Medical Homes in Hawaii
This page is designed to keep you informed about events and activities
happening in Hawaii that will help improve access to medical homes for
children with special health care needs (CSHCN).
Medical Home Initiatives
This section provides
information on state medical home initiatives/programs. States that are
a part of the mentorship network will have a "Promise to
the State" which outlines how they will achieve ensuring that all
children have a medical home by 2010. This is based on the Healthy
People 2010 goals which is a 10 year action plan to achieve and measure
success for all CSHCN.
Hawaii Medical Home Contacts:
Chair, Medical Home Project, Hawaii AAP
Kenn Saruwatari, MD
Straub Clinic Pearlridge
98-151 Pali Momi St.
Aiea, HI 96701
ph: 808/483-6084, Fax 808/483-6082, e-mail:ksaruwatari@straub.net
Title V contact
Patricia Heu, MD, MPH
Chief, Children with Special Health Needs Branch
Hawaii Department of Health
741 Sunset Ave.
Honolulu, Hawaii 96816
ph. 808/733-9058, Fax 808/733-9068, e-mail: pat.heu@fhsd.health.state.hi.us
Hawaii Medical Home Web site - Malama Pono: www.medicalhomehi.com/
The Hawai‘i Department of
Health has been awarded an MCHB State
Implementation Grant for Integrated Community Systems of Services for
CSHCN
Contact Person:
Patricia Heu, M.D., M.P.H. Phone (808)733-9058 | E-mail: pat.heu@fhsd.health.state.hi.us
Goal 1: Establish,
document and implement family-centered best practices, protocols, and
standards to coordinate care between programs and agencies that serve
CYSHCN within the State through the One Stop/Transition Certification
Program.
Goal 2: Provide families with training opportunities
specifically providing practical insight and approaches on “Navigating
the System”
Goal 3: Provide families with access to information and
the opportunities for training regarding resources for family support
and leadership development, by bringing together and augmenting community
resources based upon identified family needs, and compiling the information
into a centralized directory.
Goal 4: Increase the level of participation of families
of CYSHCN in program and policy activities.
Goal 5: Implement a Residency Curriculum which extends
teaching the knowledge, skills, and attributes of the Medical Home to
include the role of the Medical Home in an integrated service system for
Community Pediatric and Family Physician Residents.
Goal 6: Implement the best practices, protocols and standards
developed by the project into targeted application of transitioning youth
within the Medicaid Developmental Disabilities/Mental Retardation Waiver
from pediatric to adult health care.
Goal 7: Implement and evaluate a statewide integrated
developmental screening and referral process for children served in community
pediatric, family physician, and community health center sites.
Hawaii Statewide Medical Home Implementation Plan - Promise
to the State 
www.medicalhomeinfo.org/grant/states/Hawaii~1.pdf
MCHB Medical Home Grant:
Purpose: The purpose of the Hawaii Medical Home Implementation
Project for Children with Special Health Care Needs is to further expand
statewide operationalization of the medical home through conducting district-by-district
statewide education on medical home for primary care providers, families,
and community organizations with family-centered curriculum developed
collaboratively by families, state agencies, pediatricians, and community-based
organizations; 2) provide state-level policy leadership centered on issues
of expanding state referral system from 0-3 to 3-5 and of physician weighted
reimbursement for services provided to families of medically fragile children;
and, 3) develop curriculum components for state and national medical home
curriculum that integrate family-centered case studies within existing
curriculum sections to demonstrate successes and barriers in creating
effective medical homes and to explore care coordination issues in more
depth.
Related Grant Initiatives
This section provides information on current state
grants that are working on medical home initiatives. This includes the
grant abstract as well as key contacts for the grant.
Dyson Community Pediatrics Training Grant
University of Hawaii Integrated Pediatric Residency Program
The University of Hawaii Integrated Pediatric Residency Program (UHIPRP)
educates and trains pediatricians who will lead the community in caring
and advocating for the children of Hawaii and the Pacific Basin, with
a commitment to research, and in partnership with the medical community.
Through The Initiative, the program expands to encompass not only the
medical community in partnership, but also the families, schools, public
and private institutions and organizations, and child health leaders and
advocates in the community.
