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Medical Homes in New York 
This page is designed to keep you informed about
events and activities happening in New York that will help
improve access to medical homes for children with special
health care needs (CSHCN).
Click on a topic below to learn more about what's
going on in New York
Click
here for state funding opportunities
Medical Home Initiatives 
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This section provides information on
state medical home initiatives/programs. States that are
a part of the mentorship
network will have a "Promise to the State"
which outlines how they will achieve ensuring that all children
have a medical home by 2010. This is based on the Healthy
People 2010 goals which is a 10 year action plan to
achieve and measure
success for all CSHCN.
New York Medical Home Contact:
Name: Sue Slade - Co-Director, Medical
Home Unit
Contact: Phone: 518-474-0570
| Email: sjs11@health.state.ny.us
State Team Roster
Family Leadership Champions
Incentive Grant -
Incentive
Award FAQs
Goal: To promote family leadership for
children and youth with special health care needs by creating
a sustainable Family Advisor Program which will provide
input into state and county CSHCN programs.
For more information contact: Susan Slade,
Medical Home Unit
Phone: (518) 474-0570 | Email: sjs11@health.stste.ny.us
MCHB Medical Home Grant: Suffolk
Medical Home Network
Abstract
Project Period: 4 Years From: July 1, 2004 to June 30, 2008
Purpose: The purpose of this project is to combine
resources of several agencies that specialize in caring
for CSHCN to develop a care coordination model, and to provide
medical home training for pediatric residents; to create
effective linkages to educational and social services; to
increase the access of Suffolk County families to medical
homes; and to provide services for families such as parent
training, support groups and advocacy coaching for parents.
MCHB Medical Home Grant:
Abstract
Project Period: 3 Years From: to 3/31/02 3/30/05
Purpose: New York State Department of Health
(NYSDOH) embraces the American Academy of Pediatrics
definition of the Medical Home as “the provision of
accessible, continuous, comprehensive, family-centered,
coordinated and compassionate care…" To ensure
that CSHCN in New York State benefit from a medical home,
NYSDOH will:
- Engage key stakeholders to develop and implement a comprehensive
statewide medical home plan for New York State.
- Ensure that all CSHCN, especially the hard to reach/serve
populations, have access to medical homes in New York
State.
- Implement the medical home plan in three major geographic
regions of NYS, which will become mentoring projects during
statewide implementation.
New York was selected to be part of the National
NICHQ Medical Home Learning Collaborative
- A fifteen-month collaborative activity to improve care
for the growing population of CSHCN. This initiative focuses
on 3 practices in the state and assists them in completing
a quality improvement process to provide medical homes to
their patients with special needs. It also assists in building
the capacity of the New York State Department of Health's
Medical Home Unit to support and extend this approach after
the completion of the project period. For more information
you can go to the project
overveiw.
Related Grant Initiatives
This section provides information on
current state grants that are working on medical home initiatives.
This includes the grant abstract as well as key contacts
for the grant.
Dyson Community Pediatrics
Training Grants
University of Rochester School of Medicine: Pediatric Links
with the Community / Child Advocacy Resident Education (PLC/CARE)
Program
Through the Pediatric Links with the Community
(PLC) Program and Child Advocacy Resident Education (CARE)
Program, the Initiative at the University of Rochester will
create a residency training program that inspires and empowers
future pediatricians to become leaders in improving the
health of children in their communities. The program will
also develop a model of community pediatrics in which pediatricians
collaborate with community-based organizations, work to
assure the health of all children in the community, and
advocate for their community to be more child-responsive
and child-oriented.
Columbia University Community Pediatric Training Program
at Children's Hospital of New York – Presbyterian
and Harlem Hospital Center (HHC)
Through The Initiative, the Community Pediatric
Training Program broadens residency education by ensuring
that all residents have acquired the knowledge, skills,
and attitudes that will enable them to work effectively
as life-long advocates in partnership with the community
to define the health problems of its children, provide curative
and preventive services, and evaluate the effectiveness
of those services. It also enhances the service to the community
by strengthening and building new partnerships with community-based
organizations. The program strengthens and expands the core
pediatric faculty in community pediatrics and collaborations
with other academic disciplines.
