Rhode Island Family Corner

Resources and Materials
Early Hearing Detection & Intervention (EHDI) Contact and Program Information

2003 Recreation Resource Guide:www.riddc.org/recguide.shtml
This guide lists a broad range of recreation, arts and entertainment and education programs and services for people who have a disability. It also lists other programs that have upgraded facilities to make them accessible and have inclusive policies that allow people with developmental disabilities to participate.

Family Village: www.familyvillage.wisc.edu/index.htmlx
A global community that integrates information, resources, and communication opportunities on the Internet for persons with cognitive and other disabilities, for their families, and for those that provide them services and support. This site offers informational resources on specific diagnoses, communication connections, adaptive products and technology,adaptive recreational activities, education, worship, health issues, disability-related media and literature, and much, much more!

The Rhode Island Developmental Disabilities Council: Provides national and local resources for people concerned about disabilities. Whether you are a person with a disability, a parent, teacher, social worker or other professional, you’ll find many useful links along with a brief site evaluation. Advocacy organizations, government agencies, research institutes, along with regional and local service agencies offer information that will help you close in on the answers to your questions. www.riddc.org/

RIte Care/RIte Share Transportation Options for Medical Trips: Provides inforamtion on bus passes and Specialized Transportation Provided through the RIde Program. Fact Sheet

Advocacy and Support Organizations
Family Voices: www.familyvoices.org/st/RI.htm
Partnering with professionals and families to advocate for health care services that are family-centered, community-based, comprehensive, coordinated and culturally competent.

NAMI of Rhode Island (National Voice on Mental Health): web.nami.org/about/amiri/
Education, advocacy and support for persons with brain disorders (mental illnesses) and their families

The Rhode Island Parent Information Network: www.ripin.org/
The Rhode Island Parent Information Network (RIPIN) is a statewide, nonprofit agency that provides information, training, support and advocacy to parents seeking help for their children. RIPIN is the home of five projects that are made up of 11 programs and services to families with children in RI, including families of children with special needs. The five projects include Family Voices, the Early Intervention Parent Consultant Program, the Family Health Parent Consultants, the Parent Information and Resource Center and the Parent Training and Information Center.

The Association for Retarded Citizen (Arc) Family Resource Guide www.thearc.org/familyguide/rhodeisland.doc
This guide is written for families raising children with mental retardation and related developmental disabilities. It tells families about benefits, supports and services in their state that might help their child.

Note: The information provided on the state pages was submitted by the state medical home teams.As this is not an exhaustive list, please let us know if you have additions for your state resource page. You can contact us at: medical home@aap.org.

Last Updated July 27, 2005