The ultimate goal of the Dyson Initiative is the development of pediatric
professionals with greater skills and interest in community-based medicine,
advocacy, and the capacity to improve the health of children in their
communities. Here you can learn how diverse programs around the country
are educating residents about community pediatrics and fostering practical
community experiences.For more information fo to: ww.aap.org/commpeds/cpti/grantees.htm
or go to:
University of Hawaii Integrated Pediatric Residency Program (UHIPRP)
www.hawaii.edu/dyson/Intro%20medical%20home.htm
Kapiolani Medical Center for Women and Children
www.kapiolani.org
John A. Burns School of Medicine
University of Hawaii, Manoa
hawaiimed.hawaii.edu
Genetics Grant:
Project Period: 06/01/01 – 05/31/04
Purpose: Increase the general awareness of genetics and
use of genetics resources in the state for a wide range of audiences and
improve the integration of data systems collecting the same newborn data.
Partners in the State
This section provides information on who in the state (individuals
and agencies) are working together to create medical homes for children.
American Academy of Pediatrics (AAP) Chapter:
www.hawaiiaap.org
Hawaii AAP Chapter president
Keith Matsumoto, MD
1319 Punahou St. #900
Honolulu, HI 96826
ph. 808/949-0011 | Fax: 808/ 943-2536 | e-mail: Keithm@kapiolani.org
CATCH program representative
Mae Kyono, MD
Dept. of Pediatrics
1319 Punahou St.
Honolulu, Hawaii 96826
ph. 808/983-8387| Fax 808/949-4232 | e-mail: mkyono@hawaii.edu
American Academy of Family Physicians (AAFP) Chapter: www.hafp.com/
Title V CSHCN Program-Children with Special Health Needs Branch: www.hawaii.gov/health/family-child-health/cshcn/index.html
Title V Block Grant to States
Title V of the Social Security Act is one of the largest Federal block grant programs. It leads the nation in ensuring the health of all mothers, infants, children, adolescents, and children with special health care needs (CSHCN). Title V is administered by the Maternal and Child Health Bureau (MCHB) as part of the Health Resources and Services Administration, U.S. Department of Health and Human Services.
Title V and Children with Special Health Care Needs
MCHB Objective: Support development and implementation of comprehensive, culturally competent, coordinated systems of care for the estimated 18 million U.S. children who have or are at risk for chronic physical, developmental, behavioral or emotional conditions and who also require health and related services of a type or amount beyond that required by children generally.
Family Voices contact
Leolinda Parlin
2604 Pauoa Rd., Honolulu, Hawaii 96813
e-mail: leolinda@resqconsultants.com
Early Hearing Detection & Intervention (EHDI) Contact(s):
State EHDI programs promote universal newborn
hearing screening, develop effective tracking and follow-up as a part
of the public health system, promote appropriate and timely diagnosis
of the hearing loss, prompt enrollment in appropriate Early Intervention,
link newborns to a medical home and strive to eliminate
geographic and financial barriers to service access.
Name: Louella Christensen
Contact: Phone: 808-973-1115 | Fax: 808-973-1122
E-mail: louella.christensen@fhsd.health.state.hi.us
State Genetics Program: www.state.hi.us/doh/resource/family/genetics/index.html
Early Intervention/Part C Coordinator:
The Program for Infants and Toddlers with Disabilities (Part C of IDEA)
is a federal grant program that assists states in operating a comprehensive
statewide program of early intervention services for infants and toddlers
with disabilities, ages birth through age 2 years, and their families.
Name: Sue Brown, Part C Coordinator
Contact: Phone: (808) 973-9656 | Fax: (808) 973-9655
Email: sue.brown@fhsd.health.state.hi.us
Section 619/ Preschool Grants Program of the Individuals with Disabilities Education Act (IDEA). This program provides free appropriate public education (FAPE) for children, ages 3 through 5 years, with disabilities:
Name: Michael Fahey, 619 Coordinator/CSPD Coordinator
Contact: Phone: (808) 735-6222 x353 | Fax: (808) 733-9890
Email: michael_fahey/sped/hidoe@notes.k12.hi.us
Website: doe.k12.hi.us/specialeducation/preschoolsped.htm
State Interagency Coordinating Council (ICC) Chairs:
The ICC advises appropriate agencies on the unmet needs in early childhood
special education and early intervention programs for children with disabilities,
assists in the development and implementation of policies that constitute
a statewide system, and assists all appropriate agencies in achieving
full participation, coordination, and cooperation for implementation of
statewide system.
