Medical Homes in New York
This page is designed to keep you informed about events and activities happening in New York that will help improve access to medical homes for children with special health care needs (CSHCN).

Medical Home Initiatives
This section provides information on state medical home initiatives/programs. States that are a part of the mentorship network will have a "Promise to the State" which outlines how they will achieve ensuring that all children have a medical home by 2010. This is based on the Healthy People 2010 goals which is a 10 year action plan to achieve and measure success for all CSHCN.

New York Medical Home Team Contact:

Name: Sue Slade - Co-Director, Medical Home Unit
Contact: Phone: 518-474-0570 | Email: sjs11@health.state.ny.us
State Team Roster available at: www.medicalhomeinfo.org/model/downloads/State Teams/New York Medical Home Team.doc

Family Leadership Champions Incentive Grant - Incentive Award FAQs
Goal: To promote family leadership for children and youth with special health care needs by creating a sustainable Family Advisor Program which will provide input into state and county CSHCN programs.
For more information contact: Susan Slade, Medical Home Unit
Phone: (518) 474-0570 | Email: sjs11@health.stste.ny.us

MCHB Medical Home Grant
Purpose: New York State Department of Health (NYSDOH) embraces the American Academy of Pediatrics definition of the Medical Home as “the provision of accessible, continuous, comprehensive, family-centered, coordinated and compassionate care…" To ensure that CSHCN in New York State benefit from a medical home, NYSDOH will:

• Engage key stakeholders to develop and implement a comprehensive statewide medical home plan for New York State.
• Ensure that all CSHCN, especially the hard to reach/serve populations, have access to medical homes in New York State.
• Implement the medical home plan in three major geographic regions of NYS, which will become mentoring projects during statewide implementation.

New York was selected to be part of the National NICHQ Medical Home Learning Collaborative - A fifteen-month collaborative activity to improve care for the growing population of CSHCN. This initiative focuses on 3 practices in the state and assists them in completing a quality improvement process to provide medical homes to their patients with special needs. It also assists in building the capacity of the New York State Department of Health's Medical Home Unit to support and extend this approach after the completion of the project period.


AAP CATCH Medical Home Planning Grant 2002-2003
The purpose of this project is to create a partnership that will develop a written plan to implement pediatric telemedicine in order to provide children with a virtual medical home in significantly under-served counties of Upstate New York (Broome, Chenango, Delaware, and Tioga counties). Telemedicine, a highly confidential method of sending pictures, sounds or video clips has the potential to furnish a child's medical home, and itÍs a ground-breaking substitute for "phone tag." The project will promote community investment, a critical factor for future implementation. The project will provide the community with a plan to enact, and a network of people committed to it realization.

Related Grant Initiatives
This section provides information on current state grants that are working on medical home initiatives. This includes the grant abstract as well as key contacts for the grant.

Dyson Community Pediatrics Training Grants
University of Rochester School of Medicine: Pediatric Links with the Community / Child Advocacy Resident Education (PLC/CARE) Program
Through the Pediatric Links with the Community (PLC) Program and Child Advocacy Resident Education (CARE) Program, the Initiative at the University of Rochester will create a residency training program that inspires and empowers future pediatricians to become leaders in improving the health of children in their communities. The program will also develop a model of community pediatrics in which pediatricians collaborate with community-based organizations, work to assure the health of all children in the community, and advocate for their community to be more child-responsive and child-oriented.

Columbia University Community Pediatric Training Program at Children's Hospital of New York – Presbyterian and Harlem Hospital Center (HHC)
Through The Initiative, the Community Pediatric Training Program broadens residency education by ensuring that all residents have acquired the knowledge, skills, and attitudes that will enable them to work effectively as life-long advocates in partnership with the community to define the health problems of its children, provide curative and preventive services, and evaluate the effectiveness of those services. It also enhances the service to the community by strengthening and building new partnerships with community-based organizations. The program strengthens and expands the core pediatric faculty in community pediatrics and collaborations with other academic disciplines.

The ultimate goal of the Dyson Initiative is the development of pediatric professionals with greater skills and interest in community-based medicine, advocacy, and the capacity to improve the health of children in their communities. Here you can learn how diverse programs around the country are educating residents about community pediatrics and fostering practical community experiences. www.aap.org/commpeds/cpti/grantees.htm

Genetics MCHB Grant
Purpose: The mission of the GENE Project is to assist underserved populations in making informed choices about their health by improving their access to culturally and linguistically appropriate genetics information, resources and services.

Hemophilia MCHB Grant
Purpose: The purpose of this project is to support the multidisciplinary model for the care of patients with this Hemophilia and other congenital bleeding disorders in order to continue to provide excellent, cost effective care to this community. We anticipate further improvements in health outcomes for this population with the continuation of this project. This will be measured through the Universal Data Collection surveillance and regional data collection, including the new revised Hemophilia Data Set.

Partners in the State
This section provides information on who in the state (individuals and agencies) are working together to create medical homes for children.

American Academy of Pediatrics (AAP) Chapters:
New York Chapter 1: www.ny1aap.org/
New York Chapter 2: www.ny2aap.org/
New York Chapter 3: www.ny3aap.org/
New York District II: www.aapdistrictii.org/

American Academy of Family Physicians (AAFP) Chapter: www.nysafp.org/

Title V CSHCN Program: Children with Special Health Care Needs Program (CSHCN) Including Physically Handicapped Children’s Program: www.health.state.ny.us/nysdoh/child/maternal_child_health.htm

The CSHCN Program is a statewide public health program that provides information and referral services for health and related areas for families of CSHCN. In addition some of the local CSHCN programs offer case management services.

