Medical Homes in Utah
 This page is designed to keep you informed about events and activities happening in Utah that will help improve access to medical homes for children with special health care needs (CSHCN).

Medical Home Initiatives
This section provides information on state medical home initiatives/programs. States that are a part of the mentorship network will have a "Promise to the State" which outlines how they will achieve ensuring that all children have a medical home by 2010. This is based on the Healthy People 2010 goals which is a 10 year action plan to achieve and measure success for all CSHCN.

Utah Medical Home Contact:

Name: Barbara Ward RN BS - Project Coordinator, Utah Collaborative Medical Home
Contact: Phone: 801-584-8584 | Email: bward@utah.gov

The Utah Department of Health has been awarded an MCHB State Implementation Grant for Integrated Community Systems of Services for CSHCN
Duration of Program: Project period May 1, 2005- April 30, 2008.
Contact Person: Barbara Ward, RN | bward@utah.gov
Goals and Objectives: The Project’s overall goal is the systematic integration of community-based services for CYSHCN and their families throughout Utah. Component Goals include:1) Design and implement the leadership and infrastructure to accomplish and sustain this integration; 2) Using the Learning Collaborative model, integrate the six core components into Utah community systems; 3) Provide and continually enhance statewide resources and information to support the integration of the 6 Core Components into communities.

Utah Statewide Medical Home Implementation Plan - Promise to the State
www.medicalhomeinfo.org/grant/states/UtahPromise.pdf

Utah Collaborative Medical Home Project: www.medhomeportal.org

MCHB Medical Home Project:
www.medicalhomeinfo.org/grant/states/MCHB Grants/UtahMCHBgrant.pdf
The purpose of this project is to develop and implement a statewide system to support medical
homes for children with special health care needs (CSHCN) in primary care settings.

MCHB Integrated Services Grant "Opening Utah's Doors" : www.medicalhomeinfo.org/grant/states/Integrated/Utahopeningdoorsgrant.pdf
Purpose: Some families who have a child with special needs feel confused and overwhelmed in an attempt to find services that their child needs most. Some families view the system as a complex disconnected network creating additional frustration for families who many times are already struggling. In our technically advanced society, it is unbelievable that the services available to families have not created an integrated approach for ensuring and providing services.

The Early Intervention Research Institute (EIRI) will work in partnership with nine Utah state departments,
community based programs and families to develop a common enrollment/eligibility process for the families these agencies serve.

MCHB Grant "Measuring and Monitoring": www.medicalhomeinfo.org/grant/states/Integrated/UtahM&Mgrant.pdf
The M&M Project is funded by DSCSHN and is a collaborative endeavor of the Early Intervention Research Institute at Utah State University and six states: Vermont, South Carolina, Ohio, Arizona, Utah, and Oregon. The purpose of the project is to understand current state capacity to measure the CSHCN outcomes and to help them enhance their capacity through expanded measurement and monitoring efforts. A critical step for reaching this end was to develop indicators to facilitate outcome measurement.

Utah completed the National Initiative for Child Health Quality (NICHQ) Medical Home Learning Collaborative - A fifteen-month collaborative activity to improve care for the growing population of CSHCN. This initiative focused on 3 practices in the state and assisted them in completing a quality improvement process to provide medical homes to their patients with special needs. It also assisted in building the capacity of Utah's CSHCN and other health department programs to support and extend this approach after the completion of the project period.

Utah Care Notebook Care Notebook pdf file
This Care Notebook is an organizing tool for families who have children with special health care needs. Utah created the book to help families keep track of important health care information, list providers and community organizations contact information, prepare for appointments and file and share health history. Utah Family Voices shared this guide so that other resource centers may use this as a template when developing similar tools.

Related Grant Initiatives
This section provides information on current state grants that are working on medical home initiatives. This includes the grant abstract as well as key contacts for the grant.

Genetics MCHB Grant
Purpose: The purpose of the Utah Genetics Implementation Project (UGIP) is to ensure that appropriate newborn conditions are screened in Utah, and to provide an enhanced system of care for Children with Special Health Care Needs (CSHCN) with these conditions through data integration, medical homes, and, when appropriate, early intervention.

Hemophilia MCHB Grant
Project Period: June 1, 2002 through May 31, 2005
Purpose: The purpose of this proposal is to continue the family-centered, community-based comprehensive hemophilia care supporting the successful existing structure of Hemophilia Treatment Centers (HTCs) in MCHB Region VIII.

Family to Family Health Information and Education Center
Project Period: October 1, 2004 through September 30, 2007
Purpose: This $150,000 project from the Centers for Medicare & Medicaid Services is to establish a statewide Family to Family Health Care Information and Education Center. A family-to-family section will be added to the nationally recognized Utah Collaborative Medical Home website and a statewide, toll-free, family run telephone number will be established.

Partners in the State
This section provides information on who in the state (individuals and agencies) are working together to create medical homes for children.

American Academy of Pediatrics (AAP) Chapter: Email Cathy Oyler at: coyler@ips-uaap.org

American Academy of Family Physicians (AAFP) Chapter: www.aafp.org/chapterweb/utah.html

Title V CSHCN Program: health.utah.gov/cshcn/

Title V Block Grant to States
Title V of the Social Security Act is one of the largest Federal block grant programs. It leads the nation in ensuring the health of all mothers, infants, children, adolescents, and children with special health care needs (CSHCN). Title V is administered by the Maternal and Child Health Bureau (MCHB) as part of the Health Resources and Services Administration, U.S. Department of Health and Human Services.

