Medical Homes in Arizona
This page is designed to keep you informed about events and activities happening in Arizona that will help improve access to medical homes for children with special health care needs (CSHCN).

Medical Home Initiatives
This section provides information on state medical home initiatives/programs. States that are a part of the mentorship network will have a "Promise to the State" which outlines how they will achieve ensuring that all children have a medical home by 2010. This is based on the Healthy People 2010 goals which is a 10 year action plan to achieve and measure success for all CSHCN.

Arizona Medical Home Team Contact:

Name: Karyn Burstein PhD
Contact: Phone: 480-948-8783 | Email: k.burstein@swifamilies.org
State Team Roster available at: www.medicalhomeinfo.org/model/downloads/State Teams/Arizona Medical Home Team.doc

The Arizona Department of Health Service has been awarded an MCHB State Implementation Grant for Integrated Community Systems of Services for CSHCN
Contact Person: Joan Agostinelli, Acting Office Chief, 602-542-2584
Goals and Objectives:
A major goal is the creation a statewide forum where stakeholders from governmental and state agencies, as well as local, and community level providers, children and youth with special health care needs (c/yshcn), and their families can review activities of the various agencies and communities, plan needs assessments, and study alternative funding for services for c/yshcn within the state of Arizona. Several task-specific subcommittees will conduct needs assessments, develop educational materials, and provide input and evaluation of quality improvement activities. Each committee will involve yshcn and their families. Three groups will consist primarily of youth and families who will be charged with integrating the family perspective into every agency and community service organization. The second major goal of this proposal is to study the impact of providing screening and care coordination to different clinical settings, including school-based clinics with the intent of evaluating the cost-effectiveness of this service in reducing redundancy, enhancing access, and ensuring higher quality of care outcomes. The impact of insurance coverage will be evaluated in each of the clinical settings. The culmination of all of the activities will result in a white paper that will be sent to the governor.

Arizona Statewide Medical Home Implementation Plan: Promise to the State (www.medicalhomeinfo.org/grant/states/Arizonaplan.pdf)

MCHB Medical Home Grant:
Project Period: 3/31/2002—3/30/05
Purpose: The purpose of the proposed project is to increase access to medical homes for all of Arizona’s CSHCN by developing a statewide medical home training and support network and enabling 8 existing practices to become medical homes.

Related Grant Initiatives
This section provides information on current state grants that are working on medical home initiatives. This includes the grant abstract as well as key contacts for the grant.

Healthy & Ready to Work Grant
Project Period: June 1, 2001 through May 31, 2005
Purpose: The proposed project develops, implements and evaluates a transition model that addresses core issues identified by the National Agenda, “Achieving and Measuring Success for Children with Special Health Care Needs by 2010”

1. All youth with special health care needs (YSHN) receive services necessary to make appropriate transitions to all aspects of adult life, including adult health care, work, and independence.
2. Families and YSHN participate in decision-making at all levels and are satisfied with the services they receive.

Hemophilia Grant
Project Period: June 1, 2002 through May 31, 2005
Purpose: The purpose of this proposal is to continue the family-centered, community-based comprehensive hemophilia care supporting the successful existing structure of Hemophilia Treatment Centers (HTCs) in MCHB Region VIII.

Partners in the State
This section provides information on who in the state (individuals and agencies) are working together to create medical homes for children.

American Academy of Pediatrics (AAP) Chapter:www.azaap.org/

American Academy of Family Physicians (AAFP) Chapter: www.azafp.org/

Title V CSHCN Program - Office for Children with Special Health Care Needs:
www.azdhs.gov/phs/ocshcn/index.htm

Title V Block Grant to States
Title V of the Social Security Act is one of the largest Federal block grant programs. It leads the nation in ensuring the health of all mothers, infants, children, adolescents, and children with special health care needs (CSHCN). Title V is administered by the Maternal and Child Health Bureau (MCHB) as part of the Health Resources and Services Administration, U.S. Department of Health and Human Services.

Title V and Children with Special Health Care Needs
MCHB Objective: Support development and implementation of comprehensive, culturally competent, coordinated systems of care for the estimated 18 million U.S. children who have or are at risk for chronic physical, developmental, behavioral or emotional conditions and who also require health and related services of a type or amount beyond that required by children generally.

Early Hearing Detection & Intervention (EHDI) Contact(s):
State EHDI programs promote universal newborn hearing screening, develop effective tracking and follow-up as a part of the public health system, promote appropriate and timely diagnosis of the hearing loss, prompt enrollment in appropriate Early Intervention, ensure a medical home for all newborns and
strive to eliminate geographic and financial barriers to service access.

Name: Smejkal Ruthann; Ph.D.
Contact: Phone: 602-364-1410 | Fax: 602-364-1495 | E-mail: rsmejka@hs.state.az.us

Name: Lylis Olsen; MS, CCC-A
Contact: Phone: 602-690-3975 | Fax: 602-296-0425 | E-mail: lylisolsen@msn.com

Name: Randi Winston; MS, CCC-A
Contact: Phone: 602-284-1091 | Fax: 602-296-0425 | E-mail: rlwinston@aol.com

State Genetics Program: www.azdhs.gov/phs/owch/newbrnscrn.htm

Healthy Ready to Work: hrtw.org/about_us/proj_files/hrtw_az.html#proj

Early Intervention/Part C Coordinator:
The Program for Infants and Toddlers with Disabilities (Part C of IDEA) is a federal grant program that assists states in operating a comprehensive statewide program of early intervention services for infants and toddlers with disabilities, ages birth through age 2 years, and their families.

