Medical Homes in Oklahoma
This page is designed to keep you informed about events and activities happening in Oklahoma that will help improve access to medical homes for children with special health care needs (CSHCN).

Medical Home Initiatives
This section provides information on state medical home initiatives/programs. States that are a part of the mentorship network will have a "Promise to the State" which outlines how they will achieve ensuring that all children have a medical home by 2010. This is based on the Healthy People 2010 goals which is a 10 year action plan to achieve and measure success for all CSHCN.

Oklahoma Medical Home Team Contact:

Name: Cyd Roberts -Child Study Center, University of Oklahoma Health Sciences Center
Contact: Phone: 405-271-6824, #45112 | Email: cyd-roberts@ouhsc.edu

The University of Oklahoma has been awarded an MCHB State Implementation Grant for Integrated Community Systems of Services for CSHCN
Duration of Program: Project period May 1, 2005- April 30, 2008.
Contact Person: Louis Worley louis-worley@ouhsc.edu
Goals and Objectives: The project will build community-based infrastructure with regional and state level supports that coordinates the efforts of the health, mental health, social and education systems in a rural and metropolitan region.  Similar rural and metropolitan regions where the model is not implemented will be compared to document the results of the intervention for CSHCN.  These activities will establish a foundation for a sustainable statewide spread strategy of an integrated community-based system of services.
Objective 1: Strengthen and integrate Oklahoma’s Champions for Progress Incentive Award: Family Partnership in Decision-Making outcomes into all other performance outcomes, the Title V CSHCN program and other public/private services.
Objective 2: Provide ongoing coordination of existing initiatives working on improvement of access and availability of screening, evaluation and referral mechanisms for CSHCN.
Objective 3: Strengthen and spread, statewide, current Oklahoma Medical Home Initiative for CYSHCN
Objective 4: Identify gaps in public/private funding for needed services,
Objective 5: Establish a mechanism for statewide replication of the Sooner SUCCESS integrated services model. 
Objective 6: Identify gaps in transition services and develop a strategic plan for filling those gaps.

The Fostering Hope Clinic is a medical home for children in foster care in Oklahoma County.  This pilot project began through a partnership with University of Oklahoma Health Sciences Center, Oklahoma Department of Human Services, and the Oklahoma Health Care Authority.  Services provided follow AAP recommendations for children in foster care. 

The Family Resource 360 Center is a one-stop center for families with low incomes whose children have developmental disabilities.  Through coordination with the Department of Pediatrics, University of Oklahoma Health Sciences Center, children and families receive services through a medical home.  The Center is funded by the Administration on Developmental Disabilities

Oklahoma was selected to be part of the National NICHQ Medical Home Learning Collaborative - A fifteen-month collaborative activity to improve care for the growing population of CSHCN. This initiative focuses on 3 practices in the state and assists them in completing a quality improvement process to provide medical homes to their patients with special needs. It also assists in building the capacity of Oklahoma's CSHCN and other health department programs to support and extend this approach after the completion of the project period.

Related Grant Initiatives
This section provides information on current state grants that are working on medical home initiatives. This includes the grant abstract as well as key contacts for the grant.

Family/Provider Partnerships Champions Incentive Grant
Goal: To develop a family/provider survey to gather information about service needs and preferences of CSHCN families and their service providers. This information will be used to improve the family/provider partnership structure at the local, regional, and state levels.
For more information contact:Frank Gualt
Phone: (405) 521-4394 | Email: Frank.Gault@okdhs.org

Genetics Grant
Purpose: This project will establish a public health genetics infrastructure with the capacity to plan, implement, monitor and evaluate genetics by facilitating the implementation of the Oklahoma State Genetics Plan and Data Integration Plan for a child health information system. For systems development, this project focuses on children with special health care needs identified through newborn screening programs and with genetic disorders to ensure medical homes, as defined by the American Academy of Pediatrics (Pediatrics 1992), are established and linked to service systems that promote optimal health and meet the Healthy People 2010 Express goals (HRSA 2001).

Partners in the State
This section provides information on who in the state (individuals and agencies) are working together to create medical homes for children.

American Academy of Pediatrics (AAP) Chapter: www.okaap.org/

American Academy of Family Physicians (AAFP) Chapter: www.okafp.org/

Title V Children with Special Health Care Needs (CSHCN) Program: www.okdhs.org/fssd/ProgramInformation.htm#Children

Title V Block Grant to States
Title V of the Social Security Act is one of the largest Federal block grant programs. It leads the nation in ensuring the health of all mothers, infants, children, adolescents, and children with special health care needs (CSHCN). Title V is administered by the Maternal and Child Health Bureau (MCHB) as part of the Health Resources and Services Administration, U.S. Department of Health and Human Services.

Title V and Children with Special Health Care Needs
MCHB Objective: Support development and implementation of comprehensive, culturally competent, coordinated systems of care for the estimated 18 million U.S. children who have or are at risk for chronic physical, developmental, behavioral or emotional conditions and who also require health and related services of a type or amount beyond that required by children generally.

Early Hearing Detection & Intervention (EHDI) Contact(s):
State EHDI programs promote universal newborn hearing screening, develop effective tracking and follow-up as a part of the public health system, promote appropriate and timely diagnosis of the hearing loss, prompt enrollment in appropriate Early Intervention, link newborns to a medical home and strive to eliminate geographic and financial barriers to service access.