Title V and Children with Special Health Care Needs
MCHB Objective: Support development and implementation of comprehensive, culturally competent, coordinated systems of care for the estimated 18 million U.S. children who have or are at risk for chronic physical, developmental, behavioral or emotional conditions and who also require health and related services of a type or amount beyond that required by children generally.

Early Hearing Detection & Intervention (EHDI) Contact(s):
State EHDI programs promote universal newborn hearing screening, develop effective tracking and follow-up as a part of the public health system, promote appropriate and timely diagnosis of the hearing loss, prompt enrollment in appropriate Early Intervention, ensure a medical home for all newborns and
strive to eliminate geographic and financial barriers to service access.

Name: Rich Harward M.S.
Contact: Phone: 801-584-8215 | Fax: 801-584-8492 | rharward@utah.gov

Baby Watch Early Intervention/Part C Coordinator:
The Program for Infants and Toddlers with Disabilities (Part C of IDEA) is a federal grant program that assists states in operating a comprehensive statewide program of early intervention services for infants and toddlers with disabilities, ages birth through age 2 years, and their families.

Name: Susan Ord, Part C Coordinator
Contact: Phone: (801) 584-8441| Fax: (801) 584-8496 | Email: sord@utah.gov
Web Site: www.utahbabywatch.org/

Section 619/Special Education for ages 3-5 Coordinators:
This program provides free appropriate public education (FAPE) for children, ages 3 through 5 years, with disabilities:

Name: Connie Nink, 619 Coordinator
Contact: Phone: (801) 538-7948 | Fax: (801) 538-7991 | Email: cnink@usoe.k12.ut.us
Web site: www.usoe.k12.ut.us/sars/

State Interagency Coordinating Council (ICC) Chairs:
The ICC advises appropriate agencies on the unmet needs in early childhood special education and early intervention programs for children with disabilities, assists in the development and implementation of policies that constitute a statewide system, and assists all appropriate agencies in achieving full participation, coordination, and cooperation for implementation of statewide system.

Name: Barbara J. Fiechtl, ICC Chair
Contact: Phone: (435) 797-3258 | Fax: (435) 797-3572 | Email: bjfic@cc.usu.edu

Resources/Documents
Opening Utah's Doors: www.cpd.usu.edu/projects/view_project.php?pid=587

Measuring and Monitoring: eiri.usu.edu/projects/MandM/

State Waiver Information:www.cms.hhs.gov/MedicaidStWaivProgDemoPGI/08_WavMap.asp
Waivers are the result of a process that allows state Medicaid agencies to apply for and receive permission from HCFA to provide services not otherwise covered by Medicaid and/or to do so in ways not described by the Social Security Act. Most Medicaid managed care programs require Waivers. The Waivers, which can differ greatly, are known by their numbers (1115, 1119), or as home-and community-based, or as Katie Beckett Waivers.

Educational Initiatives
This section provides information on training initiatives on the medical home. Some states will discuss their outreach projects in relation to physicians, families, and the community.
No information is currently available for this category.

Screening Initiatives
This section provides information on surveillance and screening initiatives in the state.

State Newborn Screening & Genetics Programs: genes-r-us.uthscsa.edu/resources.htm

  • State Newborn Screening Program Links
  • State Genetics Program Links
  • Regional Genetics and Newborn Screening Collaborative Links
  • Newborn Screening State Contact Fact Sheet

Assuring Better Health and Child Development (ABCD) Program:
http://12.109.133.213/_catdisp_page.cfm?LID=2ED00011-7622-11D6-BD1500A0CC76FF4C
The Assuring Better Child Health and Development (ABCD) Program is funded by the Commonwealth Fund, administered by National Academy of State Health Policy, and designed to assist states in improving the delivery of early child development services for low-income children and their families.

ABCD II: http://12.109.133.213/_docdisp_page.cfm?LID=D7D80609-B1EA-452C-96078F6D2E884FFF
The ABCD II Initiative, launched in 2003, is designed to assist states in building the capacity of Medicaid programs to deliver care that supports children’s healthy mental development.

Family Corner
Early Hearing Detection & Intervention (EHDI) Information for Parents:
Babies Referred from Screening | Babies Diagnosed with Hearing Loss
www.medicalhomeinfo.org/screening/State/utah.html

Family Voices: www.familyvoices.org/st/UT.htm
Partnering with professionals and families to advocate for health care services that are family-centered, community-based, comprehensive, coordinated and culturally competent.

NAMI of Utah (National Voice on Mental Health): www.namiut.org/
Education, advocacy and support for persons with brain disorders (mental illnesses) and their families

State Resources on the Internet: www.medicalhomeinfo.org/states/index.html#res

Note: The information provided on the state pages was submitted by the state medical home teams.As this is not an exhaustive list, please let us know if you have additions for your state resource page. You can contact us at: medical home@aap.org.

http://www.medicalhomeinfo.org/states/state /utah.html

Last Updated October 3, 2006