Medical Homes in Nebraska
This page is designed to keep you informed about events and activities
happening in Nebraska that will help improve access to medical homes for
children with special health care needs (CSHCN).
Medical Home Initiatives
This section provides
information on state medical home initiatives/programs. States that are
a part of the mentorship network will have a "Promise to
the State" which outlines how they will achieve ensuring that all
children have a medical home by 2010. This is based on the Healthy
People 2010 goals which is a 10 year action plan to achieve and measure
success for all CSHCN.
Nebraska Medical Home Team Contact:
Name: Mary Jo Iwan - Medically Handicapped Children's Program
Contact: Phone: 402-471-9345 | Email: maryjo.iwan@hhss.state.ne.us
Related Grant Initiatives
This section provides information on current
state grants that are working on medical home initiatives. This includes
the grant abstract as well as key contacts for the grant.
Genetics Grant
The major goal for the first year is to complete a comprehensive genetic
services and newborn screening infrastructure needs assessment. The major
goal for the second year is to develop a state genetics plan for the provision
of family focused, community-based, culturally competent, comprehensive
genetic health care, outreach, intervention and education integrating
the public health and private sector arenas for children with special
health care needs and genetic disorders.
Partners in the State
This section provides information on who in the state (individuals
and agencies) are working together to create medical homes for children.
American Academy of Pediatrics (AAP) Chapter: www.nebraska-aap.org/
American Academy of Family Physicians (AAFP) Chapter: www.nebrafp.org/
Title V CSHCN Program - Medically Handicapped Children’s Program
(MHCP):
www.hhs.state.ne.us/chd/mhcp.htm
Title V Block Grant to States
Title V of the Social Security Act is one of the largest Federal block grant programs. It leads the nation in ensuring the health of all mothers, infants, children, adolescents, and children with special health care needs (CSHCN). Title V is administered by the Maternal and Child Health Bureau (MCHB) as part of the Health Resources and Services Administration, U.S. Department of Health and Human Services.Title V and Children with Special Health Care Needs
MCHB Objective: Support development and implementation of comprehensive, culturally competent, coordinated systems of care for the estimated 18 million U.S. children who have or are at risk for chronic physical, developmental, behavioral or emotional conditions and who also require health and related services of a type or amount beyond that required by children generally.
Early Hearing Detection & Intervention (EHDI) Contact(s):
State EHDI programs promote universal newborn hearing screening, develop
effective tracking and follow-up as a part of the public health system,
promote appropriate and timely diagnosis of the hearing loss, prompt enrollment
in appropriate Early Intervention, link newborns to
a medical home and strive to eliminate geographic and financial barriers
to service access.
Name: Jeff Hoffman, CCC-A
Contact: Phone: (402) 471-6770 Fax: (402) 471-1863
E-mail: jeffrey.hoffman@hhss.state.ne.us
Early Intervention/Part C Coordinator:
The Program for Infants and Toddlers with Disabilities (Part C of IDEA)
is a federal grant program that assists states in operating a comprehensive
statewide program of early intervention services for infants and toddlers
with disabilities, ages birth through age 2 years, and their families.
Name: Joan Luebbers, Part C Co-Coordinator
Contact: Phone: (402) 471-2463 | Fax: (402) 471-5022
Email: luebbers@nde.state.ne.usName: Charlotte Lewis, Part C Co-Coordinator
Contact: Phone: (402) 471-9329 | Fax: (402) 471-6352
Email: charlie.lewis@hhss.state.ne.us
Web Site: www.nde.state.ne.us/ECH/EARLY/echp.htm
Section 619/ Preschool Grants Program of the Individuals with Disabilities Education Act (IDEA). This program provides free appropriate public education (FAPE) for children, ages 3 through 5 years, with disabilities:
Name: Jan Thelen, 619 Coordinator
Contact: Phone: (402) 471-4319 | Fax: (402) 471-5022
Email: jthelen@nde.state.ne.us
We bsite: www.nde.state.ne.us/ECH/ECH.html
State Interagency Coordinating Council (ICC) Chairs:
The ICC advises appropriate agencies on the unmet needs in early childhood
special education and early intervention programs for children with disabilities,
assists in the development and implementation of policies that constitute
a statewide system, and assists all appropriate agencies in achieving
full participation, coordination, and cooperation for implementation of
statewide system.
