Medical Homes in Maryland
This page is designed to keep you informed about events and activities happening in Maryland that will help improve access to medical homes for children with special health care needs (CSHCN).

Medical Home Initiatives
This section provides information on state medical home initiatives/programs. States that are a part of the mentorship network will have a "Promise to the State" which outlines how they will achieve ensuring that all children have a medical home by 2010. This is based on the Healthy People 2010 goals which is a 10 year action plan to achieve and measure success for all CSHCN.

Maryland Medical Home Team Contact:

Name: Susan Panny - Office for Genetics and Children's Special Health Needs
Contact: Phone: 410-767-6730 | Email: pannys@dhmh.state.md.us

Maryland is participating in the National Initiative for Child Health Quality (NICHQ) Medical Home Learning Collaborative (October 2004 - September 2005)
The Medical Home Learning Collaborative is a 15-month project committed to helping primary care practices become accessible, family-centered, and provide care that is continuous, comprehensive, coordinated, compassionate, and culturally effective. A particular emphasis is placed on care coordination and family involvement in decision-making for children with special health care needs (CSHCN). Project Overveiw: www.nichq.org/NICHQ/Programs/CollaborativeLearning/MHLC2005.htm

Related Grant Initiatives
This section provides information on current state grants that are working on medical home initiatives. This includes the grant abstract as well as key contacts for the grant.

No information is currently available for this category.

Partners in the State
This section provides information on who in the state (individuals and agencies) are working together to create medical homes for children.

American Academy of Pediatrics (AAP) Chapter:www.mdaap.org/

American Academy of Family Physicians (AAFP) Chapter: www.mdafp.org/

Title V CSHCN Program - Office for Genetics and Children with Special Health Care Needs:
www.fha.state.md.us/genetics/index.html

Title V Block Grant to States
Title V of the Social Security Act is one of the largest Federal block grant programs. It leads the nation in ensuring the health of all mothers, infants, children, adolescents, and children with special health care needs (CSHCN). Title V is administered by the Maternal and Child Health Bureau (MCHB) as part of the Health Resources and Services Administration, U.S. Department of Health and Human Services.

Title V and Children with Special Health Care Needs
MCHB Objective: Support development and implementation of comprehensive, culturally competent, coordinated systems of care for the estimated 18 million U.S. children who have or are at risk for chronic physical, developmental, behavioral or emotional conditions and who also require health and related services of a type or amount beyond that required by children generally.

Early Hearing Detection & Intervention (EHDI) Contact(s):
State EHDI programs promote universal newborn hearing screening, develop effective tracking and follow-up as a part of the public health system, promote appropriate and timely diagnosis of the hearing loss, prompt enrollment in appropriate Early Intervention, link newborns to a medical home and strive to eliminate geographic and financial barriers to service access.

Name: Karen Funk
Contact: Phone: 410-767-6730 | Fax: 410-333-7956
E-mail: FunkK@dhmh.state.md.us

Early Intervention/Part C Coordinator:
The Program for Infants and Toddlers with Disabilities (Part C of IDEA) is a federal grant program that assists states in operating a comprehensive statewide program of early intervention services for infants and toddlers with disabilities, ages birth through age 2 years, and their families.

Name: Deborah Metzger, Branch Chief (Part C Coordinator)
Contact: Phone: (410) 767-0261 | Fax: (410) 333-2661
Email: dmetzger@msde.state.md.us
Website: www.marylandpublicschools.org/MSDE/divisions/earlyinterv/

Section 619/ Preschool Grants Program of the Individuals with Disabilities Education Act (IDEA). This program provides free appropriate public education (FAPE) for children, ages 3 through 5 years, with disabilities:

Name: Nancy Vorobey, 619 Coordinator
Contact: Phone: (410) 767-0234 | Fax: (410) 333-2661| AltPhone1: (410) 767-0261
Email: nvorobey@msde.state.md.us
Web site: www.marylandpublicschools.org/MSDE/divisions/earlyinterv/

State Interagency Coordinating Council (ICC) Chairs:The ICC advises appropriate agencies on the unmet needs in early childhood special education and early intervention programs for children with disabilities, assists in the development and implementation of policies that constitute a statewide system, and assists all appropriate agencies in achieving full participation, coordination, and cooperation for implementation of statewide system.

Name: Donna Njoku, ICC Co-Chair
Contact: Phone: (301) 419-2471 | Fax: (410) 859-5301
Email: donnanjok1@aol.com

Name: Linda Ramsey, ICC Co-Chair
Contact: Phone: (410) 659-7701 | Fax: (410) 783-0814
Email: lremsey@friendsofthefamily.org

Website: www.friendsofthefamily.org

Resources
State Waiver Information: www.cms.hhs.gov/MedicaidStWaivProgDemoPGI/08_WavMap.asp
Waivers are the result of a process that allows state Medicaid agencies to apply for and receive permission from HCFA to provide services not otherwise covered by Medicaid and/or to do so in ways not described by the Social Security Act. Most Medicaid managed care programs require Waivers. The Waivers, which can differ greatly, are known by their numbers (1115, 1119), or as home-and community-based, or as Katie Beckett Waivers.

Educational Initiatives
This section provides information on training initiatives on the medical home. Some states will discuss their outreach projects in relation to physicians, families, and the community.

No information is currently available for this category.

Screening Initiatives
This section provides information on surveillance and screening initiatives in the state.

State Newborn Screening & Genetics Programs: genes-r-us.uthscsa.edu/resources.htm

• State Newborn Screening Program Links
• State Genetics Program Links
• Regional Genetics and Newborn Screening Collaborative Links
• Newborn Screening State Contact Fact Sheet

House Bill 579: http://mlis.state.md.us/2005rs/billfile/HB0579.htm
Establishing a Pilot Program to Study and Improve Screening Practices for Autism Spectrum Disorders in the Department of Education; requiring the Department of Education, in collaboration with the Department of Health and Mental Hygiene, to select and establish relationships with specified providers to participate in the Pilot Program, assess and identify autism spectrum disorders screening instruments, and develop training materials and distribute written information on early detection of autism spectrum disorders; etc.

The Association for Retarded Citizen (Arc) Family Resource Guide www.thearc.org/familyguide/maryland.doc
This guide is written for families raising children with mental retardation and related developmental disabilities. It tells families about benefits, supports and services in their state that might help their child.

Early Hearing Detection & Intervention (EHDI) Information for Parents:
Description of EHDI Program | Babies Diagnosed with Hearing Loss
www.medicalhomeinfo.org/screening/State/maryland.html

Family Village: www.familyvillage.wisc.edu/index.htmlx
A global community that integrates information, resources, and communication opportunities on the Internet for persons with cognitive and other disabilities, for their families, and for those that provide them services and support. This site offers informational resources on specific diagnoses, communication connections, adaptive products and technology,adaptive recreational activities, education, worship, health issues, disability-related media and literature, and much, much more!

State Resources on the Internet: www.medicalhomeinfo.org/states/index.html#res

Note: The information provided on the state pages was submitted by the state medical home teams.As this is not an exhaustive list, please let us know if you have additions for your state resource page. You can contact us at: medical home@aap.org.

http://www.medicalhomeinfo.org/states/state /maryland.html

Last Updated August 10, 2006