizations dedicated to performance improvement. Obj 2.3: Formal recognition will be applied to pcp’s that achieve progress toward building a medical home.
Goal 3: All children will receive early and continuous screening for special health care needs. Obj 3.1: Standardized early childhood developmental screening procedures will be available in all pcp’s. Obj 3.2: Children, 0-3, identified as at-risk through screening will be tracked by a database in a statewide public agency

MCHB Medical Home Grant
Project Period: 3/31/2002-9/30/05
Purpose: The overall purpose of the project is to facilitate the implementation of the medical home model in
community-based family physician and pediatric practices statewide. Essential staff include an office-based care coordinator, parent consultant, and, most essential, physician dedicated to actualizing the medical home concept. CHSC will provide the expertise necessary for the office practice to establish linkages with specialty services and other community-based services. Advice will be offered regarding restructuring the physicians’ office, constructing Individualized Health Plans, fair reimbursement, and practicing in a family-centered, culturally competent manner.

Related Grant Initiatives
This section provides information on current state grants that are working on medical home initiatives. This includes the grant abstract as well as key contacts for the grant.

Genetics Grant
Purpose: Provide the policy development and assurance necessary to establish an integrated data repository for Iowa’s genetics and selected MCH population based and direct health care programs; Develop public health infrastructure to ensure effective and efficient newborn surveillance and metabolic screening systems in Iowa.

Healthy & Ready to Work Grant
Project Period: June 1, 2001 through May 31, 2005
Purpose: This project plans to develop a medical home that effectively transitions YSHCN to the adult health care system; assure family and youth involvement in all aspects of program planning; and promote collaboration between local programs working with YSHCN. The grant demonstrates the efficacy of providing a family medical home model that incorporates Telemedicine/Telehealth training, and also includes: coordinated care by specially trained project staff; expanded use of the Youth Advisory Committee; services integrated into University of Iowa Health Care; and a strong private sector employer strategy.

Partners in the State
This section provides information on who in the state (individuals and agencies) are working together to create medical homes for children.

American Academy of Pediatrics (AAP) Chapter:www.iowapeds.org

American Academy of Family Physicians (AAFP) Chapter: www.iaafp.org/

Title V CSHCN Program - The Child Health Specialty Clinics (CHSC): www.uihealthcare.com/depts/state/chsc/index.html

Title V Block Grant to States
Title V of the Social Security Act is one of the largest Federal block grant programs. It leads the nation in ensuring the health of all mothers, infants, children, adolescents, and children with special health care needs (CSHCN). Title V is administered by the Maternal and Child Health Bureau (MCHB) as part of the Health Resources and Services Administration, U.S. Department of Health and Human Services.

Title V and Children with Special Health Care Needs
MCHB Objective: Support development and implementation of comprehensive, culturally competent, coordinated systems of care for the estimated 18 million U.S. children who have or are at risk for chronic physical, developmental, behavioral or emotional conditions and who also require health and related services of a type or amount beyond that required by children generally.

Early Hearing Detection & Intervention (EHDI) Contact(s):
State EHDI programs promote universal newborn hearing screening, develop effective tracking and follow-up as a part of the public health system, promote appropriate and timely diagnosis of the hearing loss, prompt enrollment in appropriate Early Intervention, link newborns to a medical home and strive to eliminate geographic and financial barriers to service access.

Name: Denise Ramsey
Contact: Phone: 515-242-5639 | Fax: 515-242-6384
E-mail: dramsey@idph.state.ia.us

State Genetics Program: www.idph.state.ia.us/genetics/default.asp

Healthy Ready to Work: www.medicine.uiowa.edu/hrtw/
(HRTW) addresses the disruptions in health care services which may compromise the health and potential for independence of young people with special health care needs who are transitioning to the working world.
The goal of this project is to promote a seamless system of care that is coordinated, developmentally appropriate, psychosocially sound, and comprehensive to help with this transition.

Early ACCESS - Early Intervention/Part C Coordinator:
The Program for Infants and Toddlers with Disabilities (Part C of IDEA) is a federal grant program that assists states in operating a comprehensive statewide program of early intervention services for infants and toddlers with disabilities, ages birth through age 2 years, and their families.