Name: James G. Schmaelzle; M.C.D. Coordinator
Contact: Phone: 405-271-4470 | Fax: 405-271-1011
E-mail: jims@health.state.ok.us

Early Intervention/Part C Coordinator:The Program for Infants and Toddlers with Disabilities (Part C of IDEA) is a federal grant program that assists states in operating a comprehensive statewide program of early intervention services for infants and toddlers with disabilities, ages birth through age 2 years, and their families.

Name: Mark Sharp, Part C Coordinator
Contact:Phone: (405) 521-4880 | Fax: (405) 522-3503
Email: mark_sharp@sde.state.ok.us
Web site: sde.state.ok.us

Contact: Angela Kelley, Coordinator
Phone: (405) 522-1463 | Email: angela_kelley@sde.state.ok.us
Web Site: sde.state.ok.us

State Interagency Coordinating Council (ICC) Chairs:
The ICC advises appropriate agencies on the unmet needs in early childhood special education and early intervention programs for children with disabilities, assists in the development and implementation of policies that constitute a statewide system, and assists all appropriate agencies in achieving full participation, coordination, and cooperation for implementation of statewide system.

Name: Paula Brown, ICC Chair
Contact: Phone: (405) 385-0188, ext. 113 | Fax (405) 707-9712
Email: paulabrown3@cox.net

Resources/Documents
State Waiver Information: www.cms.hhs.gov/MedicaidStWaivProgDemoPGI/08_WavMap.asp
Waivers are the result of a process that allows state Medicaid agencies to apply for and receive permission from HCFA to provide services not otherwise covered by Medicaid and/or to do so in ways not described by the Social Security Act. Most Medicaid managed care programs require Waivers. The Waivers, which can differ greatly, are known by their numbers (1115, 1119), or as home-and community-based, or as Katie Beckett Waivers.

Educational Initiatives
This section provides information on training initiatives on the medical home. Some states will discuss their outreach projects in relation to physicians, families, and the community.

The Child Study Center, University of Oklahoma Health Sciences Center, surveyed all physicians in Oklahoma on knowledge and use of medical home concepts.  The responses to the survey will direct outreach and training for physicians on medical home activities.  The Oklahoma Health Care Authority, the state’s Medicaid agency, funds the project.

Screening Initiatives
This section provides information on surveillance and screening initiatives in the state.

Developmental Surveillance and Screening Policy Implementation Project (D-PIP)
Children’s Clinic from Muskogee, OK is participating in the Developmental Surveillance and Screening Policy Implementation Project (D-PIP). The D-PIP has selected 17 practices from across the United States to implement the AAP policy statement (scheduled for publication in July 2006) “Identifying Infants and Young Children with Developmental Disorders in the Medical Home: An Algorithm for Developmental Surveillance and Screening” to 1) determine if the algorithm is efficiently and effectively implemented into pediatric practice; 2) recognize strategies for implementing the algorithm; and 3) examine outcomes of implementation. Following the project, information and outcomes will be shared with pediatric clinicians and other health care professionals who are seeking to improve the delivery of developmental surveillance and screening.

Additional information on the D-PIP is available at: www.medicalhomeinfo.org/screening/DPIP.html

State Newborn Screening & Genetics Programs: genes-r-us.uthscsa.edu/resources.htm | www.health.state.ok.us/program/gp/index.html

• State Newborn Screening Program Links
• State Genetics Program Links
• Regional Genetics and Newborn Screening Collaborative Links
• Newborn Screening State Contact Fact Sheet

Family Voices: www.familyvoices.org/st/OK.htm
Partnering with professionals and families to advocate for health care services that are family-centered, community-based, comprehensive, coordinated and culturally competent.

NAMI of Oklahoma (National Voice on Mental Health): ok.nami.org/
Education, advocacy and support for persons with brain disorders (mental illnesses) and their families.

Oklahoma Family Network:  www.oklahomafamilynetwork.org
Oklahoma’s Parent-to-Parent program advocating for family-centered care for those who are raising children with special health care needs.  OFN links trained, experienced parent mentors to those who have a child with developmental delays, medical needs, a disability, has died or is terminally ill. 

OASIS:  www.oasis.ouhsc.edu
Providing a statewide information and referral service that can help Oklahomans with special needs find community resources through their database of thousands of agencies, organization and programs throughout the state.

Oklahoma Parent Network:  www.okparentnetwork.org
Listserv for families of children and adults with developmental disabilities, self-advocates and professionals seeking to connect, share and learn from one another.

Early Hearing Detection & Intervention (EHDI) Information for Parents:
Description of EHDI Program
www.medicalhomeinfo.org/screening/State/oklahoma.html

Family Village: www.familyvillage.wisc.edu/index.htmlx
A global community that integrates information, resources, and communication opportunities on the Internet for persons with cognitive and other disabilities, for their families, and for those that provide them services and support. This site offers informational resources on specific diagnoses, communication connections, adaptive products and technology,adaptive recreational activities, education, worship, health issues, disability-related media and literature, and much, much more!

State Resources on the Internet: www.medicalhomeinfo.org/states/index.html#res

Note: The information provided on the state pages was submitted by the state medical home teams.As this is not an exhaustive list, please let us know if you have additions for your state resource page. You can contact us at: medical home@aap.org.

http://www.medicalhomeinfo.org/states/state /oklahoma.html
Last Updated August 15, 2006