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 Medical
Homes in California
This page is designed to keep you informed about
events and activities happening in California that will
help improve access to medical homes for children with special
health care needs (CSHCN).
Click on a topic below to learn more about what's
going on in California
Click here
for state funding opportunities
Medical Home Initiatives
This section
provides information on state medical home initiatives/programs.
States that are a part of the mentorship
network will have a "Promise to the State"
which outlines how they will achieve ensuring that all children
have a medical home by 2010. This is based on the Healthy
People 2010 goals which is a 10 year action plan to
achieve and
measure
success for all CSHCN.
California Medical Home
Contact:
Name: Kathryn Smith, R.N., M.N.
Contact: Phone: 323-361-8301 | Fax: 323-361-8305
Email: kasmith@CHLA.USC.EDU
State Team: Roster
California Medical Home Web site: http://mchneighborhood.ichp.ufl.edu/medicalhomela
California Statewide Medical Home Implementation Plan: Promise to the State 
Related Grant Initiatives
This section provides information
on current state grants that are working on medical home
initiatives. This iincludes the grant abstract as well as
key contacts for the grant.
http://www.cshcn-ca.org
The purpose of this website is to provide information to parents and professionals to assist them in caring for children and youth with special health care needs. Resources, referrals, and condition-specific information are presented, as well as information about concepts common to the care of these children. In addition, policy and advocacy information are provided. Also on the site is the bi-monthly CSHCN-CA newsletter which contains news and events related to CSHCN.
For more information contact:
Juno Duenas
2601 Mission St. Suite 606
San Francisco, CA 94110
phone: 415-282-7494
fax: 415-282-1226
jduenas@supportforfamilies.org
Laurie Soman
725 Welch Rd. M/C 5524
Palo Alto, CA 94304
LSoman6708@aol.com
Project Access: Improving Access to Care for Children/Youth with Epilepsy and Their Families in Rural and Frontier Communities
Childrens Hospital Los Angeles
USC University Center For Excellence in Developmental Disabilities (UCEDD)
This three-year project (2007-2010) is one of 5 national demonstration projects funded by the Maternal and Child Health Bureau. The projects are charged with developing, implementing, and evaluating systems strategies to improve access to health and other services and supports related to epilepsy. This project aims specifically to improve access to health care and related services for children and youth with epilepsy who live in rural and frontier communities in Alaska, California, Nevada, and Wyoming.
The Western States Regional Collaborative (AK, CA, Guam, HI, ID, OR, & WA) was awarded a Medical Home Visting Professorship (2008)
Medical Home Visiting Professorship Pilot Program
The American Academy of Pediatrics National Center for Medical Home Initiatives for Children with Special Needs and the American College of Medical Genetics' National Coordinating Center for the Regional Genetics and Newborn Screening Service Collaboratives (NCC) in partnership with the ACMG and MCHB recently developed a pilot visiting professorship program. This program focuses on the specific topic areas of genetics and medical home and also establishing linkages between Regional Genetics and Newborn Screening Services Collaboratives (RCs) and AAP Chapters.
Healthy Tomorrows Partnership for Children Grant 2003-2008
The Pediatric Medical Home Project at UCLA
Purpose: David Geffen School of Medicine
at UCLA and the Mattel Children’s Hospital, Los Angeles,
CA
The Pediatric Medical Home Project at UCLA will implement
a four-pronged initiative comprising care coordination,
Resident medical education, prospective pediatric health
services research and community awareness and involvement
for children with special health care needs. The goal of
the project is to provide a medical home for children with
special health care needs in West Los Angeles now while
training pediatricians to provide medical homes to their
patients in the future. For more information
on this project click here.
For more information on the Healthy Tomorrows Grant Program click here.For more information
on this HTPCP project, please e-mail your name, address,
telephone, and fax numbers with your specific request to healthyt@aap.org.