Name: Jennifer Schember-Lang, ICC Chair
Contact: Phone: (808) 536-9684 | AltPhone1: (808) 537-6780
Email: jschember-lang@ldahawaii.org
Resources
State Waiver Information: <www.cms.hhs.gov/MedicaidStWaivProgDemoPGI/08_WavMap.asp
Waivers are the result of a process that allows state
Medicaid agencies to apply for and receive permission from HCFA to provide
services not otherwise covered by Medicaid and/or to do so in ways not
described by the Social Security Act. Most Medicaid managed care programs
require Waivers. The Waivers, which can differ greatly, are known by their
numbers (1115, 1119), or as home-and community-based, or as Katie Beckett
Waivers.
Real Choices: Access for All, More Choices for You: http://www.realchoices.org/
This Web site is designed to empower people of all ages and abilities
giving them the opportunity to make self-determined choices to participate
in their communities in ways meaningful to them. The user-friendly, universally
designed information system will provide consumers, professionals, government
agencies, and employers access to information and statewide services.
Educational Initiatives
This section provides information
on training initiatives on the medical home. Some states will discuss
their outreach projects in relation to physicians, families, and the community.
No information is available at this time.
Screening Initiatives
This section provides information on surveillance and screening
initiatives in the state.
State Newborn Screening & Genetics Programs:
genes-r-us.uthscsa.edu/resources.htm
- State Newborn Screening Program Links
- State Genetics Program Links
- Regional Genetics and Newborn Screening Collaborative Links
- Newborn Screening State Contact Fact Sheet
Family Corner
Early Hearing Detection &
Intervention (EHDI) Information for Parents:
Description of EHDI Program
www.medicalhomeinfo.org/screening/state/hawaii.html
Medical Home Training Parent Resource Directory: The Keiki 'O Hawaii
resource guide (www.theparentline.org/directory.htm)
The Parent Line is a free statewide confidential telephone line which
offers support and information to parents and other caregivers. The phone
line staff will help you problem-solve parenting challenges and child
and adolescent behavior and development issues. Community resources information
and parenting handouts are available. They also provide an on-line resource
directory for parents and caregivers.
Family Voices:
www.familyvoices.org/st/HI.htm
Partnering with professionals
and families to advocate for health care services that are family-centered,
community-based, comprehensive, coordinated and culturally competent.
NAMI
of Hawaii (National Voice of Mental Illness): www.nami.org/Template.cfm?Section=Your_Local_NAMI&Template=/CustomSource/AffiliateFinder.cfm&State=HI
Education, advocacy and support for persons with
brain disorders (mental illnesses) and their families.
Special Parent Information Network (SPIN): www.spinhawaii.org/
The Special Parent Information Network (SPIN) is a parent to parent organization
in Hawaii that provides information, support and referral to parents of
children and young adults with disabilities and the professionals who
serve them.
Family Village: www.familyvillage.wisc.edu/index.htmlx
A global community that integrates information, resources, and communication
opportunities on the Internet for persons with cognitive and other disabilities,
for their families, and for those that provide them services and support.
This site offers informational resources on specific diagnoses, communication
connections, adaptive products and technology,adaptive recreational activities,
education, worship, health issues, disability-related media and literature,
and much, much more!
The Association for Retarded Citizen (Arc) Family Resource Guide
http://www.thearc.org/familyguide/hawaii.doc
This guide is written for families raising children with mental retardation
and related developmental disabilities. It tells families about benefits,
supports and services in their state that might help their child.
State Resources on the Internet:
www.medicalhomeinfo.org/states/index.html#res
Note: The information provided on the state pages was
submitted by the state medical home teams.As this is not an exhaustive
list, please let us know if you have additions for your state resource
page. You can contact us at: medical
home@aap.org.
http://www.medicalhomeinfo.org/states/state
/hawaii.html
Last Updated
August 14, 2006