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Youth
Portable Medical Summaries
Transition:
Role of Physician
“ The physician’s prime responsibility is the
medical management of the young person’s disease, but
the outcome of this medical intervention is irrelevant unless
the young person acquires the required skills to manage the
disease and his/her life.”
- Ansell BM & Chamberlain MA. Clinical Rheum. 1998; 12:363-374
Transition: Role of Youth and Families
- Maintain an up-to-date portable
medical summary
- IHTP - Create a written health care transition plan
by age 14: what services, who provides, how financed
- Apply primary & preventive care guidelines
- Ensure affordable, continuous health insurance that
includes transition planning & care coordination.
-Patti Hackett. What’s
Health Got to do with Transition? EVERYTHING!
Washington, DC, April 29 2004. 
It's Your Future - Go For It! A Transition
Guide for Teens and Parents
Shriners Hospitals for Children Northern California developed
this booklet to assist both teens and their parents with
the transition to adulthood. The booklet has information
on three important parts of adult life: Health care, School
and Work. The first two sections are especially for teens
and their families, and the third section is for parents.
We hope you will review this information both together and
individually. Keep this booklet handy for frequent use.
Feel free to copy any of these pages and share with others.
Institute for Child Health Policy has developed a set of
three health care transition workbooks for youth & families;
and tailored the workbooks for use by those served through
CMS - Florida Children's Medical Services Program. The workbooks
(for ages 12-14; 15-17; and 18+) are designed to help families
and youth think about future goals, to identify things that
the CSHCN is doing currently to be independent in health
care; and help figure out what needs to be done to assure
that the young person's future transition from pediatric
to adult-oriented health care goes smoothly.
These materials are available by clicking the link above.
If you are interested in making use of these materials in
your state, please email John Reiss, Institute for Child
Health Policy at:jgr@ichp.ufl.edu
. They are looking for partners to assess the utility and
impact of the workbooks on assisting youth and families
as they prepare for health care transition.
Working Together for Successful Transition: Washington
State Adolescent Transition Resource
Notebook
This notebook is a resource on transition from adolescence
to adulthood for young adults with special health care needs
and disabilities. Audiences likely to find this information
useful include families, students, school personnel, community
agency workers, health care providers and other groups working
with youth in Washington State. The notebook is organized
by sections based on content such as post-secondary education,
community participation, and vocational rehabilitation.
Each section contains individual documents that may be downloaded
as needed for individualized use, as resource handouts for
groups, or to make an entire hard copy of the notebook.
Click here for more information
on care notebooks.
Last Updated
July 22, 2008
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