Name: Julie Curry, Part C Coordinator
Contact: Phone: (515) 281-5437 | Fax: (515) 742-6019 | Email: julie.curry@ed.state.ia.us
Web site: www.state.ia.us/educate/ecese/cfcs/ea/index.html

Section 619/ Preschool Grants Program of the Individuals with Disabilities Education Act (IDEA). This program provides free appropriate public education (FAPE) for children, ages 3 through 5 years, with disabilities:

Name: Dee Gethmann, Early Childhood Specialist
Contact: Phone: (515) 281-5502 | Fax: (515) 242-6019
Email: dee.gethmann@ed.state.ia.us
Web site: www.state.ia.us/educate/ecese/cfcs/index.html

State Interagency Coordinating Council (ICC) Chairs:
The ICC advises appropriate agencies on the unmet needs in early childhood special education and early intervention programs for children with disabilities, assists in the development and implementation of policies that constitute a statewide system, and assists all appropriate agencies in achieving full participation, coordination, and cooperation for implementation of statewide system.

Name: Georgia Woodward, ICC Chair
Contact: Phone: (515) 967-5622 | Email: georgwood@mchis.com

Resources
State Waiver Information: www.cms.hhs.gov/MedicaidStWaivProgDemoPGI/08_WavMap.asp
Waivers are the result of a process that allows state Medicaid agencies to apply for and receive permission from HCFA to provide services not otherwise covered by Medicaid and/or to do so in ways not described by the Social Security Act. Most Medicaid managed care programs require Waivers. The Waivers, which can differ greatly, are known by their numbers (1115, 1119), or as home-and community-based, or as Katie Beckett Waivers.

Educational Initiatives
This section provides information on training initiatives on the medical home. Some states will discuss their outreach projects in relation to physicians, families, and the community.

No information is currently available for this category.

Screening Initiatives
This section provides information on surveillance and screening initiatives in the state.

State Newborn Screening & Genetics Programs: genes-r-us.uthscsa.edu/resources.htm

• State Newborn Screening Program Links
• State Genetics Program Links
• Regional Genetics and Newborn Screening Collaborative Links
• Newborn Screening State Contact Fact Sheet

Assuring Better Health and Child Development (ABCD) Program:
http://12.109.133.213/_docdisp_page.cfm?LID=51C27431-9BB8-4DC0-89D374B79C8A8900
The ABCD II Initiative, launched in 2003, is designed to assist states in building the capacity of Medicaid programs to deliver care that supports children’s healthy mental development.

Family Corner
Family Voices: www.familyvoices.org/st/IA.htm
Partnering with professionals and families to advocate for health care services that are family-centered, community-based, comprehensive, coordinated and culturally competent.

NAMI of Iowa (National Voice of Mental Illness): www.nami.org/Template.cfm?Section=Your_Local_NAMI&Template=/CustomSource/AffiliateFinder.cfm&State=IA
Education, advocacy and support for persons with brain disorders (mental illnesses) and their families.

ASK Family Resource Center: www.askresource.org/
The ASK Family Resource Center is a "one-stop-shop" for children and adults with disabilities and their families. Through its member organizations, the Center provides a broad range of information, advocacy, support, training, and direct services.

Iowa COMPASS: www.medicine.uiowa.edu/iowacompass/
Iowa's free, statewide information and referral service for people with disabilties, their families, service provicers, and other members of the community. They maintain information on over 6,000 local, state, and national agencies and programs. Information specialists are available Monday through Friday, 8:00 a.m. to 5:00 p.m.

Early Hearing Detection & Intervention (EHDI) Information for Parents:
Description of EHDI Program http://www.medicalhomeinfo.org/screening/State/iowa.html

Family Village: www.familyvillage.wisc.edu/index.htmlx
A global community that integrates information, resources, and communication opportunities on the Internet for persons with cognitive and other disabilities, for their families, and for those that provide them services and support. This site offers informational resources on specific diagnoses, communication connections, adaptive products and technology,adaptive recreational activities, education, worship, health issues, disability-related media and literature, and much, much more!

State Resources on the Internet: www.medicalhomeinfo.org/states/index.html#res

Note: The information provided on the state pages was submitted by the state medical home teams.As this is not an exhaustive list, please let us know if you have additions for your state resource page. You can contact us at: medical home@aap.org.

http://www.medicalhomeinfo.org/states/state /Iowa.html
Last Updated August 10, 2006