Dyson Community
Pediatrics Training Grant
University of California, Davis School of Medicine,
Pediatric Residency Training Program
Through the Initiative, Community Partnerships with Pediatricians
for Healthy Children (CPPHC) strives to give every child
a healthy present and future by teaching pediatricians,
both in training and in practice, how to make a difference
through active community partnerships to support families
in raising healthy children
University of California, San Diego Department of
Pediatrics and the Naval Medical Center, Pediatrics: Pediatric
Residency Program
Through the Initiative, the Pediatric Residency Program
provides educational experiences for residents to acquire
the skills and motivation to interact in a culturally competent
manner with families, community organizations, health and
social service providers, churches, governmental agencies,
and key policy-makers to improve the health of all children
as an integral part of their pediatric practice. In experiential
learning spanning three years, residents actively participate
in population-based practices, needs and resource mapping,
advocacy and consultant roles. The learning environments
are the community-based organizations, churches, and school
and public health systems affiliated with four unique populations
in the San Diego area (rural/Native American, urban/immigrant,
homeless, and international border).
The ultimate goal of the Dyson Initiative is the development
of pediatric professionals with greater skills and interest
in community-based medicine, advocacy, and the capacity
to improve the health of children in their communities.
Here you can learn how diverse programs around the country
are educating residents about community pediatrics and fostering
practical community experiences. www.aap.org/commpeds/cpti/grantees.htm
Hemophilia Grant: Abstract
Purpose: The purpose of this project is
to improve the health of persons with inherited bleeding
disorders in Region IX: California, Hawaii, Nevada and the
U.S. Affiliated Pacific. This will be accomplished by sustaining
a regional network of fifteen comprehensive hemophilia diagnostic
and treatment centers (HTC) whose multidisciplinary clinician
teams serve affected children, adults, and their families
in a manner that is family-centered, culturally competent,
and integrated with education and family support programs.
Centers for Disease Control and Prevention (CDC) data documents
that HTC care reduces hemophilia mortality by 60% and reduces
bleed related hospitalizations by 50%.
Partners in the State
This section provides information on who in the state
(individuals and agencies) are working together to
create medical homes for children.
American Academy of Pediatrics (AAP) Chapter:
California Chapter 1: www.aapca1.org/
California Chapter 2: www.aapca2.org/
California Chapter 3:
www.aapca3.org/
California Chapter 4: www.aapca4.org/
California District IX: www.aap-ca.org/
American Academy of Family Physicians (AAFP) Chapter:
www.familydocs.org/
Children's Hospice and Palliative Care Coalition: http://www.childrenshospice.org/coalition/
iIs a social movement led by children’s hospitals, hospices, home health and grassroots agencies, and individuals to improve care for children with life-threatening conditions and their families.
Family Voices of California at Support for Families of Children with Disabilities (SFCD)
Name: Juno Duenas
Phone: (415) 282-7494
Email: jduenas@supportforfamilies.org
Name: Ron Nieberding
Phone: (415) 282-7494
Email: rnieberding@familyvoicesofca.org
Web site: http://www.familyvoicesofca.org/
Title V Block Grant to States
Title V of the Social Security Act is one of the largest
Federal block grant programs. It leads the nation in ensuring
the health of all mothers, infants, children, adolescents,
and children with special health care needs (CSHCN). Title
V is administered by the Maternal and Child Health Bureau
(MCHB) as part of the Health Resources and Services Administration,
U.S. Department of Health and Human Services.
Title V and Children with Special Health Care
Needs
MCHB Objective: Support development and
implementation of comprehensive, culturally competent,
coordinated systems of care for the estimated 18 million
U.S. children who have or are at risk for chronic physical,
developmental, behavioral or emotional conditions and
who also require health and related services of a type
or amount beyond that required by children generally.
MCH Contact
Shabbir Ahmad, D.V.M., MS, Ph.D.
