Massachusetts Family Corner
Family Voices: www.massfamilyvoices.org/
Partnering with professionals and families to advocate for health care
services that are family-centered, community-based, comprehensive, coordinated
and culturally competent. Materials developed by Massachusetts Family
Voices.
Massachusetts Family-to-Family Health Care Information & Education Center www.massfamilyvoices.org/F2FHIC.html
Activities include providing training opportunities and technical assistance to families to help them advocate for quality health care services for their children and youth with special health care needs.
- Provides public benefits information to families of children and youth with special health needs, and others,
- Helps families navigate various health care systems and supports to ensure their children can live at home,
- Creates and/or shares opportunities for parents and professionals to work together to ensure children and youth with special health care needs are active participants in their communities, and
- Helps families have an active “voice” in the decision making process about their services and supports,
- Mentors other parents to work in different regions of the state to become resources for families just beginning the process of navigating these complex health benefit’s systems,
- Provides opportunities for families to participate in topical conference calls,
- Hosts a statewide listserv where families and professionals can build partnerships, share information and resources and support each other in our advocacy efforts on behalf of children and youth with special health care needs.
Leave a message at 1-800-331-0688, ext. 210. Your call will be returned. Or e-mail: massfv@fcsn.org
Family
Village: www.familyvillage.wisc.edu/index.htmlx
A global community that integrates information, resources, and communication
opportunities on the Internet for persons with cognitive and other disabilities,
for their families, and for those that provide them services and support.
This site offers informational resources on specific diagnoses, communication
connections, adaptive products and technology,adaptive recreational activities,
education, worship, health issues, disability-related media and literature,
and much, much more!
Island Parents Educational Support & Training Center
(IPEST): www.ipest.org/
Trains
parents and other caregivers to become active participants in the educational
process of their child/children with a disability. The ultimate goal is
to pass these skills on so that children can advocate for their own educational
needs. They work with families whose children range in ages from birth
to 22 years.
NAMI of Massachusetts (National Voice of Mental Illness): namimass.org/
Education, advocacy and support for persons with
brain disorders (mental illnesses) and their families.
PACCTips: archives.communityinclusion.org/pacctips
Is a place for families to browse to learn about approaches, equipment,
supplies that have worked for other families as they care for their child
with special health care needs or disability.
Resource Guides:
- Family TIES Resource Directory:
www.massfamilyties.org/directory.html
This directory was developed by the Family TIES Project to help parents and providers locate available services and resources for children and youths with special needs. - Western Massachusetts Resource Guide
This guide was developed for the Every Child Deserves a Medical Home training program on November 8, 2003. - The Association for Retarded Citizen (Arc) Family Resource
Guide www.thearc.org/familyguide/massachusetts.doc
This guide is written for families raising children with mental retardation and related developmental disabilities. It tells families about benefits, supports and services in their state that might help their child.
Early Hearing Detection & Intervention (EHDI) Contact and Program Information: www.medicalhomeinfo.org/screening/State/massachusetts.html
Note: The information provided on the state pages was submitted by the state medical home teams.As this is not an exhaustive list, please let us know if you have additions for your state resource page. You can contact us at: medical home@aap.org.
Last Updated August 15, 2006