Pediatricians -Child Health Experts
www.aap.org/pubed/ZZZPMEIDH4C.htm?&sub_cat=1

Preparing for a Pediatric Visit
www.aap.org/pubed/ZZZVDFRK4EC.htm?&sub_cat=1

Common questions for patients and loved ones facing life-threatening illnesses - How to select a care provider
Determining if a hospice is right for you may best be learned from interviewing different hospices and talking to those you trust who are familiar with hospice programs in your area. This web site provides information on what services to expect from a hospice, how hospice begins, what supports are available to families/caregivers and choosing a palliative program.

Also click here for more tools developed by the National Hospice & Palliative Care Organization which could be useful in evaluating the different types of care and services a hospice may provide.

Communicating with Your Pediatrician
Does Your Child Have Special Health Care Needs?
As a parent, you know your child best and it is important to follow your instincts. Here are some questions and a starting point for you and your physician.

A NEW WAY…A BETTER WAY. The Medical Home Partnership: Building a Home Base for Your Child with Special Health Care Needs: Brochure
This large-format brochure was developed by New England SERVE for families in Massachusetts. It defines the Medical Home Partnership and provides a checklist for families to use in choosing a new physician for their child, or as a way to start a conversation with their child's doctor about Medical Home. The back page provides resources for building medical home partnerships in Massachusetts. If you are interested in replicating this brochure with specific information for your state or community, please contact Alexa Halberg at ahalberg@neserve.org or by phone: 617/574-9493.

Parent Tips: Building Early Intervention Partnerships with Your Child's Doctor Brochure
This brochure includes practical tips from and for parents in how to choose, partner and talk with your child's doctor, how to be an advocate for your child in early intervention and involve your doctor in early intervention services for your child. Available in: English · Cambodian · Chinese · Korean · Laotian · Russian · Spanish · Vietnamese.

Brochure developed by the Washington State Infant Toddler Early Intervention Program (ITEIP) and the University of Washington Center for Human Development and Disabilities (CHDD).

Communicating with your Care Coordinator
Things To Discuss With Your Care Coordinator - Oregon Medical Home Project
(Adapted from the Medical Home Project for Children with Special Health Care Needs, Los Angeles, CA)

Notes from Discussion with Your Care Coordinator -Oregon Medical Home Project
(Adapted from the Medical Home Project for Children with Special Health Care Needs, Los Angeles, CA)

Sample Forms:

• Communication Care Summary Sheet
  Use this page to talk about your child’s ability to communicate and to understand others. Describe how your child communicates. Include sign language words, gestures, or any equipment or help your child uses to communicate or understand others. Include any special words your family and child use to describe things. From the Center for Children with Special Needs: A Program of Children's Hospital & Regional Medical Center of Seattle, Washington.
• Notes to Take to the Doctor
  Includes questions to consider before the visit and notes from the exam. From the Medical Home Project for Children with Special Health Care Needs, Los Angeles, CA.

Last Updated July 21, 2008