Acting Division Chief, Maternal, Child, and Adolescent Health Program
Address: 1615 Capitol Avenue, 5th Floor, MS 8300, P.O. Box 997420
Sacramento, CA 95899-7420
Phone: (916) 650-0300 | Fax: (916) 650-0305 fax
Email: Shabbir.Ahmad@cdph.ca.gov
Internet site: http://www.cdph.ca.gov
CSHCN Contact
Marian Dalsey, M.D., M.P.H.
Chief, Children's Medical Services Branch
Address: 1515 K Street, Room 400, MS 8100, PO Box 997413
Sacramento, CA 95899-7413
Phone: (916) 327-1400 | Fax (916) 327-1106
Email: marian.dalsey@dhcs.ca.gov
Internet site: http://www.dhcs.ca.gov
Healthy Ready to Work: www.cahrtw.org/
Early Hearing Detection & Intervention (EHDI) Contact(s):
State EHDI programs promote universal
newborn hearing screening, develop effective tracking and
follow-up as a part of the public health system, promote
appropriate and timely diagnosis of the hearing loss, prompt
enrollment in appropriate Early Intervention, ensure a medical
home for all newborns and
strive to eliminate geographic and financial barriers to
service access.
Name: Hallie W. Morrow; MD, MPH
Contact: Phone: 916-323-8009 | Fax: 916-323-8104
E-mail: hmorrow@dhs.ca.gov
Newborn Hearing Screening Program (NHSP) Web site: www.dhs.ca.gov/pcfh/cms/nhsp/
State Genetics Program: www.dhs.ca.gov/pcfh/gdb/gdbindex.htm
Early Start - Early Intervention/Part C Coordinator:
The Program for Infants and Toddlers with Disabilities (Part
C of IDEA) is a federal grant program that assists states
in operating a comprehensive statewide program of early
intervention services for infants and toddlers with disabilities,
ages birth through age 2 years, and their families.
Name: Rick Ingraham
Contact: Phone: (916) 654-2773 | Fax:
(916) 654-3255 | Email:
ringraha@dds.ca.gov
Web Site: www.dds.ca.gov/EarlyStart/ESHome.cfm
Section 619/Special Education for ages 3-5 Coordinators:
This program provides free appropriate public education
(FAPE) for children, ages 3 through 5 years, with disabilities.
Name: Chris Drouin
Contact: Phone: (916) 327-3698 | Email:
cdrouin@cde.ca.gov
State Interagency Coordinating Council (ICC) Chairs:
The ICC advises appropriate agencies on the unmet needs
in early childhood special education and early intervention
programs for children with disabilities, assists in the
development and implementation of policies that constitute
a statewide system, and assists all appropriate agencies
in achieving full participation, coordination, and cooperation
for implementation of statewide system.
Name: Raymond Peterson
Contact: Phone: (858) 576-2932 | Fax:
(858) 576-287
Resources
California Medical Home Resources by County Click Here
Alameda County Medical Home Project Resource Guide , April 2007
The goal of the Alameda County Medical Home Project for Children with Special Health Care Needs Resource Guide is to aid providers and their staff in making appropriate
referrals by providing a “snapshot” of each program, including: Eligibility requirements, Services provided, Application procedures, Contact information for each resource.
;
A Best Clinical and Administrative Practices (BCAP) Pilot
Project
Partnership worked to create a medical home to
streamline care for children with special needs; and provide
comprehensive resources for their families. The health plan
believes that the level of success achieved would not have
been possible without the involvement of its practice sites
and the strength of its coalition. "Improving Managed
Care for Children with Special Needs." For more information,
visit: www.chcs.org/publications3960/publications_show.htm?doc_id=236525
Access to Health Care for California's (CSHCN):
Chartbook
New California data on access to care for CSHCN. The data
compares the care children in Medi-Cal receive to the care
received by other children in California and in other state
Medicaid programs.
www.healthychild.ucla.edu/PUBLICATIONS/Documents/Chartbook.pdf
State Waiver Information: www.cms.hhs.gov/MedicaidStWaivProgDemoPGI/08_WavMap.asp
Waivers are the result of a process that allows state Medicaid
agencies to apply for and receive permission from HCFA to
provide services not otherwise covered by Medicaid and/or
to do so in ways not described by the Social Security Act.
