Medical Homes in California
This page is designed to keep you informed about events and activities happening in California that will help improve access to medical homes for children with special health care needs (CSHCN).

Medical Home Initiatives
This section provides information on state medical home initiatives/programs. States that are a part of the mentorship network will have a "Promise to the State" which outlines how they will achieve ensuring that all children have a medical home by 2010. This is based on the Healthy People 2010 goals which is a 10 year action plan to achieve and measure success for all CSHCN.

California Medical Home Team Contact:

Name: Kathryn Smith, R.N., M.N.
Contact: Phone: 323-913-4400 | Fax: 323-913-1003
Email: kasmith@CHLA.USC.EDU
State Team: Roster available at: www.medicalhomeinfo.org/model/downloads/State Teams/California Medical Home Team.doc

California Statewide Medical Home Implementation Plan:
Promise to the State www.medicalhomeinfo.org/grant/states/Califo~1.pdf

• California Medical Home Fact Sheet (December, 2003) www.chcf.org/documents/chronicdisease/CAMedicalHomeFactSheet.pdf

California Medical Home Web site: http://mchneighborhood.ichp.ufl.edu/medicalhomela

California Medical Home Resources by County www.medicalhomeinfo.org/states/state /calbycounty.html

Medical Home Products and Materials:

California Health Care Foundation Medical Home Grant:
The project will promote the development of new and improved systems, designed by stakeholders, to improve access to medical homes for children with special health care needs. Documents available on this site include:

• Summaries of each California medical home coalition funded by
  the California HealthCare Foundation
• California Medical Home Project Statewide Coalition
• California Medical Home Project Steering Committee Roster
• Partnership Healthplan of California (CHIRP): www.partnershiphp.org
  A participant in the California Medical Home Project

Case Study: Partnership Health Plan of California Improves Managed Care for Children with Special Needs
A Best Clinical and Administrative Practices (BCAP) Pilot Project
Partnership worked to create a medical home to streamline care for children with special needs; and provide comprehensive resources for their families. The health plan believes that the level of success achieved would not have been possible without the involvement of its practice sites and the strength of its coalition. "Improving Managed Care for Children with Special Needs." For more information, visit: www.chcs.org/publications3960/publications_show.htm?doc_id=236525

Access to Health Care for California's (CSHCN): Chartbook
New California data on access to care for CSHCN. The data compares the care children in Medi-Cal receive to the care received by other children in California and in other state Medicaid programs.
www.healthychild.ucla.edu/PUBLICATIONS/Documents/Chartbook.pdf

Healthy Tomorrows Partnership for Children Grant 2003-2008
The Pediatric Medical Home Project at UCLA
Purpose: David Geffen School of Medicine at UCLA and the Mattel Children’s Hospital, Los Angeles, CA
The Pediatric Medical Home Project at UCLA will implement a four-pronged initiative comprising care coordination, Resident medical education, prospective pediatric health services research and community awareness and involvement for children with special health care needs. The goal of the project is to provide a medical home for children with special health care needs in West Los Angeles now while training pediatricians to provide medical homes to their patients in the future. For more information on this project go to: www.pediatrics.medsch.ucla.edu/medhome/

For more information on the Healthy Tomorrows Grant Program go to: www.aap.org/commpeds/htpcp/index.html.
For more information on this HTPCP project, please e-mail your name, address, telephone, and fax numbers with your specific request to healthyt@aap.org.

Related Grant Initiatives
This section provides information on current state grants that are working on medical home initiatives. This includes the grant abstract as well as key contacts for the grant.

Dyson Community Pediatrics Training Grant
University of California, Davis School of Medicine, Pediatric Residency Training Program
Through the Initiative, Community Partnerships with Pediatricians for Healthy Children (CPPHC) strives to give every child a healthy present and future by teaching pediatricians, both in training and in practice, how to make a difference through active community partnerships to support families in raising healthy children

University of California, San Diego Department of Pediatrics and the Naval Medical Center, Pediatrics: Pediatric Residency Program
Through the Initiative, the Pediatric Residency Program provides educational experiences for residents to acquire the skills and motivation to interact in a culturally competent manner with families, community organizations, health and social service providers, churches, governmental agencies, and key policy-makers to improve the health of all children as an integral part of their pediatric practice. In experiential learning spanning three years, residents actively participate in population-based practices, needs and resource mapping, advocacy and consultant roles. The learning environments are the community-based organizations, churches, and school and public health systems affiliated with four unique populations in the San Diego area (rural/Native American, urban/immigrant, homeless, and international border).