Name: Molly Dries
Contact: Phone: (602) 532-9960 | Fax: (602) 200-9820 | Email: mdries@mail.de.state.az.us
Web Site: www.de.state.az.us/azeip/default.asp

Section 619/Special Education for ages 3-5 Coordinators:
This program provides free appropriate public education (FAPE) for children, ages 3 through 5 years, with disabilities:

Name: Cheryl Blackwell
Contact: Phone: (602) 364-2727| Fax: (602) 542-5404| Email: cblackw@ade.az.gov
Web Site:www.ade.state.az.us/earlychildhood/preschool/programs/presch/

State Interagency Coordinating Council (ICC) Chairs:
The ICC advises appropriate agencies on the unmet needs in early childhood special education and early intervention programs for children with disabilities, assists in the development and implementation of policies that constitute a statewide system, and assists all appropriate agencies in achieving full participation, coordination, and cooperation for implementation of statewide system.

Name: DeAnn Davies, ICC Chair
Contact:Phone: (602) 546-0236 | Email: ddavies@phxchildrens.com

Name: Maria Bravo, ICC Vice Chair
Contact: Phone: (520) 885-1528 | Fax: (520) 745-1257| Email: mariabravo@mindspring.com

Resources/Documents
State Waiver Information: www.cms.hhs.gov/MedicaidStWaivProgDemoPGI/08_WavMap.asp
Waivers are the result of a process that allows state Medicaid agencies to apply for and receive permission from HCFA to provide services not otherwise covered by Medicaid and/or to do so in ways not described by the Social Security Act. Most Medicaid managed care programs require Waivers. The Waivers, which can differ greatly, are known by their numbers (1115, 1119), or as home-and community-based, or as Katie Beckett Waivers.

Educational Initiatives
This section provides information on training initiatives on the medical home. Some states will discuss their outreach projects in relation to physicians, families, and the community.

No information is currently available for this category.

Screening Initiatives
This section provides information on surveillance and screening initiatives in the state.

State Newborn Screening & Genetics Programs: genes-r-us.uthscsa.edu/resources.htm

• State Newborn Screening Program Links
• State Genetics Program Links
• Regional Genetics and Newborn Screening Collaborative Links
• Newborn Screening State Contact Fact Sheet

The Arizona Department of Health Services (ADHS) Newborn Screening Program announces upcoming changes in the scope and range of screening services Arizona newborns will receive. Passage of Senate Bill 1250 in April 2005 authorizes Arizona to expand the panel of disorders for newborn screening and begin follow up services for newborns with possible hearing loss. For more information visit: www.azaap.org/General/ADHSnewborn.htm

Developmental Screening: PEDS
Effective January 1, 2006, AHCCCS is implementing the NICU Grads program. The Governor's School Readiness Board Health Implementation Team determined that AHCCCS should implement a process to ensure that a formal developmental screen is conducted during primary care EPSDT visits to identify potential developmental delays of at-risk NICU graduates. Early intervention ensures children enter school with the highest potential for learning possible.

The Arizona Chapter of the American Academy of Pediatrics (AzAAP) has collaborated with AHCCCS, through the Governor's School Readiness Board activities the Arizona Early Intervention Program (AzEIP), and the Arizona Department of Health Services (ADHS) Newborn Intensive Care Program (NICU) to implement a statewide developmental screening process. It was decided that Arizona will use the PEDS Tool (Parents' Assessment of Developmental Status, by Frances Glascoe), in this statewide initiative.

For information on PEDS Online Training, visit the AzAAP Web site at: http://www.azaap.org/general/peds.htm

Family Corner
Family Voices:www.familyvoices.org/st/AZ.htm
Partnering with professionals and families to advocate for health care services that are family-centered, community-based, comprehensive, coordinated and culturally competent.

NAMI of Arizona (National Voice of Mental Illness): az.nami.org/
Education, advocacy and support for persons with brain disorders (mental illnesses) and their families.

Family Village: www.familyvillage.wisc.edu/index.htmlxx
A global community that integrates information, resources, and communication opportunities on the Internet for persons with cognitive and other disabilities, for their families, and for those that provide them services and support. This site offers informational resources on specific diagnoses, communication connections, adaptive products and technology,adaptive recreational activities, education, worship, health issues, disability-related media and literature, and much, much more!

The Association for Retarded Citizen (Arc) Family Resource Guide http://www.thearc.org/familyguide/arizona.doc
This guide is written for families raising children with mental retardation and related developmental disabilities. It tells families about benefits, supports and services in their state that might help their child.

State Resources on the Internet: www.medicalhomeinfo.org/states/index.html#res

Note: The information provided on the state pages was submitted by the state medical home teams.As this is not an exhaustive list, please let us know if you have additions for your state resource page. You can contact us at: medical home@aap.org.

http://www.medicalhomeinfo.org/states/state /arizona.html

Last Updated August 10, 2006