The ultimate goal of the Dyson Initiative
is the development of pediatric professionals with greater
skills and interest in community-based medicine, advocacy,
and the capacity to improve the health of children in their
communities. Here you can learn how diverse programs around
the country are educating residents about community pediatrics
and fostering practical community experiences.
www.aap.org/commpeds/cpti/grantees.htmindex.htm
Genetics MCHB Grant: Abstract
Purpose: The mission of the GENE Project
is to assist underserved populations in making informed
choices about their health by improving their access to
culturally and linguistically appropriate genetics information,
resources and services.
Hemophilia MCHB Grant: Abstract
Purpose:The purpose of this project is
to support the multidisciplinary model for the care of patients
with this Hemophilia and other congenital bleeding disorders
in order to continue to provide excellent, cost effective
care to this community. We anticipate further improvements
in health outcomes for this population with the continuation
of this project. This will be measured through the Universal
Data Collection surveillance and regional data collection,
including the new revised Hemophilia Data Set.
Partners in the State
This section provides information on who in the state
(individuals and agencies) are working together to create
medical homes for children.
American Academy of Pediatrics (AAP) Chapter:
New York Chapter 1: www.ny1aap.org/
New York Chapter 2: www.ny2aap.org/
New York Chapter 3: www.ny3aap.org/
New York District II: www.aapdistrictii.org/
American Academy of Family Physicians (AAFP) Chapter:
www.nysafp.org/
Title V CSHCN Program: Children with Special
Health Care Needs Program (CSHCN) Including Physically Handicapped
Children’s Program: www.health.state.ny.us/nysdoh/child/maternal_child_health.htm
The CSHCN Program is a statewide public health program
that provides information and referral services for health
and related areas for families of CSHCN. In addition some
of the local CSHCN programs offer case management services.
The CSHCN program also has a financial component, the
Physically Handicapped Children’s Program (PHCP).
The PHCP assists families in paying medical bills for
children with severe chronic illnesses and/or physical
disabilities, between birth and 21 years of age, who live
in New York State and meet county medical and financial
eligibility criteria.
The PHCP is located in most county health units. Prior
authorization from the local PHCP must be obtained for
all services. The PHCP has two components: the Diagnosis
and Evaluation Program (D&E) and the Treatment Program.
The D&E program will reimburse specialty providers
May 6, 2008
for eligible children. The treatment program will reimburse
specialty providers for the ongoing health and related
services for children who are medically and financially
eligible in their county of residence. The county standards
are designed to assist families with low incomes or inadequate
private health insurance to obtain medical services for
their children.
For Information: Call the New York State
Health Department’s Growing Up Healthy Hotline,
1-800-522-5006; or contact your local county health department.
(In New York City, contact the Bureau for Families and
Community Health Services of the New York City Health
Department at (212) 676-2950.
Early Hearing Detection & Intervention (EHDI) Contact(s):
State EHDI programs promote universal newborn hearing screening,
develop effective tracking and follow-up as a part of the
public health system, promote appropriate and timely diagnosis
of the hearing loss, prompt enrollment in appropriate Early
Intervention, ensure a medical home for all newborns and
strive to eliminate geographic and financial barriers to
service access.
Name: Brenda
Knudson Chouffi
Contact: Phone: 518-473-7016 | Fax:
518-486-1090 | E-mail: bkc03@health.state.ny.us
Web site: www.infanthearing.org/states/newyork/index.html
State Genetics Program: www.wadsworth.org/newborn/index.htm
Early Intervention/Part C Coordinator:
The Program for Infants and Toddlers with Disabilities (Part
C of IDEA) is a federal grant program that assists states
in operating a comprehensive statewide program of early
intervention services for infants and toddlers with disabilities,
ages birth through age 2 years, and their families.