The ultimate goal of the Dyson Initiative is the development of pediatric professionals with greater skills and interest in community-based medicine, advocacy, and the capacity to improve the health of children in their communities. Here you can learn how diverse programs around the country are educating residents about community pediatrics and fostering practical community experiences. www.aap.org/commpeds/cpti/grantees.htm

Hemophilia Grant:
Purpose: The purpose of this project is to improve the health of persons with inherited bleeding disorders in Region IX: California, Hawaii, Nevada and the U.S. Affiliated Pacific. This will be accomplished by sustaining a regional network of fifteen comprehensive hemophilia diagnostic and treatment centers (HTC) whose multidisciplinary clinician teams serve affected children, adults, and their families in a manner that is family-centered, culturally competent, and integrated with education and family support programs. Centers for Disease Control and Prevention (CDC) data documents that HTC care reduces hemophilia mortality by 60% and reduces bleed related hospitalizations by 50%.

Partners in the State
This section provides information on who in the state (individuals and agencies) are working together to create medical homes for children.

American Academy of Pediatrics (AAP) Chapter:
California Chapter 1: www.aapca1.org/
California Chapter 2: www.aapca2.org/
California Chapter 3: www.aapca3.org/
California Chapter 4: www.aapca4.org/
California District IX: www.aap-ca.org/

American Academy of Family Physicians (AAFP) Chapter: www.familydocs.org/


Title V CSHCN Program - CCS: www.dhs.cahwnet.gov/pcfh/cms/ccs/

Title V Block Grant to States
Title V of the Social Security Act is one of the largest Federal block grant programs. It leads the nation in ensuring the health of all mothers, infants, children, adolescents, and children with special health care needs (CSHCN). Title V is administered by the Maternal and Child Health Bureau (MCHB) as part of the Health Resources and Services Administration, U.S. Department of Health and Human Services.

Title V and Children with Special Health Care Needs
MCHB Objective: Support development and implementation of comprehensive, culturally competent, coordinated systems of care for the estimated 18 million U.S. children who have or are at risk for chronic physical, developmental, behavioral or emotional conditions and who also require health and related services of a type or amount beyond that required by children generally.

California Health Care Foundation: www.chcf.org/
The California HealthCare Foundation is an independent philanthropy committed to improving the way health care is delivered and financed in California, and helping consumers make informed health care and coverage decisions.

In March 2002 the California Health Care Foundation awarded grants to local, community-based coalitions in seven communities that are working to: (1) increase the number of medical homes available to children with special health care needs and their families; and (2) increase the number of these children who are connected to such medical homes. In addition to the local coalitions, a statewide coalition, comprised of individuals representing organizations or agencies from the public and private sectors that serve children with special health care needs, parents, outside experts, and other stakeholders, has been created to examine obstacles and opportunities for developing family-centered medical homes within California and to address policy and systems change issues at the state level. The statewide coalition also provides guidance and consultation to the local coalitions on these issues. More information on the CHCF California Medical Home Project is available at: www.chcf.org/topics/view.cfm?itemID=19799&dir=chronicdisease

Healthy Ready to Work: www.cahrtw.org/

Early Hearing Detection & Intervention (EHDI) Contact(s):
State EHDI programs promote universal newborn hearing screening, develop effective tracking and follow-up as a part of the public health system, promote appropriate and timely diagnosis of the hearing loss, prompt enrollment in appropriate Early Intervention, ensure a medical home for all newborns and
strive to eliminate geographic and financial barriers to service access.