The CSHCN program also has a financial component, the Physically Handicapped Children’s Program (PHCP). The PHCP assists families in paying medical bills for children with severe chronic illnesses and/or physical disabilities, between birth and 21 years of age, who live in New York State and meet county medical and financial eligibility criteria.

The PHCP is located in most county health units. Prior authorization from the local PHCP must be obtained for all services. The PHCP has two components: the Diagnosis and Evaluation Program (D&E) and the Treatment Program. The D&E program will reimburse specialty providers for the diagnosis and development of a treatment plan for eligible children. The treatment program will reimburse specialty providers for the ongoing health and related services for children who are medically and financially eligible in their county of residence. The county standards are designed to assist families with low incomes or inadequate private health insurance to obtain medical services for their children.

For Information: Call the New York State Health Department’s Growing Up Healthy Hotline, 1-800-522-5006; or contact your local county health department. (In New York City, contact the Bureau for Families and Community Health Services of the New York City Health Department at (212) 676-2950.

Early Hearing Detection & Intervention (EHDI) Coordinator:
State EHDI programs promote universal newborn hearing screening, develop effective tracking and follow-up as a part of the public health system, promote appropriate and timely diagnosis of the hearing loss, prompt enrollment in appropriate Early Intervention, link newborns to a medical home and strive to eliminate geographic and financial barriers to service access.

Name: Connie Donohue; MA CCC-A
Contact: Phone: 518-473-7016 | Fax: 518-486-1090 | E-mail: CLD03@health.state.ny.us
Web site: <www.infanthearing.org/states/newyork/index.html

Early Intervention/Part C Coordinator:
The Program for Infants and Toddlers with Disabilities (Part C of IDEA) is a federal grant program that assists states in operating a comprehensive statewide program of early intervention services for infants and toddlers with disabilities, ages birth through age 2 years, and their families.

Name: Barbara McTague, Co-Director
Contact: Phone: (518) 473-7016| Fax (518) 473-8673 | E-mail: blm01@health.state.ny.us

Name: Donna Noyes, Co-Director
Contact: E-mail: dmn02@health.state.ny.us
Web site: www.health.state.ny.us/nysdoh/eip/index.htm

Section 619/ Preschool Grants Program of the Individuals with Disabilities Education Act (IDEA).
This program provides free appropriate public education (FAPE) for children, ages 3 through 5 years, with disabilities:

Name: Candace Shyer,
Contact: Phone: (518) 473-2878 | Fax: (518) 474-2219 | Email:cshyer@mail.nysed.gov
Website: www.vesid.nysed.gov/specialed/preschool/home.html

State Interagency Coordinating Council (ICC) Chairs:
The ICC advises appropriate agencies on the unmet needs in early childhood special education and early intervention programs for children with disabilities, assists in the development and implementation of policies that constitute a statewide system, and assists all appropriate agencies in achieving full participation, coordination, and cooperation for implementation of statewide system.

Name: Thomas Roach, ICC Chair
Contact: Phone: (914) 255-1713 | Fax: (914) 255-3202

Name: Leah Ester Lax, ICC Vice Chair
Contact: Phone: (718) 420-1999 | Email: acclax@aol.com

Web site: www.ectac.org/contact/iccchair.asp#NY

Resources/Documents
State Waiver Information: www.cms.hhs.gov/MedicaidStWaivProgDemoPGI/08_WavMap.asp
Waivers are the result of a process that allows state Medicaid agencies to apply for and receive permission from HCFA to provide services not otherwise covered by Medicaid and/or to do so in ways not described by the Social Security Act. Most Medicaid managed care programs require Waivers. The Waivers, which can differ greatly, are known by their numbers (1115, 1119), or as home-and community-based, or as Katie Beckett Waivers.

Educational Initiatives
This section provides information on training initiatives on the medical home. Some states will discuss their outreach projects in relation to physicians, families, and the community.

No information is currently available for this category.

Screening Initiatives
This section provides information on surveillance and screening initiatives in the state.

State Newborn Screening & Genetics Programs: genes-r-us.uthscsa.edu/resources.htm

• State Newborn Screening Program Links
• State Genetics Program Links
• Regional Genetics and Newborn Screening Collaborative Links
• Newborn Screening State Contact Fact Sheet

State Contact:
Ruth Walden*
(518) 474-2001
E-mail: rxw03@health.state.ny.us

NAMI of New York (National Voice on Mental Health): www.naminys.org 
Education, advocacy and support for persons with brain disorders (mental illnesses) and their families.

Dept of Health Resource Directory for Children with Special Health Care Needs: www.health.state.ny.us/nysdoh/child/special_needs/resource_directory.htm

Resources for Children with Special Needs, Inc: www.resourcesnyc.org/rcsn.htm
Provides information and referral, case management and support, individual and systemic advocacy, parent and professional training, library and information services to New York City parents and caregivers of children with disabilities and special needs and to the professionals who work with them.

Sinergia: www.sinergiany.org/
Sinergia assists families and their children with disabilities to access and benefit from needed services and resources. Sinergia, Inc. was incorporated in 1983 with a parent governing board to provide case management/service coordination and multiple direct services - residential and support - to individuals with disabilities and families including individuals with developmental disabilities. In addition, the agency provides or arranges for housing for such individuals and families.

The Association for Retarded Citizen (Arc) Family Resource Guide www.thearc.org/familyguide/newyork.doc
This guide is written for families raising children with mental retardation and related developmental disabilities. It tells families about benefits, supports and services in their state that might help their child.

State Resources on the Internet: www.medicalhomeinfo.org/states/index.html#res

Note: The information provided on the state pages was submitted by the state medical home teams.As this is not an exhaustive list, please let us know if you have additions for your state resource page. You can contact us at: medical home@aap.org.

http://www.medicalhomeinfo.org/states/state /new_york.html