Name: Brad Hutton ,Director
Contact: Phone: (518) 473-7016| Fax
(518) 486-1090 | E-mail: bjh08@health.state.ny.us
Web site: www.nyhealth.gov/community/infants_children/early_intervention
Section 619/Special Education for ages 3-5 Coordinators:
This program provides free appropriate public education
(FAPE) for children, ages 3 through 5 years, with disabilities:
Name: Candace Shyer,
Contact: Phone: (518) 473-2878 | Fax:
(518) 474-2219 | Email:cshyer@mail.nysed.gov
Website: www.vesid.nysed.gov/specialed/preschool/home.html
State Interagency Coordinating Council (ICC) Chairs:
The ICC advises appropriate agencies on the unmet needs
in early childhood special education and early intervention
programs for children with disabilities, assists in the
development and implementation of policies that constitute
a statewide system, and assists all appropriate agencies
in achieving full participation, coordination, and cooperation
for implementation of statewide system.
Name: Lisa
Kowal ,
ICC Vice Chair
Contact: Phone: (718) 912-3177 |Fax:
(716) 858-8099 | Email:
kowall@erie.gov
Web site: www.nectac.org/contact/iccchair.asp#NY
Resources/Documents
State Waiver Information:
www.cms.hhs.gov/MedicaidStWaivProgDemoPGI/08_WavMap.asp
Waivers are the result of a process that allows state Medicaid
agencies to apply for and receive permission from HCFA to
provide services not otherwise covered by Medicaid and/or
to do so in ways not described by the Social Security Act.
Most Medicaid managed care programs require Waivers. The
Waivers, which can differ greatly, are known by their numbers
(1115, 1119), or as home-and community-based, or as Katie
Beckett Waivers.
Educational Initiatives
This section provides information
on training initiatives on the medical home. Some states
will discuss their outreach projects in relation to physicians,
families, and the community.
No information is currently available for this category.
Screening
Initiatives
This section provides information on surveillance
and screening initiatives in the state.
State Newborn Screening & Genetics Programs:
genes-r-us.uthscsa.edu/resources.htm
- State Newborn Screening
Program Links
- State Genetics Program
Links
- Regional Genetics and
Newborn Screening
Collaborative Links
- Newborn Screening
State Contact Fact
Sheet
Autism Service
Guidelines
Autism/Pervasive Developmental Disorders
Assessment and Intervention
for Young Children (Age 0-3 Years)
This clinical practice guideline provides recommendations
about best practices for assessment and intervention for
young children with autism, with a primary focus on children
under 3 years of age. However, age 3 is not an absolute
cut-off, and many of the recommendations in this guideline
are also applicable in somewhat older children.
http://www.nyhealth.gov/community/infants_children/early_intervention/autism/index.htm
Funding
Opportunities
Deadline: September 15, 2006
The New York State Health Foundation has issued its first Request for Proposals.
The new foundation, which was created as a result of the privatization of Empire Blue Cross and Blue Shield, is inviting proposals for innovative projects that address one or more of the three
elements of its mission: expanding health insurance coverage, increasing access to high-quality healthcare services, and improving public and community health.
The foundation expects to make grants totaling $5 million in its start-up year, including approximately twenty grants in the range of $50,000 to $150,000 and three to five grants in the range of $150,000 and $1,000,000. In future years, the foundation, which has assets of about $250 million, will make between $12 million and $15 million in grants each year.
Grants made under this request will be one-time awards. Because these grants are unlikely to be renewed, the foundation will make awards only to existing organizations that are either enhancing
current initiatives or beginning new ones that will not require the foundation's future funding.
The foundation will consider proposals from existing nonprofit 501(c)(3) and for-profit organizations with a significant presence in New York state.
The complete Request for Proposals can be found on the Call for Proposals page of the foundation's Web site.
RFP Link:
http://fconline.foundationcenter.org/pnd/10003580/nyshealthfoundation
For additional RFPs in Health, visit:
http://foundationcenter.org/pnd/rfp/cat_health.jhtml
State Resources on the Internet
Note: The information provided on the state pages was submitted
by the state medical home teams.As this is not an exhaustive
list, please let us know if you have additions for your
state resource page. You can contact us at: medical
home@aap.org.
Last Updated
May 6, 2008
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