California Family Corner
Early Hearing Detection & Intervention
(EHDI) Contact
and Program Information
Family Village: www.familyvillage.wisc.edu/index.htmlxx
A global community that integrates information, resources, and communication
opportunities on the Internet for persons with cognitive and other disabilities,
for their families, and for those that provide them services and support.
This site offers informational resources on specific diagnoses, communication
connections, adaptive products and technology,adaptive recreational activities,
education, worship, health issues, disability-related media and literature,
and much, much more!
Advocacy and Support Organizations
Exceptional Parents Unlimited: www.exceptionalparents.org/
The mission of EPU is accomplished by providing an array of services to
children and families that are accessible, integrated, and coordinated.
Program goals include supporting 1) infants and children with disabilities
in achieving individual developmental goals; 2) parents in developing
skills to help themselves and their children function successfully in
various settings; 3) positive parent-child relationships to promote early
attachment and lifelong bonds.
Family Voices:
www.familyvoices.org/st/CA.htm
Partnering with professionals and families to advocate for health care
services that are family-centered, community-based, comprehensive, coordinated
and culturally competent.
Loving Your Disabled Child: www.lydc.org/
Provides parents and families of children with disabilities emotional,
educational, and spiritual support.
Matrix: www.matrixparents.org/
Matrix offers emotional support to parents, information on a vast array
of topics about disabilities and related areas, referral to appropriate
services and training workshops to provide parents with the skills they
need to build life-affirming confidence and effectiveness to guide their
children throughout life.
NAMI of California (National Voice of Mental Illness): www.namicalifornia.org/
Education, advocacy and support for persons with brain disorders (mental
illnesses) and their families.
Parents Helping Parents: www.php.com/
Provides an array of services to parents of CSHCN that includes: Parent
to Parent Support,
Peer Counseling, Support and Information Groups, Integrated Playgroups,
Information and Referral & Guidance.
Sickle Cell Community
Health Network Oakland PEACE CPRC: E-mail: sicklecellnet@aol.com
Support for Families of Children with Disabilities: www.supportforfamilies.org/
Offers a wide range of information, education, and parent-to-parent support
services free of charge to more than 2,400 San Francisco families every
year. They also provide information and educational services to
professionals who work with families, and actively collaborate with other
organizations to work towards a more coordinated, family-friendly network
of services
Vietnamese Parents of Disabled Children Assoc., Inc. (VPDCA): www.vpdca.org/
The principal objectives of the VPDCA are: To advocate for the right
of Vietnamese children with disabilities and of their families. To assist
parents, free of charge, in obtaining necessary benefits and services
for their children with special needs (SSI, Medi-Cal, CCS, IHSS,...) To
promote linguistically and culturally appropriate education/training opportunities.
To promote mutual support and assistance. Presently these activities are
limited to Los Angeles and Orange county.
Note: The information provided on the state pages was submitted by the
state medical home teams.As this is not an exhaustive list, please let
us know if you have additions for your state resource page. You can contact
us at: medical home@aap.org.
Last Updated August 10, 2006