Medical Homes in Missouri
This page is designed to keep you informed about events and activities happening in Missouri that will help improve access to medical homes for children with special health care needs (CSHCN).

Medical Home Initiatives
This section provides information on state medical home initiatives/programs. States that are a part of the mentorship network will have a "Promise to the State" which outlines how they will achieve ensuring that all children have a medical home by 2010. This is based on the Healthy People 2010 goals which is a 10 year action plan to achieve and measure success for all CSHCN.

Missouri Medical Home Team Contact:

Name: Mark Davis - Director, Children with Special Needs
Contact: Phone: 573-751-6246 | Email: mark.davis@dhss.mo.gov

The Missouri Partnership for Enhanced Delivery of Services (MO-PEDS): Helping families coordinate care for their children
www.hsc.missouri.edu/~MO-PEDS/
A medical home project designed to improve the quality of care for rural and underserved children with special health care needs (CSHCN). The MO-PEDS program helps families find comprehensive and coordinated care for their CSHCN, including medical, educational, mental health, and family support services.

The project goals include:

• Partnering with primary care physicians to increase the availability of comprehensive care coordination services in 16 central Missouri counties
• Evaluating the impact of MO-PEDS care coordination on CSHCN enrolled in a Medicaid managed care organization
• Sustaining the MO-PEDS intervention by developing a care coordination training program for state agency personnel

Partners in the State
This section provides information on who in the state (individuals and agencies) are working together to create medical homes for children.

American Academy of Pediatrics (AAP) Chapter: www.moaap.org/

American Academy of Family Physicians (AAFP) Chapter: www.mo-afp.org/

Title V CSHCN Program - Hope Service: www.dhss.mo.gov/SHCN/

Title V Block Grant to States
Title V of the Social Security Act is one of the largest Federal block grant programs. It leads the nation in ensuring the health of all mothers, infants, children, adolescents, and children with special health care needs (CSHCN). Title V is administered by the Maternal and Child Health Bureau (MCHB) as part of the Health Resources and Services Administration, U.S. Department of Health and Human Services.

Title V and Children with Special Health Care Needs
MCHB Objective: Support development and implementation of comprehensive, culturally competent, coordinated systems of care for the estimated 18 million U.S. children who have or are at risk for chronic physical, developmental, behavioral or emotional conditions and who also require health and related services of a type or amount beyond that required by children generally.

Early Hearing Detection & Intervention (EHDI) Contact(s):
State EHDI programs promote universal newborn hearing screening, develop effective tracking and follow-up as a part of the public health system, promote appropriate and timely diagnosis of the hearing loss, prompt enrollment in appropriate Early Intervention, link newborns to a medical home and strive to eliminate geographic and financial barriers to service access.

Name: Catherine Harbison
Contact: Tel: 573-751-6266 |Email: catherine.harbison@dhss.mo.gov

First Steps - Early Intervention/Part C Coordinator:
The Program for Infants and Toddlers with Disabilities (Part C of IDEA) is a federal grant program that assists states in operating a comprehensive statewide program of early intervention services for infants and toddlers with disabilities, ages birth through age 2 years, and their families.

Name: Deborah Parsons, Coordinator
Contact: Phone: (573) 751-2965 | Fax: (573) 526-4404 |
Email: debbie.parsons@dese.state.mo.us
Web Site: dese.mo.gov/divspeced/FirstSteps/index.html

Section 619/ Preschool Grants Program of the Individuals with Disabilities Education Act (IDEA). This program provides free appropriate public education (FAPE) for children, ages 3 through 5 years, with disabilities:

Name: Deborah Parsons, Coordinator
Contact: Phone: (573) 751-2965 | Fax: (573) 526-4404
Email: debbie.parsons@dese.state.mo.us
Web Site: www.dese.state.mo.us/divspeced/

State Interagency Coordinating Council (ICC) Chairs:
The ICC advises appropriate agencies on the unmet needs in early childhood special education and early intervention programs for children with disabilities, assists in the development and implementation of policies that constitute a statewide system, and assists all appropriate agencies in achieving full participation, coordination, and cooperation for implementation of statewide system.

Name: Valerie Lane, Director
Contact: Phone: (660) 826-4400 | Fax: (660) 826-4420
Email: vlane@chs-mo.org

Name: Elizabeth Spaugh, ICC Co-Chair
Contact: Phone: (636) 461-0324 | Email: elizabethspaugh1@msn.com

Resources/Documents
State Waiver Information: www.cms.hhs.gov/MedicaidStWaivProgDemoPGI/08_WavMap.asp
Waivers are the result of a process that allows state Medicaid agencies to apply for and receive permission from HCFA to provide services not otherwise covered by Medicaid and/or to do so in ways not described by the Social Security Act. Most Medicaid managed care programs require Waivers. The Waivers, which can differ greatly, are known by their numbers (1115, 1119), or as home-and community-based, or as Katie Beckett Waivers.

Educational Initiatives
This section provides information on training initiatives on the medical home. Some states will discuss their outreach projects in relation to physicians, families, and the community.

No information is currently available for this category.

Screening Initiatives
This section provides information on surveillance and screening initiatives in the state.

State Newborn Screening & Genetics Programs: genes-r-us.uthscsa.edu/resources.htm

• State Newborn Screening Program Links
• State Genetics Program Links
• Regional Genetics and Newborn Screening Collaborative Links
• Newborn Screening State Contact Fact Sheet

Family Corner
Early Hearing Detection & Intervention (EHDI) Information for Parents:
Description of EHDI Program | Babies Diagnosed with Hearing Loss
www.medicalhomeinfo.org/screening/State/missouri.html

Family Voices: www.familyvoices.org/st/MO.htm
Partnering with professionals and families to advocate for health care services that are family-centered, community-based, comprehensive, coordinated and culturally competent.

The Family Partnership was formed by Special Health Care Needs (SHCN), of the Missouri Department of Health and Senior Services, to enhance the relationship between SHCN and the families they serve. The Family Partnership also provides support and information to these families and an opportunity for families of individuals with special health care needs to connect with each other. www.dhss.mo.gov/FamilyPartnership/

NAMI of Missouri (National Voice on Mental Health): mo.nami.org
Education, advocacy and support for persons with brain disorders (mental illnesses) and their families.

Family Village: www.familyvillage.wisc.edu/index.htmlx
A global community that integrates information, resources, and communication opportunities on the Internet for persons with cognitive and other disabilities, for their families, and for those that provide them services and support. This site offers informational resources on specific diagnoses, communication connections, adaptive products and technology,adaptive recreational activities, education, worship, health issues, disability-related media and literature, and much, much more!

Missouri Parents Act (MPACT): www.ptimpact.com/
MPACT is a statewide parent training and information center serving all disabilities. Their mission is to ensure that all children with special nee

State Resources on the Internet: www.medicalhomeinfo.org/states/index.html#res

Note: The information provided on the state pages was submitted by the state medical home teams.As this is not an exhaustive list, please let us know if you have additions for your state resource page. You can contact us at: medical home@aap.org.

http://www.medicalhomeinfo.org/states/state /missouri.html

Last Updated August 10, 2006