Name: Lea Ann Johnson, ICC Chair
Contact: Phone: (402) 436-1964 | Fax: (402) 441-4883 | Email: ljohns2@lps.org
Resources/Documents
State Waiver Information: www.cms.hhs.gov/MedicaidStWaivProgDemoPGI/08_WavMap.asp
Waivers are the result of a process that allows state Medicaid agencies
to apply for and receive permission from HCFA to provide services not
otherwise covered by Medicaid and/or to do so in ways not described by
the Social Security Act. Most Medicaid managed care programs require Waivers.
The Waivers, which can differ greatly, are known by their numbers (1115,
1119), or as home-and community-based, or as Katie Beckett Waivers.
Educational Initiatives
This section provides information on training initiatives on the
medical home. Some states will discuss their outreach projects in relation
to physicians, families, and the community.
No information is currently available for this category.
Screening Initiatives
This section provides information on surveillance and screening
initiatives in the state.
Developmental Surveillance and Screening Policy Implementation
Project (D-PIP)
Boys Town Pediatrics from Omaha, NE is participating
in the Developmental Surveillance and Screening Policy Implementation
Project (D-PIP). The D-PIP has selected 17 practices from across the United
States to implement the AAP policy statement (scheduled for publication
in July 2006) “Identifying Infants and Young Children with Developmental
Disorders in the Medical Home: An Algorithm for Developmental Surveillance
and Screening” to 1) determine if the algorithm is efficiently and
effectively implemented into pediatric practice; 2) recognize strategies
for implementing the algorithm; and 3) examine outcomes of implementation.
Following the project, information and outcomes will be shared with pediatric
clinicians and other health care professionals who are seeking to improve
the delivery of developmental surveillance and screening.
Additional information on the D-PIP is available at: www.medicalhomeinfo.org/screening/DPIP.html
State Newborn Screening & Genetics Programs: genes-r-us.uthscsa.edu/resources.htm
- State Newborn Screening Program Links
- State Genetics Program Links
- Regional Genetics and Newborn Screening Collaborative Links
- Newborn Screening State Contact Fact Sheet
Family Corner
Early Hearing Detection & Intervention
(EHDI) Information for Parents:
Description of EHDI Program | Babies Diagnosed with Hearing Loss
www.medicalhomeinfo.org/screening/State/nebraska.html
Family Voices: www.familyvoices.org/st/NE.htm
Partnering with professionals and families to advocate for health care
services that are family-centered, community-based, comprehensive, coordinated
and culturally competent.
NAMI of Nebraska (National Voice on Mental Health):
ne.nami.org
Education, advocacy and support for persons with brain disorders (mental
illnesses) and their families.
Family Village: www.familyvillage.wisc.edu/index.htmlx
A global community that integrates information, resources, and communication
opportunities on the Internet for persons with cognitive and other disabilities,
for their families, and for those that provide them services and support.
This site offers informational resources on specific diagnoses, communication
connections, adaptive products and technology,adaptive recreational activities,
education, worship, health issues, disability-related media and literature,
and much, much more!
Parent Training Initiatives (PTI): www.pti-nebraska.org/about.htm
PTI Nebraska has Parent-Professionals available to offer training and
information for all families of children with special needs. Some of the
training topics are:Individual Education Plans (IEPs) and the law
as it relates to students with disabilities. Inclusion issues. Positive
Behavioral Interventions (PBI) and discipline. Transition from school
to adulthood for families, school and agency professionals. Early Development
Network and Preschool.
The Association
for Retarded Citizen (Arc) Family Resource Guide www.thearc.org/familyguide/nebraska.doc
This guide is written for families raising children with mental retardation
and related developmental disabilities. It tells families about benefits,
supports and services in their state that might help their child.
State Resources on the Internet:
www.medicalhomeinfo.org/states/index.html#res
Note: The information provided on the state pages was submitted by the
state medical home teams.As this is not an exhaustive list, please let
us know if you have additions for your state resource page. You can contact
us at: medical home@aap.org.
http://www.medicalhomeinfo.org/states/state
/nebraska.html
Last Updated
August 10, 2006