Name: Hallie W. Morrow; MD, MPH
Contact: Phone: 916-323-8009 | Fax: 916-323-8104
E-mail: hmorrow@dhs.ca.gov
Newborn Hearing Screening Program (NHSP) Web site: www.dhs.ca.gov/pcfh/cms/nhsp/

State Genetics Program: www.dhs.ca.gov/pcfh/gdb/gdbindex.htm

Early Start - Early Intervention/Part C Coordinator:
The Program for Infants and Toddlers with Disabilities (Part C of IDEA) is a federal grant program that assists states in operating a comprehensive statewide program of early intervention services for infants and toddlers with disabilities, ages birth through age 2 years, and their families.

Name: Rick Ingraham
Contact: Phone: (916) 654-2773 | Fax: (916) 654-3255 | Email: ringraha@dds.ca.gov
Web Site: www.dds.ca.gov/EarlyStart/ESHome.cfm

Section 619/Special Education for ages 3-5 Coordinators:
This program provides free appropriate public education (FAPE) for children, ages 3 through 5 years, with disabilities.

Name: Chris Drouin
Contact: Phone: (916) 327-3698 | Email: cdrouin@cde.ca.gov

State Interagency Coordinating Council (ICC) Chairs:
The ICC advises appropriate agencies on the unmet needs in early childhood special education and early intervention programs for children with disabilities, assists in the development and implementation of policies that constitute a statewide system, and assists all appropriate agencies in achieving full participation, coordination, and cooperation for implementation of statewide system.

Name: Raymond Peterson
Contact: Phone: (858) 576-2932 | Fax: (858) 576-287

Resources
State Waiver Information: www.cms.hhs.gov/MedicaidStWaivProgDemoPGI/08_WavMap.asp
Waivers are the result of a process that allows state Medicaid agencies to apply for and receive permission from HCFA to provide services not otherwise covered by Medicaid and/or to do so in ways not described by the Social Security Act. Most Medicaid managed care programs require Waivers. The Waivers, which can differ greatly, are known by their numbers (1115, 1119), or as home-and community-based, or as Katie Beckett Waivers.

California Medicaid- Medi-Cal: www.medi-cal.ca.gov/

The California HealthCare Foundation has developed two easy-to-use presentations that provide
detailed information about Medi-Cal and Healthy Families available at:
www.chcf.org/topics/medi-cal/index.cfm?itemID=21659&subtopic=CL157&subsection=medical101

The comprehensive Medi-Cal presentation covers the basics on eligibility, enrollment, benefits, service delivery and many other program details. It also includes a review of Medi-Cal's legislative history, points of comparison with other state Medicaid programs, and background on policy issues. This new primer serves as a valuable resource for understanding Medi-Cal, which represents 15 percent of General Fund spending and is the main source of health care insurance for 6.4 million people, or one in six Californians.

The Healthy Families presentation also summarizes program essentials such as eligibility, enrollment and benefits, service delivery and policy issues. Healthy Families provides low-cost health insurance to children of families whose incomes are too high to qualify for Medi-Cal, but are below 250 percent of the Federal Poverty Level (about $38,600 for a family for three). As of September 2003, 673,000 children were enrolled in Healthy Families at a cost of more than $650 million.

The presentation formats can be used by policy leaders, health care administrators, or others to include localized information.

Educational Initiatives
This section provides information on training initiatives on the medical home. Some states will discuss their outreach projects in relation to physicians, families, and the community.

Training Materials and Products can be accessed by clicking on the link below
www.medicalhomela.org/training%20modules.htm

Screening Initiatives
This section provides information on surveillance and screening initiatives in the state.

Developmental Surveillance and Screening Policy Implementation Project (D-PIP)
The Children's Clinic, Serving Children & Their Families from Long Beach, CA and Children's Clinic La Jolla of La Jolla, CA are participating in the Developmental Surveillance and Screening Policy Implementation Project (D-PIP). The D-PIP has selected 17 practices from across the United States to implement the AAP policy statement (scheduled for publication in July 2006) “Identifying Infants and Young Children with Developmental Disorders in the Medical Home: An Algorithm for Developmental Surveillance and Screening” to 1) determine if the algorithm is efficiently and effectively implemented into pediatric practice; 2) recognize strategies for implementing the algorithm; and 3) examine outcomes of implementation. Following the project, information and outcomes will be shared with pediatric clinicians and other health care professionals who are seeking to improve the delivery of developmental surveillance and screening.