Most Medicaid managed care programs require Waivers. The
Waivers, which can differ greatly, are known by their numbers
(1115, 1119), or as home-and community-based, or as Katie
Beckett Waivers.
California Medicaid- Medi-Cal: www.medi-cal.ca.gov/
The California HealthCare Foundation has developed two
easy-to-use presentations that provide detailed information
about Medi-Cal and Healthy Families available at:
www.chcf.org/topics/medi-cal/index.cfm?itemID=21659&subtopic=CL157&subsection=medical101
The comprehensive Medi-Cal presentation covers the basics
on eligibility, enrollment, benefits, service delivery and
many other program details. It also includes a review of
Medi-Cal's legislative history, points of comparison with
other state Medicaid programs, and background on policy
issues. This new primer serves as a valuable resource for
understanding Medi-Cal, which represents 15 percent of General
Fund spending and is the main source of health care insurance
for 6.4 million people, or one in six Californians.
The Healthy Families presentation also summarizes program
essentials such as eligibility, enrollment and benefits,
service delivery and policy issues. Healthy Families provides
low-cost health insurance to children of families whose
incomes are too high to qualify for Medi-Cal, but are below
250 percent of the Federal Poverty Level (about $38,600
for a family for three). As of September 2003, 673,000 children
were enrolled in Healthy Families at a cost of more than
$650 million.
The presentation formats can be used by policy leaders,
health care administrators, or others to include localized
information.
Educational Initiatives
This section provides information on training initiatives
on the medical home. Some states will discuss their outreach
projects in relation to physicians, families, and the community.
Screening
Initiatives
This section provides information on surveillance
and screening initiatives in the state.
Developmental Surveillance and Screening Policy
Implementation Project (D-PIP)
The Children's Clinic, Serving Children & Their Families
from Long Beach, CA and Children's Clinic La Jolla
of La Jolla, CA are participating in the Developmental Surveillance
and Screening Policy Implementation Project (D-PIP). The
D-PIP has selected 17 practices from across the United States
to implement the AAP policy statement (scheduled for publication
in July 2006) “Identifying Infants and Young Children
with Developmental Disorders in the Medical Home: An Algorithm
for Developmental Surveillance and Screening” to 1)
determine if the algorithm is efficiently and effectively
implemented into pediatric practice; 2) recognize strategies
for implementing the algorithm; and 3) examine outcomes
of implementation. Following the project, information and
outcomes will be shared with pediatric clinicians and other
health care professionals who are seeking to improve the
delivery of developmental surveillance and screening.
Click
here for additional information on the D-PIP.
California Screening Academy and Collaborative
For more information, contact:
Janet Hill
MCH
Janet.Hill@cdph.ca.gov
State Newborn Screening & Genetics Programs:
genes-r-us.uthscsa.edu/resources.htm
- State Newborn Screening Program Links
- State Genetics Program Links
- Regional Genetics and Newborn Screening Collaborative
Links
- Newborn Screening State Contact Fact Sheet
Autism Service Guidelines
The Quick Reference Guide for Autistic Spectrum Disorders:
Best Practice Guidelines for Screening, Diagnosis
and Assessment is
a
summary of the key ideas and new concepts presented in Autistic
Spectrum Disorders: Best Practice Guidelines for Screening, Diagnosisand Assessment
http://www.ddhealthinfo.org/pdf/ASDquickguide.pdf
nonprofit law
center, to support projects that advance the rights and
fill unmet needs of people with d
State Resources on the Internet
Note: The information provided on the state pages was submitted
by the state medical home teams.As this is not an exhaustive
list, please let us know if you have additions for your
state resource page. You can contact us at: medical
home@aap.org.
Last Updated July 6, 2009
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