Additional information on the D-PIP is available at: www.medicalhomeinfo.org/screening/DPIP.html

State Newborn Screening & Genetics Programs: genes-r-us.uthscsa.edu/resources.htm

• State Newborn Screening Program Links
• State Genetics Program Links
• Regional Genetics and Newborn Screening Collaborative Links
• Newborn Screening State Contact Fact Sheet

Assuring Better Health and Child Development (ABCD) Program:
http://12.109.133.213/_docdisp_page.cfm?LID=C9C5006C-F477-499B-902ACBDB9CC70B6B
The ABCD II Initiative, launched in 2003, is designed to assist states in building the capacity of Medicaid programs to deliver care that supports children’s healthy mental development.

Family Corner
Early Hearing Detection & Intervention (EHDI) Information for Parents:
Description of EHDI Program | Babies Referred from Screening | Babies Diagnosed with Hearing Loss
www.medicalhomeinfo.org/screening/State/california.html

Family Village: www.familyvillage.wisc.edu/index.htmlxx
A global community that integrates information, resources, and communication opportunities on the Internet for persons with cognitive and other disabilities, for their families, and for those that provide them services and support. This site offers informational resources on specific diagnoses, communication connections, adaptive products and technology,adaptive recreational activities, education, worship, health issues, disability-related media and literature, and much, much more!

Advocacy and Support Organizations
Exceptional Parents Unlimited: www.exceptionalparents.org/
The mission of EPU is accomplished by providing an array of services to children and families that are accessible, integrated, and coordinated. Program goals include supporting 1) infants and children with disabilities in achieving individual developmental goals; 2) parents in developing skills to help themselves and their children function successfully in various settings; 3) positive parent-child relationships to promote early attachment and lifelong bonds.

Family Voices: www.familyvoices.org/st/CA.htm
Partnering with professionals and families to advocate for health care services that are family-centered, community-based, comprehensive, coordinated and culturally competent.

Loving Your Disabled Child: www.lydc.org/
Provides parents and families of children with disabilities emotional, educational, and spiritual support.

Matrix: www.matrixparents.org/
Matrix offers emotional support to parents, information on a vast array of topics about disabilities and related areas, referral to appropriate services and training workshops to provide parents with the skills they need to build life-affirming confidence and effectiveness to guide their children throughout life.

NAMI of California (National Voice of Mental Illness): www.namicalifornia.org/
Education, advocacy and support for persons with brain disorders (mental illnesses) and their families.

Parents Helping Parents: www.php.com/
Provides an array of services to parents of CSHCN that includes: Parent to Parent Support,
Peer Counseling, Support and Information Groups, Integrated Playgroups, Information and Referral & Guidance.

Sickle Cell Community Health Network Oakland PEACE CPRC: E-mail: sicklecellnet@aol.com

Support for Families of Children with Disabilities: www.supportforfamilies.org/
Offers a wide range of information, education, and parent-to-parent support services free of charge to more than 2,400 San Francisco families every year. They also provide information and educational services to professionals who work with families, and actively collaborate with other organizations to work towards a more coordinated, family-friendly network of services

Vietnamese Parents of Disabled Children Assoc., Inc. (VPDCA): www.vpdca.org/
The principal objectives of the VPDCA are: To advocate for the right of Vietnamese children with disabilities and of their families. To assist parents, free of charge, in obtaining necessary benefits and services for their children with special needs (SSI, Medi-Cal, CCS, IHSS,...) To promote linguistically and culturally appropriate education/training opportunities. To promote mutual support and assistance. Presently these activities are limited to Los Angeles and Orange county.

State Resources on the Internet: www.medicalhomeinfo.org/states/index.html#res

Note: The information provided on the state pages was submitted by the state medical home teams.As this is not an exhaustive list, please let us know if you have additions for your state resource page. You can contact us at: medical home@aap.org.

http://www.medicalhomeinfo.org/states/state /california.html
Last Updated November 1, 2006